Data Dictionary: ATBC Study
From Beacon
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Source: [1]
| Baseline Form 1 |
|---|
| Name, Address, Personal Identifiers, Phone Number |
| Residence |
| Marital Status |
| Education |
| Vocational Training |
| Occupation |
| Medical History |
| Dental Health |
| Physical Activity |
| Smoking History |
| Drug and Vitamin Use |
| Baseline Form 2 |
|---|
| Height, Weight, Blood Pressure, Heart Rate, Visual Acuity |
| Medical Symptoms (dyspnea, chest pain, claudication, cough, phlegm) |
| Number of Cigarettes Smoked |
| Administrative information (checklist of exclusion criteria, indication of fasting, indication of blood sample taken, indication of chest x-ray taken) |
| Baseline Form 3 |
|---|
| Administrative information (difficulty in coming to visit, return dietary history form, return picture book, return toenail sample, estimate of greyness of hair, capsules ID number, indication of extra blood, indication of fasting hours) |
| Food Frequency Questionnaire (long form) |
|---|
| Frequency and number of portions of food consumed |
| Follow-up Form A |
|---|
| Illnesses |
| Physician contact |
| Symptoms |
| Bedridden |
| Smoked |
| Vitamin/mineral use past 2 weeks |
| Changes in prescription drugs |
| Follow-up Form B |
|---|
| Difficulty in coming to visit |
| Symptoms participants suspects due to capsules |
| Cancer diagnosis |
| Capsule compliance |
| Chest x-ray |
| Follow-up Form C |
|---|
| Weight, Blood Pressure, Heart Rate, Visual Acuity |
| Medical Symptoms (dyspnea, chest pain, claudication, cough, phlegm) |
| Estimate of hair greyness |
| Difficulty in coming to visit |
| Symptoms participant suspects due to capsules |
| Cancer |
| Capsule compliance information |
| Chest x-ray |
| Follow-up Form E |
|---|
| Hair color |
| Eye color |
| Tanning ability of skin |
| Trips to south |
| Time outdoors |
| Work history |
| Physical activity at work |
| Physical activity at leisure |
| Weight at age 25 |
| Medical diagnoses told by physician |
| Medical procedures |
| Pain medication |
| Parent history of diseases |
| Number of siblings |
| Sibling history of diseases |
| Use of smoke sauna |
| Years smoked regularly (filter/non-filter) |
| Any radon measurement in residence |
| Physician-Hospital care form |
|---|
| Disease treated in the last visit to a physician/hospital |
| Code of the diagnosis provided |
| Name of the clinician |
| Date of onset of the disease |
| Was in-patient? |
| Has an operation been performed? |
| Therapies initiated |
| Date of therapy begin |
| Date of therapy end |
| Drop-out form |
|---|
| Date of first non-attended visit |
| Reason for drop-out |
| The amount of returned capsules or participant's estimate of the number of remaining capsules |
| Date that the patient stopped taking capsules |
| Nurse ID |
| Non-attendance form |
|---|
| Number of the first non-attended visit |
| Reason for non-attendance |
| Number of capsules given/sent |
| Date of the next visit |
| Nurse ID |
| Chest X ray form |
|---|
| Name |
| Adress |
| Social Security Number |
| Study ID |
| Date the patient was sent to the X-ray |
| X-ray findings |
| Name of reporting physician |
| Blood Sample Form |
|---|
| Name |
| ID |
| Sampling Date |
| Reason for sample |
| Blood sample taken |
| Serum ID |
| Fasting hours |
| If fasting hours is less than 12, what has the participant eaten during past 12 hours? |
| Nurse ID |
| Case-control form |
|---|
| Name |
| Study ID |
| Visit date |
| Type of participant (control or cancer) |
| Status of return of the nail sample |
| Status of return of the dietary history form |
| Have you used any vitamin or trace-element preparation during the past 2 weeks |
| Do you currently use any medication prescribed by a physician for two weeks or longer? |
| Nurse ID |
| Weight |
| Cancer end-point form |
|---|
| Name |
| Social security number |
| Study ID |
| Type of cancer |
| Where has the diagnosis been done? |
| Date of the diagnosis |
| How did the diagnostic process of the cancer originally started? |
| Has the cancer been biopsied or operated? |
| Is the diagnosis going to be verified by additional tests? |
| How is the patient going to be treated in the future? (Decision about operation, radiation therapy, cytotoxic drug therapy, or other treatment) |
| Is the patient goint to stay in the study? |
| ID code of the nurse |
| Epicrisis or comparable requested |
| Description of the operation requested |
| Copy of the histological diagnosis requested |
| Evaluation of the Study Coordinating Center of the diagnosis of the malignancy |
| Final verification of the Finnish Cancer Registry (date of diagnosis, diagnostic code, histological classification) |
| Cancer Diagnosis |
|---|
| Research code |
| Social security number |
| How was the cancer found |
| Weight on arrival at hospital |
| Date of diagnosis |
| Diagnostic method |
| TNM staging |
| Name of hospitals where diagnosis and surgery were performed |
| Cancer histology classification |
| Cancer morphology code |
| Cancer primary site |
| ICD 9 code |
