Portugal: Difference between revisions

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'''Data level''': Regional level (open access) and Patient level (restricted access).
'''Data level''': Regional level (open access) and Patient level (restricted access).


'''Number of Records:'''  
'''Number of Records:''' Unknown.


'''Date range''': Regional level (2002 onwards) and Patient level (1998 onwards).
'''Date range''': Regional level (2002 onwards) and Patient level (1998 onwards).


'''Cancer Areas of Interest:'''  
'''Cancer Areas of Interest:''' To be added.


'''Data access''': Regional level data is openly available [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008461&selTab=tab0 here]. To ask for patient level data, follow the instructions presented in [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_serv_clientes&INST=161301979&ine_smenu.boui=161302718&ine_smenu.selected=161302852 this] webpage.
'''Data access''': Regional level data is openly available [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008461&selTab=tab0 here]. To ask for patient level data, follow the instructions presented in [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_serv_clientes&INST=161301979&ine_smenu.boui=161302718&ine_smenu.selected=161302852 this] webpage.


'''Information/contact for data request''': [ Contact information].
'''Information/contact for data request''': [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_cont_inst&ine_smenu.boui=13711615&INST=56501 Contact information].
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=== [ Database: ] ===
=== [ Database: ] ===

Revision as of 09:55, 28 February 2023

Cancer Centers

Healthcare System

Portugal provides universal healthcare to all its residents, including the unemployed and illegal immigrants. There are also health insurance schemes that provide coverage for specific sectors, both public and private. Citizens can also opt for private health insurance schemes. The system providing healthcare in Portugal is called Serviço Nacional de Saúde (SNS), managed by the Ministry of Health, and is mainly funded through general taxation, but a third of its funding comes from the private sector such as out-of-pocket payments via co-funding or direct payment by the patient.

Administrative or Claims Data

Registries

Database: Mortality by malignant neoplasms

[1] [2]

Primary purpose: Provide information regarding the national mortality and its social and demographic distribution.

Sponsor, manager or home institution: Instituto Nacional de Estatística (INE).

Type of information: Number of deaths filtered by data reference period, place of residence, sex, age group, and death cause (malignant neoplasms).

The list of variables included in the patient level data is longer and can be checked in this website.

Source of information: Data collection through the notary offices and registered in the Integrated System for Civil Registration and Identification (SIRIC).

Data level: Regional level (open access) and Patient level (restricted access).

Number of Records: Unknown.

Date range: Regional level (2002 onwards) and Patient level (1998 onwards).

Cancer Areas of Interest: To be added.

Data access: Regional level data is openly available here. To ask for patient level data, follow the instructions presented in this webpage.

Information/contact for data request: Contact information.

Databases for Clinical Trials, Surveys and Biobanks

Electronic Health Records

Clinical Practices Guidelines

Latest Policymaking Initiatives

Cancer-related Patient Associations and Resources