Dutch Institute for Clinical Auditing Databases (DICA) (The Netherlands)
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Database: Pancreatic cancer – DPCA
Type of database: registry.
Primary purpose: To collect and analyze clinical data on patients undergoing surgical treatment for pancreatic cancer to improve the quality and effectiveness of care. Click here to learn more.
Sponsor, manager or home institution: Dutch Institute for Clinical Auditing Databases (DICA).
Type of information: longitudinal. age, sex, place of residence, smoking habit, self-reported prevalence of chronic diseases, diagnosis, primary tumor localization, tumor histology, tumor staging, comorbidities, medical procedures, check-up examinations, hospital location, hospital discharges, type of patient discharge, length of stay. Data Dictionary: Pancreatic cancer – DPCA.
Source of information: The DICA gathers its information from healthcare professionals across the Netherlands who submit clinical data about patients.
Data level: patient level.
Number of Records: unknown.
Date range: 2014 onwards.
Cancer Areas of Interest: C15-C26: Digestive system cancers.
Data access: not publicly available. Datasets can be requested on the DPCG website. Click here to learn more.
Contact information: Click here to learn more.
Database: Colon cancer – DCRA
Type of database: registry.
Primary purpose: To collect and analyze data on colon and rectal cancer surgeries in the Netherlands to improve patient care and treatment outcomes. Click here to learn more.
Sponsor, manager or home institution: Dutch Institute for Clinical Auditing Databases (DICA).
Type of information: longitudinal. age, sex, comorbidities, diagnosis, primary tumor localization, tumor histology, tumor staging, medical procedures, hospital discharges, length of stay, year. [hasDataDictionary::Data dictionary: Colon cancer – DCRA]].
Source of information: The DICA gathers its information from healthcare professionals across the Netherlands who submit clinical data about patients.
Data level: patient level.
Number of Records: unknown.
Date range: 2009 onwards.
Cancer Areas of Interest: C15-C26: Digestive system cancers.
Data access: not publicly available. Datasets can be requested on the DICA website. Click here to learn more.
Contact information: Click here to learn more.
Database: Breast Implants – DBIR
Type of database: registry.
Primary purpose: To collect comprehensive data to enhance the quality and safety of breast implant surgery in the Netherlands. Click here to learn more.
Sponsor, manager or home institution: Dutch Institute for Clinical Auditing Databases (DICA).
Type of information: longitudinal. age, sex, smoking habit, diagnosis, medical procedures, hospital location, devices, hospital discharges, length of stay, year. Data dictionary: Breast Implants – DBIR.
Source of information: The DICA gathers its information from healthcare professionals across the Netherlands who submit clinical data about patients.
Data level: patient level.
Number of Records: unknown.
Date range: 2015 onwards.
Cancer Areas of Interest: C50: Breast cancer.
Data access: not publicly available. Datasets can be requested on the DICA website. Click here to learn more.
Contact information: Click here to learn more.
Database: Breast Cancer – NBCA
Type of database: registry.
Primary purpose: To collect and analyze data on breast cancer diagnostics, treatments, and outcomes to improve the quality and effectiveness of care for breast cancer patients in the Netherlands. Click here to learn more.
Sponsor, manager or home institution: Dutch Institute for Clinical Auditing Databases (DICA).
Type of information: longitudinal. hospital location, age, sex, number of deaths, causes of death, diagnosis, medical procedures, primary tumor localization, self-reported prevalence of chronic diseases, screening, tumor staging, tumor histology, hospital discharges, type of patient discharge, year. Data dictionary: Breast Cancer – NBCA
Source of information: The DICA gathers its information from healthcare professionals across the Netherlands who submit clinical data about patients.
Data level: patient level.
Number of Records: 190,000.
Date range: 2011 onwards.
Cancer Areas of Interest: C50: Breast cancer.
Data access: not publicly available. Datasets can be requested on the DICA website. Click here to learn more.
Contact information: Click here to learn more.
Database: Gynecological oncology – DGOA
Type of database: registry.
Primary purpose: To register and analyze the treatment and outcomes of the four most common gynecological cancers in the Netherlands, enabling healthcare professionals to assess and improve the quality and effectiveness of care.
Sponsor, manager or home institution: Dutch Institute for Clinical Auditing Databases (DICA).
Type of information: longitudinal. hospital location, age, sex, comorbidities, diagnosis, tumor histology, tumor staging, medical procedures, hospital discharges, treatment, year. Data dictionary: Gynecological oncology – DGOA
Source of information: The DICA gathers its information from healthcare professionals across the Netherlands who submit clinical data about patients.
Data level: patient level.
Number of Records: unknown.
Date range: 2014 onwards.
Cancer Areas of Interest: C51-C58: Female genitalia cancer.
Data access: not publicly available. Datasets can be requested on the DICA website. Click here to learn more.
Contact information: Click here to learn more.
Database: Drugs – DMA
Type of database: registry.
Primary purpose: To track and analyze the use, costs, and outcomes of expensive medicines in real-world clinical practice to enable continuous improvement and benchmarking across hospitals. Click here to learn more.
