Database: Andmebaas Cancer Registry (Estonia)

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Type of database: registry.

Primary purpose: The main task of the cancer registry is to ensure the most complete and reliable registration of cancer cases.

Sponsor, manager or home institution: The Health Statistics and Health Research Database; The National Institute for Health Development.

Type of information: longitudinal. diagnosis; primary tumor localization; tumor staging; medical procedures; place of residence; sex; age; causes of deaths. Data Dictionary: Andmebaas Cancer Registry. Click here to learn more.

Available type of information: diagnosis, sex, age, cancer incidence, place of residence. Click here to learn more.

Source of Information: Data is updated from the Estonian population register (personal data, including time of leaving the country) from the register of causes of death (death data, including the cause of death). Reporting cancer cases is mandatory for all doctors working in Estonia who diagnose or treat cancer. Forensic experts also submit data to the register.

Data level: patient level.

Available data level: regional level.

Number of Records: unknown.

Date range: 1968 onwards.

Cancer areas of interest: C00-C97: All cancer types. Click here to learn more.

Data access: partially publicly available. Click here to access, go to "Morbidity" > "Malignant neoplasms". Data can be downloaded in the formats XLSX; CSV; PX; XML; JPG and JSON. Instructions to request data for restricted content click here to access.

Contact information: Click here to access.