Database: National Cancer Registry (RON) (Portugal): Difference between revisions

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'''Cancer areas of interest:''' [[hasCancerType::C00-D48: All neoplasms]]. [https://ron.min-saude.pt/media/2214/ron-2019_new_v8f.pdf Click here to learn more].
'''Cancer areas of interest:''' [[hasCancerType::C00-D48: All neoplasms]]. [https://ron.min-saude.pt/media/2214/ron-2019_new_v8f.pdf Click here to learn more].


'''Data access''': [[dataAvailability::partially publicly available]]. Reports with regional data can be accessed through the RON publications section on the National Cancer Registry website, [https://ron.min-saude.pt/pt/biblioteca/publicacoes-ron/ click here to access]. Data can be downloaded in the format [[hasDownloadableData::PDF]]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf click here to access]]]. [[hasGrantRequirement::Data requires a grant proposal to be accessed]].
'''Data access''': [[dataAvailability::partially publicly available]]. Reports with regional data can be accessed through the RON publications section on the National Cancer Registry website, [https://ron.min-saude.pt/pt/biblioteca/publicacoes-ron/ click here to access]. Data can be downloaded in the [[hasDownloadableData::PDF]] format. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf click here to access]]]. [[hasGrantRequirement::Data requires a grant proposal to be accessed]].


'''Contact information''': [https://www.dgs.pt/site/contactos.aspx Click here to access].
'''Contact information''': [https://www.dgs.pt/site/contactos.aspx Click here to access].

Revision as of 15:37, 21 August 2024

Go back to Portugal page

Type of database: registry.

Primary purpose: Centralize and uniform national cancer information that was previously stored regionally [1].

Sponsor, manager or home institution: Direção Geral da Saúde (DGS).

Type of information: longitudinal. types of visits and number of visits to health care stablishments, periodicity of physician consultation, diagnosis, primary tumor localization, tumor staging, risk of cancer, tumor histology, medical procedures, causes of death, year, sex, place of residence.

Data Dictionary: National Cancer Registry (RON) (Portugal).

Click here to learn more.

Available type of information: number of deaths and cancer incidence by year, sex, age, and region. Click here to learn more.

Source of information: Data from public and private health institutions in Portugal.

Data level: patient level.

Available data level: regional level.

Number of records: unknown.

Date range: 1989 onwards.

Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.

Data access: partially publicly available. Reports with regional data can be accessed through the RON publications section on the National Cancer Registry website, click here to access. Data can be downloaded in the PDF format. Instructions to request data for restricted content click here to access. Data requires a grant proposal to be accessed.

Contact information: Click here to access.