Denmark
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Cancer Centers
Healthcare System
Administrative or Claims Data
Database: The Danish National Patient Registry (DNPR)
Database: The National Health Insurance Service Register (SSR)
Database: The Medicines Statistics Register (NPR)
Registries
Database: The Danish Cancer Register
Databases Compilation: RKKP's Clinical Quality Databases
Database: Hospital Utilization Information
Database: The Cause of Death Register (DAR)
Database: Cancer Survivorship
Clinical Practices Guidelines
Danish Cancer Society Guidelines
Sponsor, manager or home institution: Kræftens Bekæmpelse.
Primary purpose: To provide various tools and guidelines for working with cancer rehabilitation and upgrading palliative care for cancer patients in practice.
Type of information: Information on breast cancer rehabilitation, rehabilitation for head and neck cancer, a palliation app, clinical guidance for general practice, recommendations for palliative care, and a palliative care guide with treatments, social support, checklists, etc.
Access to information: List of palliation guidelines [1] and rehabilitation guidelines [2].
Latest Policymaking Initiatives
Reports: RKKP Screenings
Compilation: Kræftens Bekæmpelse Reports and Publications
Sponsor, manager or home institution: Danish Cancer Society.
Primary purpose: To offer knowledge that can improve the overall quality of the cancer journey, from early interventions to supporting the growing number of Danish individuals living with and beyond cancer, ensuring a good quality of life for them.
Type of information: Include information about improving patient care, preventive measures, cancer risks, prevention, cancer during corona pandemic, cancer in numbers, screenings and diagnostics, treatments and palliative care.
Data level: National level.
Access to information: Access Information [3].
Report: EU Country Cancer Profile 2023
Sponsor, manager or home institution: OECD and European Commission.
Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
Data level: National level.
Access to information: Access Information [4].
Reports: Annual reports on new cancer cases
Sponsor, manager or home institution: The Danish Health Data Agency.
Primary purpose: To provide the public, healthcare professionals, researchers, and policymakers with data on new cancer cases reported to the Cancer Register in Denmark.
Type of information: Number of new cancer cases; Age-standardized incidence rate; Prevalence; Trends and developments in new cancer cases.
Data level: National level.
Access to information: Access Information [5].
Compilation: ESMO Patient Guides
Sponsor, manager or home institution: European Society for Medical Oncology
Primary purpose: To translate complex medical language into understandable information for patients.
Available guides: Bone Health in Cancer; Cancer Care During the COVID-19 Pandemic; Cancer Pain Management; Immunotherapy Side Effects; Personalised Cancer Medicine; Survivorship; AML; Biliary Tract Cancer; Bladder Cancer; Bone Sarcoma; Breast Cancer; Cervical Cancer; CML; Colorectal Cancer; Endometrial Cancer; Follicular Lymphoma; Glioma; Head and Neck Cancer; Hepatocellular Carcinoma; Multiple Myeloma; Non-Small-Cell Lung Cancer; Oesophageal Cancer; Ovarian Cancer; Pancreatic Cancer; Prostate Cancer; Soft Tissue Sarcoma; Stomach Cancer; Testicular Cancer.
Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
Access to information: List of guides [6].
Quality of Life and Palliative Care Research
List of Articles: Quality of Life [7] and Palliative Care [8].
