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Type of database: registry.
Primary purpose: Centralize and uniform national cancer information that was previously stored regionally. Click here to learn more.
Sponsor, manager or home institution: Direção Geral da Saúde (DGS).
Type of information: longitudinal. types of visits and number of visits to health care stablishments, periodicity of physician consultation, diagnosis, primary tumour localization, tumour staging, risk of cancer, tumour histology, medical procedures, causes of death, year, sex, place of residence.
Data Dictionary: National Cancer Registry (RON) (Portugal).
Click here to learn more.
Available type of information: number of deaths and cancer incidence by year, sex, age, and region. Click here to learn more.
Source of information: Data from public and private health institutions in Portugal.
Data level: patient level.
Available data level: regional level.
Number of records: unknown.
Date range: 1989 onwards.
Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.
Data access: partially publicly available. Reports with regional data can be accessed through the RON publications section on the National Cancer Registry website, click here to access. Data can be downloaded in the PDF format. Instructions to request data for restricted content click here to access. Data requires a grant proposal to be accessed.
Contact information: Click here to access.
Mouth
Throat
Oropharynx
Nasopharynx
Hypopharynx
Larynx
Salivary glands
Lips
Tonsils
base of tongue
Voice box
Esophagus
Stomach
Small intestine
Large intestine
Colon
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Lung
Trachea
Bronchi
Pleura
Mediastinum
Bone
Cartilage
Osteosarcoma
Ewings sarcoma
Skin
Melanoma
Scalp
Lips
Hands
Feet
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Lobular
Breast
Nipple
Areola
Ductal
Vulva
Vagina
Cervix
Uterus
Ovary
Fallopian tubes
Endometrium
Prostate
Testicles
Penis
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Peritoneum
Pericardium
Retroperitoneum
Mesothelium
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::registry
dataOwner::Direção Geral da Saúde (DGS)
databaseStructure::longitudinal
hasVariable::types of visits
hasVariable::number of visits
hasVariable::periodicity of physician consultation
hasVariable::diagnosis
hasVariable::primary tumour localization
hasVariable::tumour staging
hasVariable::risk of cancer
hasVariable::tumour histology
hasVariable::medical procedures
hasVariable::causes of death
hasVariable::year
hasVariable::sex
hasVariable::place of residence
hasDataDictionary::Data Dictionary: National Cancer Registry (RON) (Portugal)
availableVariable::number of deaths
availableVariable::cancer incidence
availableVariable::year
availableVariable::sex
availableVariable::age
availableVariable::region
dataLevel::patient level
availableDataLevel::regional level
numberRecords::unknown
dataStart::1989
dataEnd::onwards
hasCancerType::C00-D48: All neoplasms
dataAvailability::partially publicly available
hasDownloadableData::PDF
hasDataAccessInstructions::[https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf click here to access
hasGrantRequirement::Data requires a grant proposal to be accessed