Database: Socialstyrelsen National Patient Register (Sweden)

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Type of database: administrative/claims data.

Primary purpose: The patient register serves multiple purposes. One of its main functions is to track the health development of the population over an extended period. In doing so, it helps to improve the possibilities of preventing and treating diseases. Additionally, the patient register contributes to the overall development of healthcare by providing valuable data and insights. It also enables healthcare providers to monitor the quality of their operations and identify areas where improvements may be needed.

Sponsor, manager or home institution: Socialstyrelsen.

Type of information: longitudinal. age, sex, marital status, place of residence, diagnosis, medical procedures, hospital location, type of medical activity, medication use, hospital discharges, type of patient discharge, length of stay, number of visits, types of visits, year.

Data Dictionary: Socialstyrelsen National Patient Register.

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Source of information: Healthcare providers must submit patient information to the patient register monthly, including hospital code and medical area. Data is submitted via a reporting portal or register service.

Data level: patient level.

Number of records: unknown.

Date range: 1964 onwards.

Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.

Data access: not publicly available. Instructions to request data for restricted content: click here to learn more. Data has access costs. Click here to learn more.

Contact information: Click here to learn more.