European Union
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Administrative or Claims Data
Database: European Network of Centres for Pharmacoepidemiology and Pharmacovigilance
Registries
Compilation: Eurostat
Database: OECD Health Statistics
Compilation: WHO Health Data
Database: European Cancer Information System (ECIS)
Database: NordScreen
Database: NORDCAN
Registry: ECIR – European Cancer Inequalities Registry
Database: European Prospective Investigation into Cancer and Nutrition (EPIC-Europe)
Database: Global Burden of Disease Study 2019
Databases for Clinical Trials, Surveys and Biobanks
Electronic Health Records
Clinical Practices Guidelines
Latest Policymaking Initiatives
Data Tool: European Core Health Indicators (ECHI)
Report: Commercial determinants of cancer control policy (Eurohealth)
Report: Europe's Beating Cancer Plan
Sponsor, manager or home institution: European Commission.
Primary purpose: To provide a comprehensive overview of cancer-related policies and initiatives in Europe, aiming to address various aspects of cancer prevention, care, and research, while strengthening the European Health Union and enhancing EU preparedness and resilience.
Type of information: Introduction to a Cancer Plan for Europe; Modern Approaches to Cancer; Sustainable Cancer Prevention; Improving Early Detection of Cancer; Ensuring High Standards in Cancer Care; Improving the Quality of Life for Cancer Patients, Survivors, and Carers; Reducing Cancer Inequalities Across the EU; Childhood Cancer; Funding; International Collaboration and Coordination; Implementation and Governance.
Data level: European level.
Access to information: Access Information [1].
Report: Cancer Incidence in Five Continents
Sponsor, manager or home institution: The International Agency for Research on Cancer (IARC).
Primary purpose: Serves as a comprehensive resource for cancer researchers by compiling quinquennial data on incident cancers from high-quality registries worldwide.
Type of information: For European countries: Major cancers incidence; No. cases by sex; Frequencie (%) by sex; Crude rate (per 100 000) by sex; Cum. rates; Age class; ASR world; ICD-10.
Data level: Global level.
Access to information: Access Information [2].
Report: Childhood cancer inequalities in the WHO European Region
Sponsor, manager or home institution: World Health Organization (WHO) Regional Office for Europe.
Primary purpose: To highlight and address inequalities in childhood cancer care across the WHO European Region by compiling evidence and making recommendations to improve the quality of care for children with cancer.
Type of information: The conceptual approach to childhood cancer inequalities; Relevant factors and their magnitude; Inequalities across countries; Main indicators; Universal health coverage across the cancer continuum; Gender as a cause of inequalities; Parental socioeconomic and education status as a driver of inequalities; Geographic causes of inequalities and the urban/rural divide; Other inequalities; Somatic late effects in children with cancer; Mental health and quality of life; Impact of illness and treatment on schooling and other aspects of health and well-being; Effect of the child’s disease on the family; Reducing inequalities in childhood cancer between countries; Reducing inequalities in childhood cancer within countries; Reducing inequalities faced by survivors of childhood cancer; Global proportional distribution of cancer type by age group; Factors influencing childhood cancer inequalities; Leukaemia incidence and mortality; Estimated age-standardized mortality rates (world) in 2020; Mortality-to-incidence ratio; Proportion of childhood cancer patients living in urban and rural areas; Average number of days from diagnosis to first treatment.
Data level: European level.
Access to information: Access Information [3].
Report: Cancer Care: Assuring Quality to Improve Survival
Sponsor, manager or home institution: OECD.
Primary purpose: To survey policy trends in cancer care, analyze survival rates, and provide recommendations for governments to improve cancer care quality and reduce the burden of cancer in their countries.
Type of information: Cancer care systems; Resources for cancer care; Cancer care practices; Governance of cancer care systems; Exploratory quantitative analysis; Policy recommendations; A list of experts on cancer care systems.
Data level: European level.
Access to information: Access Information [4].
Report: Cancer screening in the European Union
Sponsor, manager or home institution: European Commission.
Primary purpose: To provide scientific advice on improving cancer screening across the EU.
Type of information: EU’s competence to act on cancer screening; The von der Leyen Commission; EU’s cancer screening initiatives; The evidence review report (ERR) by the Science Advice for Policy by European Academies consortium; Use of artificial intelligence and machine learning in cancer screening; Improving the participation in cancer screening; Making access to screening easy; Shared decision making; Recommendations.
Data level: European level.
Access to information: Access Information [5].
Report: Reducing Social Inequalities in Cancer: Evidence and Priorities for Research
Sponsor, manager or home institution: International Agency for Research on Cancer (IARC).
Primary purpose: To summarize scientific evidence and identify research priorities for reducing social inequalities in cancer, with a focus on variations in incidence, survival, and mortality between countries and social groups, and to provide guidance for policymakers and public health officials on interventions to address these inequalities.
