Database: Socialstyrelsen Cancer Registry (Sweden)

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Type of database: registry

Primary purpose: To map the occurrence and change of cancer diseases over time.

Sponsor, manager or home institution: Socialstyrelsen.

Type of information: cross-sectional. age, year, diagnosis, primary tumour localization, tumour histology, tumour staging, hospital location, number of deaths, causes of death, region, sex, place of residence.

Data Dictionary: Socialstyrelsen Cancer Registry.

Click here to learn more.

Available type of information: number of diagnostics; Cases per 100,000; cancer incidence; age; sex; diagnosis, and year.

Source of Information: The data is sent from hospitals to six regional cancer centers for coding and registration. Once the material has been verified, it is then transmitted to the National Board of Health and Welfare to become part of the cancer registry. The registry is updated annually.

Data level: patient level.

Available data level: regional level and national level.

Number of records: 60,000 cases registered every year. Click here to learn more.

Date range: 1970 onwards.

Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.

Data access: partially publicly available: click here to access. Instructions to request data for restricted content: click here to learn more. Data can be downloaded in the formats CSV, XLSX. Data has access costs.

Contact information: Click here to learn more.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::registry dataOwner::Socialstyrelsen databaseStructure::cross-sectional hasVariable::age hasVariable::year hasVariable::diagnosis hasVariable::primary tumour localization hasVariable::tumour histology hasVariable::tumour staging hasVariable::hospital location hasVariable::number of deaths hasVariable::causes of death hasVariable::region hasVariable::sex hasVariable::place of residence hasDataDictionary::Data Dictionary: Socialstyrelsen Cancer Registry availableVariable::cancer incidence availableVariable::age availableVariable::sex availableVariable::diagnosis availableVariable::year dataLevel::patient level availableDataLevel::regional level availableDataLevel::national level dataStart::1970 dataEnd::onwards hasCancerType::C00-D48: All neoplasms dataAvailability::partially publicly available hasDataAccessInstructions::[https://bestalladata.socialstyrelsen.se/ click here to learn more hasDownloadableData::CSV hasDownloadableData::XLSX hasDataAccessCosts::Data has access costs isDatabase hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown