Database: North-West Regional Cancer Registry (Romania)

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Type of database: registry.

Primary purpose: Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance.

Sponsor, manager or home institution: Oncological Institute of Cluj (IOCN).

Type of information: longitudinal. year; age; sex; place of residence; hospital location; diagnosis; primary tumor localization; tumor histology; tumor staging; medical procedures; causes of death; number of deaths; cancer incidence. Data Dictionary: Database: North-West Regional Cancer Registry.

Available type of information: cancer incidence; region; diagnosis; year; sex; Annual incidence by 100.000 inhabitants; Sexual rate (M/F) of new cases of cancer; Percentage distribution of new cases of cancer; age group; number of deaths by cancer; Crude rate of mortality by 100.000 inhabitants; Standardized mortality rate by 100.000 inhabitants (related to the world population).

Source of Information: Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries.

Data level: patient level.

Available data level: regional level.

Number of Records: unknown.

Date Range: Regarding the county of Cluj, information is available from 2000 onwards. There is data about other counties from 2008 onwards.

Cancer Areas of Interest: C00-D48: All neoplasms. See the full list here: North-West Regional Cancer Registry. Click here to learn more. Some specific cancer locations are excluded.

Data access: partially publicly available. Click here to access. Data can be downloaded in the PDF format. Instructions on how to request data for restricted content are available. Click here to learn more.

Contact information: Click here to learn more.