The Netherlands

Registries

Database: Netherlands Cancer Registry (NKR)

[1] [2]

Primary purpose:

Sponsor, manager or home institution: Comprehensive Cancer Center of the Netherlands (IKNL).

Available type of information:

• Incidence: Count, crude rate, European Standardized Rate (ESR), World Standardized Rate (WSR), Revised European Standardized Rate (RESR) by type of cancer, gender, age, region, and year.
• Prevalence: 5 year, 10 year, and 20 year prevalence by type of cancer, gender, age, region, and year.
• Mortality: Count, crude rate, European Standardized Rate (ESR), World Standardized Rate (WSR), Revised European Standardized Rate (RESR) by type of cancer, gender, age, and year.
• Survival

Source of information: Hospitals' reports.

Data level: Regional level (open access) and Patient level (restricted access).

Number of Records: Contains information about all new cases of malignant neoplasms and some benign neoplasms (tumors of the central nervous system, borderline tumors of the ovary, and AL amyloidosis) in Netherlands.

Date range: Varies according to the diagnosis.

Cancer Areas of Interest:

Data access: Regional level data is available here. Access to patient level data can be requested by following the steps described here.

Information/contact for data request: Contact information.