Spain
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Cancer Centers
Healthcare System
Administrative or Claims Data
Registries
Database: Death Statistics by Cause of Death (INE)
Database: Spanish Registry of Pediatric Tumors (RETI-SEHOP)
Database: Annual Report of the National Health System
Database: Mortality by cause of death
Database: Late Fetal and Infant Mortality
Database: The Specialized Care Information System (SIAE)
Database: Primary Care Clinical Data Base (BDCAP)
Database: Hospital Morbidity Survey (EMH)
Compilation: Cancer Registries of Autonomous Communities
Public Health Surveillance (RENAVE)
Databases for Clinical Trials, Surveys and Biobanks
Clinical Practices Guidelines
SEOM Guidelines
Latest Policymaking Initiatives
Reports: Ministry of Health
Report: Spanish Association Against Cancer
Sponsor, manager or home institution: Asociación Española Contra el Cáncer.
Primary purpose: To address the current challenges and future prospects of palliative care and end-of-life support for the oncology population in Spain, focusing on multidisciplinary perspectives and biopsychosocial approaches.
Type of information: Estimation of the population with palliative needs; Evolution of the percentage of deaths of cancer patients; Number of palliative resources for adults; Social variables that hinder access to palliative care; Percentage of patients who receive radiotherapy; Percentage of patients who consume some pharmaceutical product directly derived from their treatment; Radiotherapy costs.
Data level: National and regional level.
Access to information: Access Information [1]; Radiotherapy information [2].
Report: Spanish Group of Cancer Patients
Sponsor, manager or home institution: Grupo Español de Pacientes con Cáncer.
Primary purpose: To address the specific needs and challenges faced by cancer survivors and advocate for effective measures and plans to support their well-being, reintegration into daily life, and overall quality of life after cancer treatments.
Type of information: Type of cancer and the treatment received; Time elapsed since the end of the treatments; Social, emotional and physical impacts on cancer patients.
Data level: National level.
Access to information: Access Information [3].
Report: EU Country Cancer Profile 2023
Sponsor, manager or home institution: OECD and European Commission.
Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
Data level: National level.
Access to information: Access Information [4].
Patient Associations
Sponsor, manager or home institution: Various institutions.
Primary purpose: These associations primarily focus on cancer prevention, support, and research to improve the well-being of affected individuals and their families.
Access to information: Information [5].
Compilation: ESMO Patient Guides
Sponsor, manager or home institution: European Society for Medical Oncology.
Primary purpose: To translate complex medical language into understandable information for patients.
Available guides: Cancer Care During the COVID-19 Pandemic; Cancer-Related Pain; Immunotherapy-Related Side Effects and Their Management; Survivorship; Personalized Medicine; Colorectal Cancer; Head and Neck Cancer; Cervical Cancer; Endometrial Cancer; Glioma; Hepatocellular Carcinoma; LMA; CML; Follicular Lymphoma; Breast Cancer; Multiple Myeloma; Ovarian Cancer; Pancreatic Cancer; Non-Small Cell Lung Cancer; Testicular Cancer; Soft Tissue Sarcomas; Bone Sarcomas.
Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
Access to information: List of guides [6].
