Database: Netherlands Cancer Registry (NKR) (The Netherlands)

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Type of database: registry.

Primary purpose: Record and monitor cancer statistics across the Netherlands to improve quality of care and ability to treat disease.

Sponsor, manager or home institution: Comprehensive Cancer Center of the Netherlands (IKNL).

Type of information: longitudinal. age, sex, place of residence, diagnosis, primary tumour localization, tumour histology, tumour staging, comorbidities, medical procedures, screening, hospital location, number of patients, number of medical staff, length of stay, number of visits, type of medical activity, number of deaths, causes of death, medication use, year, risk factors.

Data dictionary - Netherlands Cancer Registry (NKR).

Click here to learn more.

Available type of information: NKR Figures includes cancer incidence; diagnosis; sex; age; region; year; cancer prevalence; cancer mortality; cancer survival; relative survival; and tumour staging. Click here to learn more.

Also, there is a Cancer Atlas that informs of the incidence of cancer in each region of the Netherlands in the period of 2011–2020 and compares it to the Dutch average. This information can be selected by type of cancer, region, and gender. Click here to learn more.

Source of information: Hospitals' reports. Click here to learn more.

Data level: patient level.

Available data level: regional level and national level.

Number of Records: Contains information about all new cases of malignant neoplasms and some benign neoplasms (tumours of the central nervous system, borderline tumours of the ovary, and AL amyloidosis) in the Netherlands.

Date range: varies according to the diagnosis and the type of information. Click here to learn more.

Cancer Areas of Interest: C00-D48: All neoplasms. Click here to learn more.

Data access: partially publicly available. Publicly available data are the NKR Figures: Click here to access and the Cancer atlas: Click here to access. Data can be downloaded in the following format: XLSX. Data has access costs. Instructions to request data for restricted content Click here to learn more.

Contact information: Click here to learn more.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::registry dataOwner::Comprehensive Cancer Center of the Netherlands (IKNL) databaseStructure::longitudinal hasVariable::age hasVariable::sex hasVariable::place of residence hasVariable::diagnosis hasVariable::primary tumour localization hasVariable::tumour histology hasVariable::tumour staging hasVariable::comorbidities hasVariable::medical procedures hasVariable::screening hasVariable::hospital location hasVariable::number of patients hasVariable::number of medical staff hasVariable::length of stay hasVariable::number of visits hasVariable::type of medical activity hasVariable::number of deaths hasVariable::causes of death hasVariable::medication use hasVariable::year hasVariable::risk factors hasDataDictionary::Data dictionary - Netherlands Cancer Registry (NKR) availableVariable::cancer incidence availableVariable::diagnosis availableVariable::sex availableVariable::age availableVariable::region availableVariable::year availableVariable::cancer prevalence availableVariable::number of deaths|cancer mortality availableVariable::cancer survival availableVariable::tumour staging dataLevel::patient level availableDataLevel::regional level availableDataLevel::national level dataEnd::varies hasCancerType::C00-D48: All neoplasms dataAvailability::partially publicly available hasDownloadableData::XLSX hasDataAccessCosts::Data has access costs hasDataAccessInstructions::[https://iknl.nl/nkr/cijfers-op-maat/gegevensaanvraag Click here to learn more isDatabase hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown