The Netherlands

Registries

Database: Netherlands Cancer Registry (NKR)

[1] [2]

Primary purpose: Registry and monitor cancer statistics around Netherlands.

Sponsor, manager or home institution: Comprehensive Cancer Center of the Netherlands (IKNL).

Available type of information:

• Incidence: Count, crude rate per 100,000 persons per year, European Standardized Rate (ESR) per 100,000 persons per year, World Standardized Rate (WSR), Revised European Standardized Rate (RESR) by type of cancer, gender, age, region, and year.
• Prevalence: 5 year, 10 year, and 20 year prevalence by type of cancer, gender, age, region, and year.
• Mortality: Count, crude rate per 100,000 persons per year, European Standardized Rate (ESR) per 100,000 persons per year, World Standardized Rate (WSR), Revised European Standardized Rate (RESR) by type of cancer, gender, age, and year.
• Survival: relative survival by type of cancer, Period from diagnosis (1 year and 10 years), age at time of diagnosis, stage at time of diagnosis (TNM), and gender.

Source of information: Hospitals' reports.

Data level: Regional level (open access) and Patient level (restricted access).

Number of Records: Contains information about all new cases of malignant neoplasms and some benign neoplasms (tumors of the central nervous system, borderline tumors of the ovary, and AL amyloidosis) in Netherlands.

Date range: Varies according to the diagnosis. Survival (from 1961 to 1988 data is not nationwide, 1989 onwards data is nationwide).

Cancer Areas of Interest: Regional data includes all invasive cancers except basal cell carcinoma of the skin.

Data access: Regional level data is available here. Access to patient level data can be requested by following the steps described here.

Information/contact for data request: Contact information.