European Union

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Administrative or Claims Data

Database: European Network of Centres for Pharmacoepidemiology and Pharmacovigilance

Registries

Compilation: Eurostat

Database: OECD Health Statistics

Compilation: WHO Health Data

Database: European Cancer Information System (ECIS)

Database: EUROCARE

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Primary purpose: To monitor cancer survival, measure cancer prevalence, and study patterns of care for cancer patients across Europe. Click here to learn more.

Sponsor, manager or home institution: the Istituto Nazionale dei Tumori (INT Milan) and the Istituto Superiore di Sanità (Rome). Patient-level data is owned by each individual cancer registry. Click here to learn more.

Type of information: Cancer Site, Population, Age Class, ICSS - International Cancer Survival Standards, Time from Diagnosis, Sex, and Output Indicators including: Alive at Start, Observed Survival, Cumulative (OSC), Relative Survival, Cumulative (RSC), Relative SE's, Cumulative (RSEC), Dead, Expected Survival, Interval (ESI), Observed SE's, Interval (OSEI), RSC: Lower bound (95% CI), Lost to Follow Up, Expected Survival, Cumulative (ESC), Observed SE's, Cumulative (OSEC), RSC: Upper bound (95% CI), Observed Survival, Interval (OSI), Relative Survival, Interval (RSI), Relative SE's, Interval (RSEI).

Source of Information: 99 cancer registries from 29 countries participating in the study provided their patient-level data as of the 5th Edition of EUROCARE. Click here to learn more.

Data level: national level.

Number of Records: 9,000,000. Click here to learn more.

Date range: 2000 to 2007.

Cancer Areas of Interest: C00-C97: All cancer types.

Data access: publicly available. Click here to access. Databases from previous editions of the EUROCARE study are also available. Click here to learn more.

Contact information: Click here to learn more.

Database: NordScreen

Database: NORDCAN

Registry: ECIR – European Cancer Inequalities Registry

Database: European Prospective Investigation into Cancer and Nutrition (EPIC-Europe)

Database: Global Burden of Disease Study 2019

Databases for Clinical Trials, Surveys and Biobanks

Electronic Health Records

Clinical Practices Guidelines

Latest Policymaking Initiatives

Cancer-related Patient Associations and Resources