European Union
Registries
European Cancer Information System (ECIS)
Primary purpose: Provide publicly available quantitative data about cancer in Europe's countries.
Sponsor, manager or home institution: Commission's Joint Research Centre (JRC).
Type of databases: Cancer incidence and mortality estimates for 2020, cancer incidence and mortality long-term estimates up to 2040, cancer incidence and mortality registries, childhood cancer incidence and cancer survival for Europe’s countries.
Type of information: Country/registry, sex, cancer site, age, year, type of projected population and type of indicator.
Source of Information: Hospitals, death certificates, laboratory services and the World Health Organization’s mortality database.
Data level: National and regional level, depends on the selected country.
Number of Records: Depends on the registries that each country provides. It can be checked in the following links:
Cancer Incidence and Mortality in Europe
Childhood Cancer Incidence in Europe
Data Range: Depends on the registries that each country provides. It can be checked in the following links:
Cancer Incidence and Mortality in Europe
Childhood Cancer Incidence in Europe
Cancer areas of interest (ICD): Each project has its own list and that can be found in the following links:
Incidence and mortality estimates 2020 and long-term estimates up to 2040
Cancer Incidence and Mortality in Europe
Childhood Cancer Incidence in Europe
Link/contact: Contact information can be found here.
EUROSTAT
Primary purpose: To process and publish statistical information at European Level using a common analysis methodology. Note: EUROSTAT does not collect data, only process data collected from EU countries. [1]
Sponsor, manager, or home institution: European Union [2]
Available databases: There are multiple available databases that include data from multiple countries in the European Union, including but not limited to:
Available information: Datasets about the incidence of cancer in general and specific types of cancer, sortable by year, sex, site, age group, education, income as well as causes of death and death rates. Varies for each dataset.
Available data level: National and regional level, varies by country.
Collected information: varies by database.
Data source: Every European Union country provides data collected using their own methodology.
Cancer areas of interest (ICD): Varies by dataset.
Link/contact: Contact information.
Clinical Practices Guidelines
Sponsor, manager or home institution: European Society for Medical Oncology (ESMO)
Primary purpose:' Provide patients, their relatives and caregivers guides to better understand complex medical information about different types of cancer.
Type of information: Laymen-directed descriptions of specific cancers, their causes, diagnoses, treatment, screening, and side effects, among other relevant information for patients, their relatives and caregivers.
Access to information: Check language availability. Information can be found here.
