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Type of Database: pharmacovigilance; registry; survey; clinical trial database; research study; administrative/claims data.
Primary purpose: To serve as a centralized electronic index for EU research organizations, networks, and data sources in the fields of pharmacoepidemiology and pharmacovigilance. It aims to facilitate connections between researchers and study sponsors by providing information on expertise and research experience across Europe. The databases allows users to identify relevant research centers, data sources, and patient registries based on various criteria.
Sponsor, manager or home institution: European Medicines Agency (EMA).
Type of information: cross-sectional; longitudinal. diagnosis; medication use; causes of death; medical procedures; devices; sex; age; region; healthcare costs; type of patient.
Data Dictionary: European Network of Centres for Pharmacoepidemiology and Pharmacovigilance.
Click here to learn more
Source of Information: The sources of the databases are provided and maintained by the listed organizations, data providers, or registry holders.
Data level: national level and regional level.
Number of Records: unknown.
Date range: unknown.
Cancer Areas of Interest: C00-D48: All neoplasms. Click here to learn more.
Data access: publicly available. Click here to access. Data can be downloaded in the PDF format.
Contact information: Click here to learn more.
Mouth
Throat
Oropharynx
Nasopharynx
Hypopharynx
Larynx
Salivary glands
Lips
Tonsils
base of tongue
Voice box
Esophagus
Stomach
Small intestine
Large intestine
Colon
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Lung
Trachea
Bronchi
Pleura
Mediastinum
Bone
Cartilage
Osteosarcoma
Ewings sarcoma
Skin
Melanoma
Scalp
Lips
Hands
Feet
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Lobular
Breast
Nipple
Areola
Ductal
Vulva
Vagina
Cervix
Uterus
Ovary
Fallopian tubes
Endometrium
Prostate
Testicles
Penis
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Peritoneum
Pericardium
Retroperitoneum
Mesothelium
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::pharmacovigilance
databaseType::registry
databaseType::survey
databaseType::clinical trial database
databaseType::research study
databaseType::administrative/claims data
dataOwner::European Medicines Agency (EMA)
databaseStructure::cross-sectional
databaseStructure::longitudinal
availableVariable::diagnosis
availableVariable::medication use
availableVariable::causes of death
availableVariable::medical procedures
availableVariable::devices
availableVariable::sex
availableVariable::age
availableVariable::region
availableVariable::healthcare costs
availableVariable::type of patient
hasDataDictionary::Data Dictionary: European Network of Centres for Pharmacoepidemiology and Pharmacovigilance
dataLevel::national level
dataLevel::regional level
numberRecords::unknown
dataEnd::unknown
hasCancerType::C00-D48: All neoplasms
dataAvailability::publicly available
hasDownloadableData::PDF
isDatabase
hasCancerType::C00-C97: All cancer types
hasCancerType::C00-C14: Mouth/throat cancers
hasCancerType::C15-C26: Digestive system cancers
hasCancerType::C30-C39: Lung/chest cancers
hasCancerType::C40-C41: Bone cancers
hasCancerType::C43-C44: Skin cancers/melanoma
hasCancerType::C45-C49: Soft tissue cancer
hasCancerType::C50: Breast cancer
hasCancerType::C51-C58: Female genitalia cancers
hasCancerType::C60-C63: Male genitalia cancer
hasCancerType::C64-C68: Urinary system cancers
hasCancerType::C69-C72: Eye and brain cancer
hasCancerType::C73-C75: Thyroid and other gland cancers
hasCancerType::C76-C80: Cancers of unknown or unspecified areas
hasCancerType::C81-C96: Cancers of the blood and immune system
hasCancerType::C97-C97: Cancers in multiple locations from the start
hasCancerType::D00-D09: Early-stage cancers not yet spread
hasCancerType::D10-D36: Benign tumour
hasCancerType::D37-D48: Growths of uncertain nature
hasCancerType::unknown
