Database: National Oncology Drugs Management System (Ireland)

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Type of database: administrative/claims data.

Primary purpose: To organize and oversee the utilization of cancer medications nationally.

Sponsor, manager or home institution: National Cancer Control Programme (NCCP); Health Service Executive; National Cancer Drug Management Programme; Primary Care Reimbursement Service (PCRS).

Type of information: longitudinal. Data dictionary is not available. Patient demographics, number of drugs, usage of cancer drugs, and expenditures on cancer medications; Other patients' information comprises their name, date of birth, sex, address, and contact details (if provided), as well as their PPS or medical card number or long-term illness card number (if available). Click here to learn more.

Source of Information: The hospital personnel enters the necessary data into an internet-based system supervised and run by PCRS. PCRS provides NCCP with anonymous and combined reports generated from the system. The data is gathered every month.

Data level: patient level.

Number of records: 21,030 claims submitted – 2021; 17,019 claims submitted – 2020; 15,640 claims submitted - 2019.

Date range: Data collection started in September 2012, and reporting procedure began in April 2013 onwards.

Cancer areas of interest: C00-D48: All neoplasms.

Data access: not publicly available. Instructions to request data for restricted content click here to access.

Contact information: Click here to access.