Ireland

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Cancer Centers

Trinity St. James’s Cancer Institute

Beaumont RCSI Cancer Centre

Saolta University Cancer Network Galway University Hospitals

Administrative or Claims Data

Compilation: Department of Health Databases (CSO)

Registries

Database: National Cancer Registry

Database: Vital Statistics

Database: National Oncology Drugs Management System

Databases for Clinical Trials, Surveys and Biobanks

Survey: Irish Health Survey 2019

Survey: Healthy Ireland Survey

Clinical Practices Guidelines

Compilation: National Cancer Control Programme Guidelines

Sponsor, manager or home institution: National Cancer Control Programme and Health Service Executive (HSE).

Primary purpose: To prevent cancer, treat cancer, and improve the survival and quality of life for those who develop cancer through research-based strategies and actions.

Type of information: Recommendations care, monitoring, diagnosis, staging, quality of life, and treatment of many types of cancer.

Access to information: List of guidelines [1].

Latest Policymaking Initiatives

Compilation: Cancer Statistics Reports

Sponsor, manager or home institution: National Cancer Registry of Ireland.

Primary purpose: Provide reports about cancer data collected by the institute.

Type of information: Annual financial reports, strategic plans, cancer trends & projections, statistical reports, cancer atlases, research publications, all Ireland cancer statistics, infographics.

Data level: National level.

Access to information: Access information [2]. Quality of life research reports [3].

Report: EU Country Cancer Profile 2023

Sponsor, manager or home institution: OECD and European Commission.

Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.

Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.

Data level: National level.

Access to information: Access Information [4].

Report: National Cancer Strategy 2017-2026

Sponsor, manager or home institution: Department of Health.

Primary purpose: To implement a comprehensive strategy designed to achieve specific performance indicators, including reducing smoking rates, enhancing cancer awareness, improving early diagnosis and treatment, and ensuring the delivery of high-quality care for cancer patients in Ireland.

Type of information: Report objectives; Performance indicator; Target and target date; Recommendations; Report implementation.

Data level: National level.

Access to information: Access Information [5].

Cancer-related Patient Associations and Resources

Compilation: ESMO Patient Guides

Sponsor, manager or home institution: European Society for Medical Oncology

Primary purpose: To translate complex medical language into understandable information for patients.

Available guides: Bone Health in Cancer; Cancer Care During the COVID-19 Pandemic; Cancer Pain Management; Immunotherapy Side Effects; Personalized Cancer Medicine; Survivorship; AML; Biliary Tract Cancer; Bladder Cancer; Bone Sarcoma; Breast Cancer; Cervical Cancer; CML; Colorectal Cancer; Endometrial Cancer; Follicular Lymphoma; Glioma; Head and Neck Cancer; Hepatocellular Carcinoma; Multiple Myeloma; Non-Small-Cell Lung Cancer; Oesophageal Cancer; Ovarian Cancer; Pancreatic Cancer; Prostate Cancer; Soft Tissue Sarcoma; Stomach Cancer; Testicular Cancer.

Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.

Access to information: List of guides [6].

Quality of Life and Palliative Care Research

List of Articles: Quality of Life [7] and Palliative Care [8].