Database: National Quality Register for Cervical Cancer Prevention (Sweden)
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Type of database: registry.
Primary purpose: To monitor and improve the quality of cervical cancer prevention in Sweden through the analysis of data on screenings, tests, diagnoses, and biobanking.
Sponsor, manager or home institution: Karolinska University Hospital.
Type of information: cross-sectional. screening, diagnosis, medical procedures, age, sex, cancer incidence, number of deaths. Data on invitations to cytology (Pap smear) screenings, results of cytology and virus tests, records of tissue samples and diagnoses related to cervical cancer, information on biobanking of cytology samples.
Available type of information: cancer incidence (cervical cancer); age; region, year, participation in screening programs, coverage rates and trends in cervical cancer screening, diagnosis profiles for cytology and HPV testing, follow-up of high-grade cervical cell changes, mortality rates of invasive cervical cancer, among others. Click here to learn more.
Source of information: The National Quality Register for Cervical Cancer Prevention (NKCx) in Sweden. NKCx is a national initiative that merges two existing quality registers with extensive experience and expertise in cervical cancer prevention. The register covers various aspects of cervical cancer prevention, including data on invitations, cell samples, tissue samples, and the care process.
Data level: patient level.
Available data level: regional level and national level.
Number of Records: unknown.
Date Range: 1970 onwards.
Cancer areas of interest: C51-C58: Female genitalia cancer. Click here to learn more.
Data access: partially publicly available: click here to access; Instructions to request data for restricted content: click here to learn more. Data has access costs.
Contact information: Click here to learn more.