Sponsor, manager or home institution: Dutch Institute for Clinical Auditing Databases (DICA).
Type of information: longitudinal. age, sex, diagnosis, comorbidities, medical procedures, hospital location, type of medical activity, substance name, causes of death, year. Data dictionary: Drugs – DMA
Source of information: The DICA gathers its information from healthcare professionals across the Netherlands who submit clinical data about patients.
Data level: patient level.
Number of Records: unknown.
Date range: 2018 onwards.
Cancer Areas of Interest: C00-C97: All cancer types.
Data access: not publicly available. Datasets can be requested on the DICA website. Click here to learn more.
Contact information: Click here to learn more.
Database: Liver and bile ducts – DHBA
Type of database: registry.
Primary purpose: To collect and analyze data on the treatment of liver and bile duct tumors, including metastases, to improve patient outcomes through quality registration and feedback. Click here to learn more.
Sponsor, manager or home institution: Dutch Institute for Clinical Auditing Databases (DICA).
Type of information: longitudinal. Data dictionary: Liver and bile ducts – DHBA
Source of information: The DICA gathers its information from healthcare professionals across the Netherlands who submit clinical data about patients.
Data level: patient level.
Number of Records: unknown.
Date range: 2013 onwards.
Cancer Areas of Interest: C15-C26: Digestive system cancers.
Data access: not publicly available. Datasets can be requested on the DICA website. Click here to learn more.
Contact information: Click here to learn more.
Database: Lung cancer – DLCA
Type of database: registry.
Primary purpose: To collect and analyze data on the diagnosis, treatment, and outcomes of lung cancer patients to improve the quality and effectiveness of care. Click here to learn more.
Sponsor, manager or home institution: Dutch Institute for Clinical Auditing Databases (DICA).
Type of information: longitudinal. Data dictionary: Lung cancer – DLCA
Source of information: The DICA gathers its information from healthcare professionals across the Netherlands who submit clinical data about patients.
Data level: patient level.
Number of Records: unknown.
Date range: 2016 onwards.
Cancer Areas of Interest: C30-C39: Lung/chest cancers.
Data access: not publicly available. Datasets can be requested on the DICA website. Click here to learn more.
Contact information: Click here to learn more.
Database: Head and Neck Oncology – DHNA
Type of database: registry.
Primary purpose: To collect and analyze data on patients with primary head and neck tumors to improve care quality through national benchmarks, multidisciplinary feedback, and patient-reported outcomes. Click here to learn more.
Sponsor, manager or home institution: Dutch Institute for Clinical Auditing Databases (DICA).
Type of information: longitudinal. Patient characteristics, tumor type (ICD-O codes), treatment details (surgery, radiotherapy, chemotherapy), supportive care (dietician, physiotherapist, speech therapist, oral care professional, oncological nurse), outcomes (treatment results, care pathway adjustments), Patient Reported Outcome Measures (PROMs) (physical functioning, fatigue, mental health, smell and taste problems, appearance concerns). Data Dictionary was not found.
Source of information: Information comes from data collected from patients treated in 14 specialized hospitals in the Netherlands, including 8 Head and Neck Oncology Centers (HHOC) and 6 preferred partner centers.
Data level: patient level.
Number of Records: unknown.
Date range: 2013 onwards.
Cancer Areas of Interest: C00-C14: Mouth/throat cancers.
Data access: not publicly available. Datasets can be requested on the PRISMA website. Click here to learn more.
Contact information: Click here to learn more.
Database: Stomach and esophageal cancer – DUCA
Type of database: registry.
Primary purpose: To collect and analyze clinical data from patients undergoing surgical treatment for esophageal and stomach cancer in the Netherlands to improve the quality of care and outcomes. Click here to learn more.
Sponsor, manager or home institution: Dutch Institute for Clinical Auditing Databases (DICA).
Type of information: longitudinal. Data dictionary: Stomach and esophageal cancer – DUCA
Source of information: The DICA gathers its information from healthcare professionals across the Netherlands who submit clinical data about patients.
Data level: patient level.
Number of Records: unknown.
Date range: 2010 onwards.
Cancer Areas of Interest: C15-C26: Digestive system cancers.
Data access: not publicly available. Datasets can be requested on the DICA website. Click here to learn more.
Contact information: Click here to learn more.
Database: Melanoom – DMTR
Type of database: registry.
Primary purpose: To collect data on advanced and metastatic melanoma to improve treatment outcomes and facilitate research into the effectiveness of new therapies. Click here to learn more.
Sponsor, manager or home institution: Dutch Institute for Clinical Auditing Databases (DICA).
Type of information: longitudinal. Data dictionary: Melanoom – DMTR
Source of information: The DICA gathers its information from healthcare professionals across the Netherlands who submit clinical data about patients.
Data level: patient level.
Number of Records: unknown.
Date range: 2013 onwards.
Cancer Areas of Interest: C43-C44: Skin cancers/melanoma.
Data access: not publicly available. Datasets can be requested on the DICA website. Click here to learn more.
Contact information: Click here to learn more.