Type of information: The importance of social inequalities in the cancer continuum, methods for measuring socioeconomic status and inequalities, social inequalities in cancer between countries, with a focus on cancer survival and perspectives from Africa; Social inequalities in cancer within countries, including Indigenous populations, refugees, and disparities between racial populations in the USA; Social inequalities in cancer risk factors and access to healthcare, mechanisms and context underlying social inequalities in cancer, theoretical frameworks, income inequality, the role of health systems, economics, and the law in addressing cancer inequalities, understanding socioeconomic determinants and biological factors, tackling social inequalities in cancer, assessing the impact of public health interventions, research priorities in different regions, low-cost approaches, lessons from the AIDS response, technology's role, and the concept of the inverse care law.
Data level: Global level.
Access to information: Access Information [6].
Fact sheet: Alcohol and cancer in the WHO European Region: an appeal for better prevention
Sponsor, manager or home institution: WHO Regional Office for Europe.
Primary purpose: To provide information and policy options for reducing the alcohol-attributable cancer burden in the WHO European Region and to emphasize the effectiveness of cost-effective alcohol control policies in achieving this goal.
Type of information: The incidence of alcohol-attributable cancers within the WHO European Region; Age-standardized rates of cancer cases in Europe caused by alcohol, per 100.000; Proportion of cancer deaths, per cancer type, that are attributable to alcohol, by sex; Cancer cases and deaths caused by alcohol in the WHO European Region, by sex and cancer site; Proportion of cancer cases due to alcohol in the WHO European Region, by cancer type and drinking level; Number of new cancer cases that could have been prevented in 2018 by increasing alcohol excise tax in four European countries; Which cancers are caused by alcohol; Is there a safe level of drinking?; The combined risk of using alcohol and tobacco; Policy options to reduce alcohol-attributable cancers.
Data level: European level.
Access to information: Access Information [7].
Guide: Screening programmes: a short guide. Increase effectiveness, maximize benefits and minimize harm
Sponsor, manager or home institution: WHO Regional Office for Europe.
Primary purpose: To provide guidance to policy-makers and public health leads in the WHO European Region on planning, designing, and implementing effective screening programs while considering evidence-based decision-making, quality assurance, and minimizing potential harm, costs, and burdens on the healthcare system.
Type of information: Aims of screening programmes; Wilson & Jungner’s principles of screening; Screening programmes as pathways; Understanding how screening tests work in practice; Benefits and harm of screening; Balancing benefits and harm; Deciding whether to start or stop a screening programme; Designing effective screening programmes; Operational readiness; Operating a screening programme; Monitoring and evaluation.
Data level: European level.
Access to information: Access Information [8].
Initiatives: The European Commission Initiatives on Breast (ECIBC) and Colorectal Cancer (ECICC)
Sponsor, manager or home institution: European Commission.
Primary purpose: To enhance the quality and accessibility of breast and colorectal cancer prevention, screening, and care in Europe by developing evidence-based guidelines and a voluntary quality assurance scheme for these services.
Type of information: What is the initiatives; The Need for the Initiative; Beneficiaries; Implementation; European Cancer Guidelines; Updating Strategy; European Quality Assurance Scheme; Requirements; Developing the Quality Assurance Scheme; Implementing the Quality Assurance Scheme; Additional Tools.
Data level: European level.
Access to information: Access Information [9].
Patient Association: European Cancer Patient Coalition
Primary purpose: To empower European cancer organizations and patients, foster cooperation, influence cancer-related policies, remain vigilant on emerging topics, and advocate for patient-centricity in cancer research to ensure equality in access to cancer treatment and care.
Contact information: Contact information [10].
Patient Association: Digestive Cancers Europe
Primary purpose: To improve early diagnosis, decrease mortality, and enhance overall survival and quality of life for patients with digestive cancers through a collaborative European network.
Contact information: Information [11].
Patient Association: EUROPA UOMO - The European Prostate Cancer Coalition
Primary purpose: To advocate for prostate cancer patients across Europe, striving to enhance diagnosis, treatment, support, quality of life, research, and policy influence while fostering collaboration with healthcare professionals and member organizations.
Contact information: Information [12].
Patient Association: EUROPA DONNA - European Breast Cancer Coalition
Primary purpose: To advocate for women in Europe by raising awareness of breast cancer, promoting education, advocating for screening, treatment, and research funding to improve breast cancer outcomes.
Contact information: Information [13].
Patient Association: LuCE - Lung Cancer Europe
Primary purpose: To be the voice of Europeans impacted by lung cancer, collaborating with members and stakeholders to destigmatize the disease, ensure access to optimal care, and empower lung cancer patient advocacy across Europe.
Contact information: Information [14].
