European Union

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Administrative or Claims Data

Database: European Network of Centres for Pharmacoepidemiology and Pharmacovigilance

Registries

Databases for Clinical Trials, Surveys and Biobanks

Electronic Health Records

Clinical Practices Guidelines

Latest Policymaking Initiatives

Data Tool: European Core Health Indicators (ECHI)

Report: Commercial determinants of cancer control policy (Eurohealth)

Report: Europe's Beating Cancer Plan

Report: Cancer Incidence in Five Continents

Report: Childhood cancer inequalities in the WHO European Region

Report: Cancer Care: Assuring Quality to Improve Survival

Sponsor, manager or home institution: OECD.

Primary purpose: To survey policy trends in cancer care, analyze survival rates, and provide recommendations for governments to improve cancer care quality and reduce the burden of cancer in their countries.

Type of information: Cancer care systems; Resources for cancer care; Cancer care practices; Governance of cancer care systems; Exploratory quantitative analysis; Policy recommendations; A list of experts on cancer care systems.

Data level: European level.

Access to information: Access Information [1].

Report: Cancer screening in the European Union

Report: Reducing Social Inequalities in Cancer: Evidence and Priorities for Research

Fact sheet: Alcohol and cancer in the WHO European Region: an appeal for better prevention

Guide: Screening programmes: a short guide. Increase effectiveness, maximize benefits and minimize harm

Initiatives: The European Commission Initiatives on Breast (ECIBC) and Colorectal Cancer (ECICC)

Cancer-related Patient Associations and Resources

Patient Association: European Cancer Patient Coalition

Primary purpose: To empower European cancer organizations and patients, foster cooperation, influence cancer-related policies, remain vigilant on emerging topics, and advocate for patient-centricity in cancer research to ensure equality in access to cancer treatment and care.

Contact information: Contact information [2].

Patient Association: Digestive Cancers Europe

Primary purpose: To improve early diagnosis, decrease mortality, and enhance overall survival and quality of life for patients with digestive cancers through a collaborative European network.

Contact information: Information [3].

Patient Association: EUROPA UOMO - The European Prostate Cancer Coalition

Primary purpose: To advocate for prostate cancer patients across Europe, striving to enhance diagnosis, treatment, support, quality of life, research, and policy influence while fostering collaboration with healthcare professionals and member organizations.

Contact information: Information [4].

Patient Association: EUROPA DONNA - European Breast Cancer Coalition

Primary purpose: To advocate for women in Europe by raising awareness of breast cancer, promoting education, advocating for screening, treatment, and research funding to improve breast cancer outcomes.

Contact information: Information [5].

Patient Association: LuCE - Lung Cancer Europe

Primary purpose: To be the voice of Europeans impacted by lung cancer, collaborating with members and stakeholders to destigmatize the disease, ensure access to optimal care, and empower lung cancer patient advocacy across Europe.

Contact information: Information [6].