Ireland

Registries

Database: Vital Statistics

Sponsor, manager or home institution: Central Statistics Office (CSO)

Primary purpose: Provide information about Marriages Registration, Death Registration, Stillbirths Registration, Live Births Registration and Mortality Differentials in Ireland.

Type of information: Age of bride and groom, Previous marital status of bride and groom, Area of residence of bride and groom before and after marriage, Occupation of bride and groom, Place of marriage and Type of marriage ceremony, Date of death, Address of residence of deceased, Place of death, Cause of death, Occupation of deceased, Age of deceased, Sex of deceased, Marital Status of deceased and Birth weight, Gestational Age, Date of birth of infant, Date of birth of parents, Marital status of mother, Number of previous children, County of residence of mother, Multiplicity, Occupation of parents, Baby's forename.

Available type of information: Births by age of mother and sex of child, area of residence, region, within and outside of marriage/civil partnership, average age of mother, within and outside of marriage/civil partnership, birth rate per 1,000 Population, date and month of occurrence, previous born children, period of gestation, birthweight, place of occurrence, nationality of mother, nationality of both parents, total number of hospital births, fertility rates, occupation of mother. Deaths occurring by area of residence, sex and age group, cause of death, sex and age group. Suicides by area of residence and sex. Published Suicide Deaths and Late Registered Deaths. Live Births and Stillbirths and Infant Mortality.

Source of Information: Methodology for each section of the Vital Statistics database can be found here.

Data level: Patient level.

Available data level: Regional, national level.

Number of Records: Unknown.

Date Range: Varies for each section and variable.

Cancer Areas of Interest: All.

Open data access: Data is partially publicly available. Data can be accessed here. Information on how to access full database can be found here. Reports can be found here.

Information/Contact for data request: Contact information can be found here.

Databases for Clinical Trials, Surveys and Biobanks

Survey: Irish Health Survey 2019

Sponsor, manager or home institution: Central Statistics Office.

Primary purpose: Is the Irish version of the European Health Interview Survey (EHIS), and the goal is to obtain reliable information about health care status and usage in order to create more effective policies.

Type of information: Health behavior and health care usage information, including smoking behavior; filtered by economic situation, gender, age, region, and disability status. Survey questions can be found here.

Source of Information: Responses to the survey questions conducted all over Ireland.

Data level: Patient level.

Available data level: Regional, national level.

Number of Records: 7,621 respondents.

Date Range: 2019. Survey was also conducted in 2015.

Cancer Areas of Interest: All cancer areas related to smoking.

Open data access: Data is partially publicly available. Publicly available data can be accessed here. Information on how to access full database can be found here.

Information/Contact for data request: Contact information can be found here.

Survey: Healthy Ireland Survey

Sponsor, manager or home institution: Department of Health, Statistics and Analytics Unit.

Primary purpose: Obtain information about the health status and behavior of the irish population.

Type of information: Survey responses about topics including general health, smoking, alcohol, weight management, health service utilisation, dental and oral health, skin protection, menstrual health and period poverty, suicide awareness, impact of COVID-19 on health behaviors. The survey questionnaire used for the 2022 survey can be found here.

Available type of information: Survey reports for all the years.

Source of Information: Responses from survey questionnaire.

Data level: Patient level.

Available data level: National level.

Number of Records: Around 7,500 respondents.

Date Range: 2014-2022.

Cancer Areas of Interest: All cancer areas related to smoking.

Open data access: Data is not publicly available. Reports can be found here. Information on how to access microdata can be found here.

Information/Contact for data request: Contact information was not found.

Latest Policymaking Initiatives

Compilation: Cancer Statistics Reports

Sponsor, manager or home institution: National Cancer Registry of Ireland.

Primary purpose:' Provide reports about cancer data collected by the institute.

Type of information: Annual financial reports, strategic plans, cancer trends & projections, statistical reports, cancer atlases, research publications, all Ireland cancer statistics, infographics.

'Level: National level.

Access to information: Information can be found here.