Database: Registry of Histo and Cytopathology (The Netherlands): Difference between revisions
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'''Sponsor, manager or home institution''': [[dataOwner::the Pathological Anatomical National Automated Archive (PALGA)]]. | '''Sponsor, manager or home institution''': [[dataOwner::the Pathological Anatomical National Automated Archive (PALGA)]]. | ||
'''Type of information''': Report identification (laboratory number, year, type of study, pa number, and date of receipt of study material at the laboratory); Patient data (pseudonymized patient identification, gender, and age); Conclusion (conclusion in pathology report: free text or automatically generated from protocolized reporting module); Diagnosis lines (one or more lines, consisting of diagnostic terms from the thesaurus, prepared according to fixed structure); Additional report data [kopacb code (diagnosis coding in cervical cytology), fields from standardized reporting module (e.G. Number of lymph nodes for colon carcinoma, grading in mammary carcinoma, etc.), clinical data, microscopy, macroscopy and epicrise]. | '''Type of information''': Report identification (laboratory number, year, type of study, pa number, and date of receipt of study material at the laboratory); Patient data (pseudonymized patient identification, gender, and age); Conclusion (conclusion in pathology report: free text or automatically generated from protocolized reporting module); Diagnosis lines (one or more lines, consisting of diagnostic terms from the thesaurus, prepared according to fixed structure); Additional report data [kopacb code (diagnosis coding in cervical cytology), fields from standardized reporting module (e.G. Number of lymph nodes for colon carcinoma, grading in mammary carcinoma, etc.), clinical data, microscopy, macroscopy and epicrise]. [[hasDataDictionary::Data dictionary - Registry of Histo and Cytopathology (The Netherlands)]] | ||
It is possible to integrate data from the Netherlands Cancer Registry (NKR) and this pathology registry. This adjustment makes the investigation much richer in information since it permits the researcher to have more information on each case. It is useful to obtain pathology history, information about sections or tissues, follow-up, and additional information about tumors from the NKR [https://www.palga.nl/en/gegevensaanvragen-engels/koppelingen-engels.html]. | It is possible to integrate data from the Netherlands Cancer Registry (NKR) and this pathology registry. This adjustment makes the investigation much richer in information since it permits the researcher to have more information on each case. It is useful to obtain pathology history, information about sections or tissues, follow-up, and additional information about tumors from the NKR [https://www.palga.nl/en/gegevensaanvragen-engels/koppelingen-engels.html]. | ||
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'''Cancer Areas of Interest:''' [[hasCancerType::C00-D48: All neoplasms]]. | '''Cancer Areas of Interest:''' [[hasCancerType::C00-D48: All neoplasms]]. | ||
'''Data access''': [[dataAvailability::partially publicly available]] [https://www.palgaopenbaredatabank.nl/menu/main/home], [https://www.palga.nl/en/public-database.html]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.palga.nl/ | '''Data access''': [[dataAvailability::partially publicly available]] [https://www.palgaopenbaredatabank.nl/menu/main/home], [https://www.palga.nl/en/public-database.html]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.palga.nl/voor-onderzoekers/aanvragen-palga-portal-onderzoekers]]]. | ||
'''Contact information''': Information [https://www.palga.nl/gegevensaanvragen/adviseurs.html]. | '''Contact information''': Information [https://www.palga.nl/gegevensaanvragen/adviseurs.html]. | ||
Revision as of 11:36, 25 April 2024
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Primary purpose: Records organized pathology data to facilitate scientific study that improve the quality of diagnosis, treatment, and patient safety.
Sponsor, manager or home institution: the Pathological Anatomical National Automated Archive (PALGA).
Type of information: Report identification (laboratory number, year, type of study, pa number, and date of receipt of study material at the laboratory); Patient data (pseudonymized patient identification, gender, and age); Conclusion (conclusion in pathology report: free text or automatically generated from protocolized reporting module); Diagnosis lines (one or more lines, consisting of diagnostic terms from the thesaurus, prepared according to fixed structure); Additional report data [kopacb code (diagnosis coding in cervical cytology), fields from standardized reporting module (e.G. Number of lymph nodes for colon carcinoma, grading in mammary carcinoma, etc.), clinical data, microscopy, macroscopy and epicrise]. Data dictionary - Registry of Histo and Cytopathology (The Netherlands)
It is possible to integrate data from the Netherlands Cancer Registry (NKR) and this pathology registry. This adjustment makes the investigation much richer in information since it permits the researcher to have more information on each case. It is useful to obtain pathology history, information about sections or tissues, follow-up, and additional information about tumors from the NKR [1].
Available type of information: number of diagnostics; diagnosis (includes neoplasms); sex; year; age; medical procedure (cytology or histology). To facilitate the search process for cancer terms, the main thesaurus codes used are listed in the document [2].
Source of information: Pathology reports are sent daily from laboratories around the Netherlands to the national database [3].
Data level: patient level.
Available data level: national level.
Number of Records: Since 2017, when there were more than 72 million pathology results stored, the number of registries has increased by approximately 2 million each year [4].
Date range: 1971 onwards. The registry has had nationwide information since 1991 [5].
Cancer Areas of Interest: C00-D48: All neoplasms.
Data access: partially publicly available [6], [7]. Instructions to request data for restricted content [8].
Contact information: Information [9].
