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Type of database: registry.
Primary purpose: To compile and maintain a comprehensive database of cancer cases in children and young people in Romania. Click here to learn more.
Sponsor, manager or home institution: Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology.
Type of information: longitudinal. age; sex; region; diagnosis; primary tumour localization; tumour histology; tumour staging; medical procedures; hospital location; cancer incidence; number of deaths;
causes of death; potential years of life lost, cancer survival; hospital discharges, number of visits, year. The information contained in the registry follows the recommendations of ENCR Click here to learn more. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus Click here to learn more. Data refers to people aged between 0 and 14 years.
Data Dictionary - National Registry of Childhood Cancer (RNCCR)
Available type of information: age, sex, region, diagnosis, primary tumour localization, tumour histology, tumour staging, cancer incidence, cancer survival, causes of death, number of deaths, potential years of life lost, hospital discharges, number of visits, year.
Source of information: Reports from pediatric oncologic centers.
Data level: patient level.
Date range: 2009 onwards.
Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.
Data access: partially publicly available. Click here to access. Data can be downloaded in the PDF format. Instructions to request data for restricted content: Click here to learn more.
Contact information: Click here to learn more.
Mouth
Throat
Oropharynx
Nasopharynx
Hypopharynx
Larynx
Salivary glands
Lips
Tonsils
base of tongue
Voice box
Esophagus
Stomach
Small intestine
Large intestine
Colon
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Lung
Trachea
Bronchi
Pleura
Mediastinum
Bone
Cartilage
Osteosarcoma
Ewings sarcoma
Skin
Melanoma
Scalp
Lips
Hands
Feet
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Lobular
Breast
Nipple
Areola
Ductal
Vulva
Vagina
Cervix
Uterus
Ovary
Fallopian tubes
Endometrium
Prostate
Testicles
Penis
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Peritoneum
Pericardium
Retroperitoneum
Mesothelium
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::registry
dataOwner::Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology
databaseStructure::longitudinal
hasVariable::age
hasVariable::sex
hasVariable::region
hasVariable::diagnosis
hasVariable::primary tumour localization
hasVariable::tumour histology
hasVariable::tumour staging
hasVariable::medical procedures
hasVariable::hospital location
hasVariable::cancer incidence
hasVariable::number of deaths
hasVariable::causes of death
hasVariable::potential years of life lost
hasVariable::cancer survival
hasVariable::hospital discharges
hasVariable::number of visits
hasVariable::year
hasDataDictionary::Data Dictionary - National Registry of Childhood Cancer (RNCCR)
availableVariable::age
availableVariable::sex
availableVariable::region
availableVariable::diagnosis
availableVariable::primary tumour localization
availableVariable::tumour histology
availableVariable::tumour staging
availableVariable::cancer incidence
availableVariable::cancer survival
availableVariable::causes of death
availableVariable::number of deaths
availableVariable::potential years of life lost
availableVariable::hospital discharges
availableVariable::number of visits
availableVariable::year
dataLevel::patient level
dataStart::2009
dataEnd::onwards
hasCancerType::C00-D48: All neoplasms
dataAvailability::partially publicly available
hasDownloadableData::PDF
hasDataAccessInstructions::[https://srohp.ro/contact/ Click here to learn more.
isDatabase
hasCancerType::C00-C97: All cancer types
hasCancerType::C00-C14: Mouth/throat cancers
hasCancerType::C15-C26: Digestive system cancers
hasCancerType::C30-C39: Lung/chest cancers
hasCancerType::C40-C41: Bone cancers
hasCancerType::C43-C44: Skin cancers/melanoma
hasCancerType::C45-C49: Soft tissue cancer
hasCancerType::C50: Breast cancer
hasCancerType::C51-C58: Female genitalia cancers
hasCancerType::C60-C63: Male genitalia cancer
hasCancerType::C64-C68: Urinary system cancers
hasCancerType::C69-C72: Eye and brain cancer
hasCancerType::C73-C75: Thyroid and other gland cancers
hasCancerType::C76-C80: Cancers of unknown or unspecified areas
hasCancerType::C81-C96: Cancers of the blood and immune system
hasCancerType::C97-C97: Cancers in multiple locations from the start
hasCancerType::D00-D09: Early-stage cancers not yet spread
hasCancerType::D10-D36: Benign tumour
hasCancerType::D37-D48: Growths of uncertain nature
hasCancerType::unknown
