Lithuania
Cancer Centers
Administrative or Claims Data
Database: Cancer Prevention Statistics
Primary purpose: Provide reliable information about health in Lithuania.
Sponsor, manager or home institution: State Data Agency of Lithuania.
Available type of information: Number of breast cancer and cervical cancer screenings; Year; Proportion of women who had mammography test; Period of time since examination; Age; Income; Employment status; Educational level; Region of residence; Proportion of women who had a cervical smear test; Cigarette smoking habits of the population; Frequency of smoking, Gender; Population smoking habits of tobacco products; Number of cigarettes smoked daily by the smoking population; Number of cigarettes; Proportion of the population who consulted a specialist during the last 12 months; Specialization (includes oncologist).
Source of information: Health Interview Survey, Population Register of State Enterprise Centre of Registers and the State Social Insurance Fund Board under the Ministry of Social Security and Labour (SODRA).
Data level: Patient level.
Available data level: Regional level.
Number of Records: Comprises all permanent residents of the Republic of Lithuania, aged 15 years or older, living in private households. In 2019, 70.3% of this population group answered the survey.
Date range: 2005 onwards (cancer screenings, population smoking habits) and 2014 onwards (mammography and cervical smear tests, cigarette smoking habit, and the number of cigarettes smoked daily).
Cancer Areas of Interest: Breast cancer, cervical cancer, and respiratory tract cancer.
Open data access: Partially publicly available [2]. Instructions to request data for restricted content [3].
Information/contact for data request: Contact information [4].
Database: Cancer Procedures
Primary purpose: Register and surveil the number of performed procedures.
Sponsor, manager or home institution: Institute of Hygiene (HI).
Type of information: Number of surgical operations and procedures performed in hospitals; Crude number and number per 100 000 inhabitants by type of surgical procedure - regarding cancer, it includes prostatectomy and mastectomy; Type of patient; Year; Hospital day cases; Type of diagnose; Age; Gender; Hospital days for inpatient cases (excluding inpatient nursing and rehabilitation cases in sanatoriums); Number of discharges (excluding inpatient nursing and rehabilitation cases in sanatoriums); Inpatient average length of stay (excluding inpatient nursing and rehabilitation cases in sanatoriums).
Source of information: Compulsory Health Insurance Fund Information System (CHIF IS).
Data level: Patient level.
Available data level: National level.
Number of Records: Contains information regarding the whole territory of Lithuania.
Date range: 2010 onwards (number of surgical operations) and 2001 onwards (all the other indicators).
Cancer Areas of Interest: Number of surgical operations comprises breast cancer and prostate cancer. The other indicators do not specify the types of cancer comprised.
Open Data access: Partially publicly available [6]. Instructions to request data for restricted content [7].
Information/contact for data request: Contact information [8].
Database: Disability caused by cancer
Primary purpose: Provide statistical information about people whose work capacity or life quality has been affected by illness.
Sponsor, manager or home institution: State Data Agency of Lithuania.
Type of information: Number of persons of working age with a reduced level of capacity for work established for the first time; Type of disease; Year, Gender, Capacity level; Age; Region; Number of children recognised as disabled for the first time.
Source of information: Data from the Disability and Working Capacity Assessment Office at the Ministry of Social Security and Labour.
Data level: Patient level.
Available data level: Regional level.
Number of Records: Unknown.
Date range: 2001 onwards.
Cancer Areas of Interest: Unknown.
Data access: Partially publicly available [10]. Instructions to request data for restricted content [11].
Information/contact for data request: Contact information [12].
Registries
Database: Cancer Registry
Primary purpose: Produce a complete registration of cancer cases and cancer mortality across Lithuania.
Sponsor, manager or home institution: National Cancer Institute.
Type of information: Cancer incidence; Mortality; Prevalence; Survival; Patient name; Date of birth; Personal identification number; Place of residence; Primary tumor information; Date of diagnosis, ICD-10 code of the primary site and topography; Stage; Pathological TNM; Clinical TNM; ICD-O-3 code of morphology; Behavior; Most valid basis of diagnosis; Date source and name of the doctor who has diagnosed cancer.
Available type of information: Incidence rate (per 100,000 inhabitants); Gender; Age; Tumor location; Standardized incidence rate for the European population and for the world population (per 100,000 inhabitants); Survival rate; Mortality rate; Number of tumor cases; The TNM stage of the tumor; Number of survivors (after 1, 5, and 10 years from diagnosis) and relative survival (in %, after 1 and 5 years from diagnosis); Time since diagnosis.
Source of information: The register is continuously updated with reports about new cancer cases sent by primary, secondary, and tertiary healthcare institutions from across the country.
Data level: Patient level.
Available data level: National level.
Number of Records: Contains information regarding the whole territory of Lithuania. Contains more than 500,000 reports and, each year, more than 20,000 new cancer cases are added to the registry.
Date range: Regarding patient level data, there is data about diagnosed cancer cases from 1978 onwards and data about cancer mortality from 1990 onwards. National level data is available from 2006 onwards.
Cancer Areas of Interest: C00-C96, melanomas (D03), breast (D05), cervix (D06), bladder (D09.0); tumors of obscure and unknown course: ovaries (D39.1), nervous system (D42-43), lymphatic and hematopoietic tissues (D45-47); benign tumors of the nervous system (D32-33). (ICD-10-AM).
Data access: Partially publicly available [15]. Instructions to request data for restricted content [16].
Information/contact for data request: Contact information [17].
Compilation: ESMO Patient Guides
Sponsor, manager or home institution: European Society for Medical Oncology.
Primary purpose: To translate complex medical language into understandable information for patients.
Available guides: Surviving Cancer; AML; Follicular lymphoma; CML; Glioblastoma; Bone Sarcoma; Soft Tissue Sarcomas; Colorectal Cancer; Breast Cancer; Squamous Cell Carcinoma of the Head and Neck Region; Cancer of the Uterus (Endometrium).
Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
Access to information: List of guides [18].
