Romania

Registries

Database: National Registry of Childhood Cancer (RNCCR)

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Sponsor, manager or home institution: Romanian Society of Pediatric Onco-Hematology.

Type of information: The information contained in the registry follows the recommendations of ENCR, so the dataset can be checked in this document. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus, which is presented here. Data refers to people aged between 0 and 14 years.

The variables available to be registered by the hospitals in the database are: CNP, Name, First name, Date of birth, Age, Sex, County, CITY, Address, Date of cancer diagnosis, Explication (reason for registry of the diagnosis - hospitalization, death, biopsy...), Date of clinical onset, Date of relapse, Reason for reporting, Registration base (data source), Tumor location, Topographical code, Laterality.

Histopathological/cytological examination (Behavior, Morphological code, degree, Cod ICC3 Primary, Cod ICC3 Category, Cod ICC3 Subcategory).

Toronto staging (Diagnostic class, Level 1, Level 2).

TNM staging for solid tumors not included in Toronto staging (Stadium type, TNM classification).

Treatment (Surgery date, Chemotherapy, Radiotherapy, hormone therapy, Immunotherapy, Other treatments, Transplant, Diagnostic class, Therapeutic protocol, Another therapeutic protocol, Treatment abroad, Type of treatment abroad, Tara, End of therapy date, Response to treatment, Refusal, Reason for refusal, Abandon, Dropout reason).

Tracking (Date of last contact, Status, The last doctor, Death, The main cause, Secondary cause).

Source of information: Regional Institutional Cancer Registries, pathology and cytology laboratories, oncology ambulatory service and oncology wards in hospitals, medical services belonging to ministries with their own health network (Ministry of National Defense and Ministry of Transportations and Telecommunications), and death certificates.

Data level: Patient-level (restricted access).

Date range: 2008 onwards.

Data access: To require access to the patient-level database, it is necessary to send and e-mail to the address presented in the database page. It is also possible to simulate the access and see the available variables and search layout by inserting the login informations presented in the home page of the database website.

Cancer areas of interest: The list can be checked here. Some specific cancer locations are excluded, and those can be seen here.

Information/contact for data request: Contact information.