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Type of Database: registry.
Primary purpose: Records organized pathology data to facilitate scientific study that improves the quality of diagnosis, treatment, and patient safety. Click here to learn more.
Sponsor, manager or home institution: the Pathological Anatomical National Automated Archive (PALGA).
Type of information: longitudinal. age, sex, diagnosis, primary tumour localization, tumour histology, tumour staging, comorbidities, medical procedures, screening, year.
Data dictionary - Registry of Histo and Cytopathology (The Netherlands).
Click here to learn more.
It is possible to integrate data from this Registry of Histo and Cytopathology with other databases. This linkage enriches the investigations since it provides much more information regarding each case. In the following website, it is possible to see the list of databases that have an easier proccess of linkage with the Histo and Cytopathology database along with the instructions to this process. Click here to learn more.
Available type of information: diagnosis (includes neoplasms); sex; year; age; tumour histology. Click here to learn more.
Source of information: Pathology reports are sent daily from laboratories around the Netherlands to the national database. Click here to learn more.
Data level: patient level.
Available data level: national level.
Number of Records: Since 2017, when there were more than 72 million pathology results stored, the number of registries has increased by approximately 2 million each year. Click here to learn more.
Date range: 1971 onwards. The registry has had nationwide information since 1991. Click here to learn more.
Cancer Areas of Interest: C00-D48: All neoplasms. Click here to learn more.
Data access: partially publicly available. Public database: Click here to access. To facilitate the search process for cancer terms, the main thesaurus codes used are listed in this page: Click here to learn more. Data has access costs. Click here to learn more. Instructions to request data for restricted content Click here to learn more.
Contact information: Click here to learn more.
Mouth
Throat
Oropharynx
Nasopharynx
Hypopharynx
Larynx
Salivary glands
Lips
Tonsils
base of tongue
Voice box
Esophagus
Stomach
Small intestine
Large intestine
Colon
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Lung
Trachea
Bronchi
Pleura
Mediastinum
Bone
Cartilage
Osteosarcoma
Ewings sarcoma
Skin
Melanoma
Scalp
Lips
Hands
Feet
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Lobular
Breast
Nipple
Areola
Ductal
Vulva
Vagina
Cervix
Uterus
Ovary
Fallopian tubes
Endometrium
Prostate
Testicles
Penis
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Peritoneum
Pericardium
Retroperitoneum
Mesothelium
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::registry
dataOwner::the Pathological Anatomical National Automated Archive (PALGA)
databaseStructure::longitudinal
hasVariable::age
hasVariable::sex
hasVariable::diagnosis
hasVariable::primary tumour localization
hasVariable::tumour histology
hasVariable::tumour staging
hasVariable::comorbidities
hasVariable::medical procedures
hasVariable::screening
hasVariable::year
hasDataDictionary::Data dictionary - Registry of Histo and Cytopathology (The Netherlands)
availableVariable::diagnosis
availableVariable::sex
availableVariable::year
availableVariable::age
availableVariable::tumour histology
dataLevel::patient level
availableDataLevel::national level
dataStart::1971
dataEnd::onwards
dataAvailability::partially publicly available
hasDataAccessCosts::Data has access costs
hasDataAccessInstructions::[https://www.palga.nl/voor-onderzoekers/aanvragen-palga-portal-onderzoekers Click here to learn more
isDatabase
hasCancerType::C00-D48: All neoplasms
hasCancerType::C00-C97: All cancer types
hasCancerType::C00-C14: Mouth/throat cancers
hasCancerType::C15-C26: Digestive system cancers
hasCancerType::C30-C39: Lung/chest cancers
hasCancerType::C40-C41: Bone cancers
hasCancerType::C43-C44: Skin cancers/melanoma
hasCancerType::C45-C49: Soft tissue cancer
hasCancerType::C50: Breast cancer
hasCancerType::C51-C58: Female genitalia cancers
hasCancerType::C60-C63: Male genitalia cancer
hasCancerType::C64-C68: Urinary system cancers
hasCancerType::C69-C72: Eye and brain cancer
hasCancerType::C73-C75: Thyroid and other gland cancers
hasCancerType::C76-C80: Cancers of unknown or unspecified areas
hasCancerType::C81-C96: Cancers of the blood and immune system
hasCancerType::C97-C97: Cancers in multiple locations from the start
hasCancerType::D00-D09: Early-stage cancers not yet spread
hasCancerType::D10-D36: Benign tumour
hasCancerType::D37-D48: Growths of uncertain nature
hasCancerType::unknown
