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Type of database: registry.
Sponsor, manager or home institution: Socialstyrelsen.
Primary purpose: To describe the causes of death and track mortality trends in Sweden.
Type of information: cross-sectional. age, sex, marital status, place of residence, alcohol consumption, self-reported prevalence of chronic diseases, diagnosis, medical procedures, check-up examinations, number of deaths, causes of death, year.
Data Dictionary: Socialstyrelsen Cause of Death Registry.
Click here to learn more.
Available type of information: number of deaths; Deaths rates and deaths by 100,000 people; diagnosis; age; sex and region.
Source of information: The death certificates are sent by doctors to the Tax Agency or the Police, and then are sent to the Socialstyrelsen.
Data level: patient level.
Available data level: regional level and national level.
Number of records: Around 90,000 people per year.
Date range: 1969 onwards.
Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.
Data access: partially publicly available. Data from 1969 to 1996 information: click here to access; Data from 1997 onwards information: click here to access. Instructions to request data for restricted content: click here to learn more. Data can be downloaded in the formats CSV, XLSX. Data has access costs.
Contact information: Click here to learn more.
Mouth
Throat
Oropharynx
Nasopharynx
Hypopharynx
Larynx
Salivary glands
Lips
Tonsils
base of tongue
Voice box
Esophagus
Stomach
Small intestine
Large intestine
Colon
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Lung
Trachea
Bronchi
Pleura
Mediastinum
Bone
Cartilage
Osteosarcoma
Ewings sarcoma
Skin
Melanoma
Scalp
Lips
Hands
Feet
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Lobular
Breast
Nipple
Areola
Ductal
Vulva
Vagina
Cervix
Uterus
Ovary
Fallopian tubes
Endometrium
Prostate
Testicles
Penis
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Peritoneum
Pericardium
Retroperitoneum
Mesothelium
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::registry
dataOwner::Socialstyrelsen
databaseStructure::cross-sectional
hasVariable::age
hasVariable::sex
hasVariable::marital status
hasVariable::place of residence
hasVariable::alcohol consumption
hasVariable::self-reported prevalence of chronic diseases
hasVariable::diagnosis
hasVariable::medical procedures
hasVariable::check-up examinations
hasVariable::number of deaths
hasVariable::causes of death
hasVariable::year
hasDataDictionary::Data Dictionary: Socialstyrelsen Cause of Death Registry
availableVariable::number of deaths
availableVariable::diagnosis
availableVariable::age
availableVariable::sex
availableVariable::region
dataLevel::patient level
availableDataLevel::regional level
availableDataLevel::national level
dataStart::1969
dataEnd::onwards
hasCancerType::C00-D48: All neoplasms
dataAvailability::partially publicly available
hasDataAccessInstructions::[https://bestalladata.socialstyrelsen.se/ click here to learn more
hasDownloadableData::CSV
hasDownloadableData::XLSX
hasDataAccessCosts::Data has access costs
isDatabase
