Database: Andmebaas Cancer Registry (Estonia)

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Type of database: registry.

Primary purpose: The main task of the cancer registry is to ensure the most complete and reliable registration of cancer cases.

Sponsor, manager or home institution: The Health Statistics and Health Research Database; The National Institute for Health Development.

Type of information: longitudinal. diagnosis; primary tumour localization; tumour staging; medical procedures; place of residence; sex; age; causes of deaths.

Data Dictionary: Andmebaas Cancer Registry.

Click here to learn more.

Available type of information: diagnosis, sex, age, cancer incidence, place of residence. Click here to learn more.

Source of Information: Data is updated from the Estonian population register (personal data, including time of leaving the country) from the register of causes of death (death data, including the cause of death). Reporting cancer cases is mandatory for all doctors working in Estonia who diagnose or treat cancer. Forensic experts also submit data to the register.

Data level: patient level.

Available data level: regional level.

Number of Records: unknown.

Date range: 1968 onwards.

Cancer areas of interest: C00-C97: All cancer types. Click here to learn more.

Data access: partially publicly available. Click here to access, go to "Morbidity" > "Malignant neoplasms". Data can be downloaded in the formats XLSX; CSV; PX; XML; JPG and JSON. Instructions to request data for restricted content click here to access.

Contact information: Click here to access.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::registry dataOwner::The Health Statistics and Health Research Database dataOwner::The National Institute for Health Development databaseStructure::longitudinal hasVariable::diagnosis hasVariable::primary tumour localization hasVariable::tumour staging hasVariable::medical procedures hasVariable::place of residence hasVariable::sex hasVariable::age hasVariable::causes of deaths hasDataDictionary::Data Dictionary: Andmebaas Cancer Registry availableVariable::diagnosis availableVariable::sex availableVariable::age availableVariable::cancer incidence availableVariable::place of residence dataLevel::patient level availableDataLevel::regional level numberRecords::unknown dataStart::1968 dataEnd::onwards hasCancerType::C00-C97: All cancer types dataAvailability::partially publicly available hasDownloadableData::XLSX hasDownloadableData::CSV hasDownloadableData::PX hasDownloadableData::XML hasDownloadableData::JPG hasDownloadableData::JSON hasDataAccessInstructions::[https://www.tai.ee/et/statistika-ja-registrid/vahiregister click here to access