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Type of database: registry.
Primary purpose: Record and monitor cancer statistics across the Netherlands to improve quality of care and ability to treat disease.
Sponsor, manager or home institution: Comprehensive Cancer Center of the Netherlands (IKNL).
Type of information: longitudinal. age, sex, place of residence, diagnosis, primary tumour localization, tumour histology, tumour staging, comorbidities, medical procedures, screening, hospital location, number of patients, number of medical staff, length of stay, number of visits, type of medical activity, number of deaths, causes of death, medication use, year, risk factors.
Data dictionary - Netherlands Cancer Registry (NKR).
Click here to learn more.
Available type of information: NKR Figures includes cancer incidence; diagnosis; sex; age; region; year; cancer prevalence; cancer mortality; cancer survival; relative survival; and tumour staging. Click here to learn more.
Also, there is a Cancer Atlas that informs of the incidence of cancer in each region of the Netherlands in the period of 2011–2020 and compares it to the Dutch average. This information can be selected by type of cancer, region, and gender. Click here to learn more.
Source of information: Hospitals' reports. Click here to learn more.
Data level: patient level.
Available data level: regional level and national level.
Number of Records: Contains information about all new cases of malignant neoplasms and some benign neoplasms (tumours of the central nervous system, borderline tumours of the ovary, and AL amyloidosis) in the Netherlands.
Date range: varies according to the diagnosis and the type of information. Click here to learn more.
Cancer Areas of Interest: C00-D48: All neoplasms. Click here to learn more.
Data access: partially publicly available. Publicly available data are the NKR Figures: Click here to access and the Cancer atlas: Click here to access. Data can be downloaded in the following format: XLSX. Data has access costs. Instructions to request data for restricted content Click here to learn more.
Contact information: Click here to learn more.
Mouth
Throat
Oropharynx
Nasopharynx
Hypopharynx
Larynx
Salivary glands
Lips
Tonsils
base of tongue
Voice box
Esophagus
Stomach
Small intestine
Large intestine
Colon
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Lung
Trachea
Bronchi
Pleura
Mediastinum
Bone
Cartilage
Osteosarcoma
Ewings sarcoma
Skin
Melanoma
Scalp
Lips
Hands
Feet
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Lobular
Breast
Nipple
Areola
Ductal
Vulva
Vagina
Cervix
Uterus
Ovary
Fallopian tubes
Endometrium
Prostate
Testicles
Penis
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Peritoneum
Pericardium
Retroperitoneum
Mesothelium
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::registry
dataOwner::Comprehensive Cancer Center of the Netherlands (IKNL)
databaseStructure::longitudinal
hasVariable::age
hasVariable::sex
hasVariable::place of residence
hasVariable::diagnosis
hasVariable::primary tumour localization
hasVariable::tumour histology
hasVariable::tumour staging
hasVariable::comorbidities
hasVariable::medical procedures
hasVariable::screening
hasVariable::hospital location
hasVariable::number of patients
hasVariable::number of medical staff
hasVariable::length of stay
hasVariable::number of visits
hasVariable::type of medical activity
hasVariable::number of deaths
hasVariable::causes of death
hasVariable::medication use
hasVariable::year
hasVariable::risk factors
hasDataDictionary::Data dictionary - Netherlands Cancer Registry (NKR)
availableVariable::cancer incidence
availableVariable::diagnosis
availableVariable::sex
availableVariable::age
availableVariable::region
availableVariable::year
availableVariable::cancer prevalence
availableVariable::number of deaths|cancer mortality
availableVariable::cancer survival
availableVariable::tumour staging
dataLevel::patient level
availableDataLevel::regional level
availableDataLevel::national level
dataEnd::varies
dataAvailability::partially publicly available
hasDownloadableData::XLSX
hasDataAccessCosts::Data has access costs
hasDataAccessInstructions::[https://iknl.nl/nkr/cijfers-op-maat/gegevensaanvraag Click here to learn more
isDatabase
hasCancerType::C00-D48: All neoplasms
hasCancerType::C00-C97: All cancer types
hasCancerType::C00-C14: Mouth/throat cancers
hasCancerType::C15-C26: Digestive system cancers
hasCancerType::C30-C39: Lung/chest cancers
hasCancerType::C40-C41: Bone cancers
hasCancerType::C43-C44: Skin cancers/melanoma
hasCancerType::C45-C49: Soft tissue cancer
hasCancerType::C50: Breast cancer
hasCancerType::C51-C58: Female genitalia cancers
hasCancerType::C60-C63: Male genitalia cancer
hasCancerType::C64-C68: Urinary system cancers
hasCancerType::C69-C72: Eye and brain cancer
hasCancerType::C73-C75: Thyroid and other gland cancers
hasCancerType::C76-C80: Cancers of unknown or unspecified areas
hasCancerType::C81-C96: Cancers of the blood and immune system
hasCancerType::C97-C97: Cancers in multiple locations from the start
hasCancerType::D00-D09: Early-stage cancers not yet spread
hasCancerType::D10-D36: Benign tumour
hasCancerType::D37-D48: Growths of uncertain nature
hasCancerType::unknown
Head
Neck
Oral
Oral cavity
Pharynx
Pharyngeal
Tongue
Lingual
Nasal cavity
Nasal
Sinonasal
Sinus
Sinuses
Paranasal sinuses
Ear
Mandible
Maxilla
Jaw
Esophageal
Gastric
Intestinal
Bowel
Colorectal
Appendix
Appendiceal
Duodenum
Jejunum
Ileum
Anal
Perianal
Hepatic
Biliary
Hepatobiliary
Pulmonary
Thorax
Thoracic
Chest
Mediastinal
Pleural
Cutaneous
Dermal
Epidermal
Subcutaneous
Skeletal
Osseous
Chondral
Extremity
Axilla
Axillary
Mammary
Cervical
Uterine
Endometrial
Ovarian
Tubal
Fallopian
Vaginal
Vulvar
Adnexal
Renal
Urothelial
Ureteral
Urethral
Prostatic
Testicular
Penile
Ocular
Orbital
Retinal
Optic nerve
Meninges
Meningeal
Cerebral
Cerebellar
Brainstem
Lymphatic
Lymphoid
Lymphoma
Hematologic
Hematopoietic
Myeloma
Plasma cell
Diaphragm
Peripheral nerve
Heart
Cardiac
Endocrine
