Guidelines: Genetic Tumour Risk Syndromes Guidelines Compilation (European Union)

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Primary purpose: To provide evidence-based recommendations for the diagnosis, treatment, and surveillance of patients with specific genetic tumor risk syndromes and related rare conditions, ensuring optimal care based on the best available research and expert opinion.

Sponsor, manager or home institution: ERN GENTURIS.

Type of information: Evidence-based recommendations about screening, diagnosis, medical procedures, cancer survival information, cancer incidence, tumour staging, risk of cancer, tumour histology on specific cancer diseases. Click here to learn more.

Cancer Areas of Interest: C15-C26: Digestive system cancers, C40-C41: Bone cancers, C45-C49: Soft tissue cancer. Click here to learn more.

Access to information: Click here to access.

Esophagus Stomach Small intestine Large intestine Rectum Anus Liver Gallbladder Bile ducts Pancreas Colon Bone Cartilage Osteosarcoma Ewings sarcoma Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma dataOwner::ERN GENTURIS availableVariable::screening availableVariable::diagnosis availableVariable::medical procedures availableVariable::cancer survival availableVariable::cancer incidence availableVariable::tumour staging availableVariable::risk of cancer availableVariable::tumour histology hasCancerType::C15-C26: Digestive system cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C45-C49: Soft tissue cancer