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Type of database: registry.
Primary purpose: Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following regions: health regions of Lisboa e Vale do Tejo (LVT), Alentejo, Algarve and the Autonomous Region of Madeira.
Sponsor, manager or home institution: Instituto Português de Oncologia de Lisboa Francisco Gentil (IPOLFG).
Type of information: longitudinal. types of visits and number of visits to health care stablishments, periodicity of physician consultation, diagnosis, primary tumour localization, tumour staging, risk of cancer, tumour histology, medical procedures, causes of death, year, sex, region.
Data Dictionary: Southern Regional Oncology Registry (ROR-Sul) (Portugal).
Click here to learn more.
Available type of information: cancer incidence, number of deaths and cancer survival by year, age, diagnosis, sex, region, causes of death, primary tumour localization, tumour histology, tumour staging. Click here to learn more.
Source of information: Data from public and private health institutions of the region.
Data level: patient level.
Available data level: regional level.
Number of records: unknown.
Date range: Regional level is presented from 2002 to 2017, and 1998 - 2000/2001. The patient level date range is unknown.
Cancer areas of interest: C00-C97: All cancer types. Click here to learn more.
Data access: partially publicly available. Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website: click here to access. Instructions to request data for restricted content: click here to access.
Contact information: Click here to access.
databaseType::registry
dataOwner::Instituto Português de Oncologia de Lisboa Francisco Gentil (IPOLFG)
databaseStructure::longitudinal
hasVariable::types of visits
hasVariable::number of visits
hasVariable::periodicity of physician consultation
hasVariable::diagnosis
hasVariable::primary tumour localization
hasVariable::tumour staging
hasVariable::risk of cancer
hasVariable::tumour histology
hasVariable::medical procedures
hasVariable::causes of death
hasVariable::year
hasVariable::sex
hasVariable::region
hasDataDictionary::Data Dictionary: Southern Regional Oncology Registry (ROR-Sul) (Portugal)
availableVariable::cancer incidence
availableVariable::number of deaths
availableVariable::cancer survival
availableVariable::year
availableVariable::age
availableVariable::diagnosis
availableVariable::sex
availableVariable::region
availableVariable::causes of death
availableVariable::primary tumour localization
availableVariable::tumour histology
availableVariable::tumour staging
dataLevel::patient level
availableDataLevel::regional level
numberRecords::unknown
dataEnd::2017
dataStart::1998
hasCancerType::C00-C97: All cancer types
dataAvailability::partially publicly available
hasDataAccessInstructions::[https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf click here to access
isDatabase
hasCancerType::C00-D48: All neoplasms
hasCancerType::C00-C14: Mouth/throat cancers
hasCancerType::C15-C26: Digestive system cancers
hasCancerType::C30-C39: Lung/chest cancers
hasCancerType::C40-C41: Bone cancers
hasCancerType::C43-C44: Skin cancers/melanoma
hasCancerType::C45-C49: Soft tissue cancer
hasCancerType::C50: Breast cancer
hasCancerType::C51-C58: Female genitalia cancers
hasCancerType::C60-C63: Male genitalia cancer
hasCancerType::C64-C68: Urinary system cancers
hasCancerType::C69-C72: Eye and brain cancer
hasCancerType::C73-C75: Thyroid and other gland cancers
hasCancerType::C76-C80: Cancers of unknown or unspecified areas
hasCancerType::C81-C96: Cancers of the blood and immune system
hasCancerType::C97-C97: Cancers in multiple locations from the start
hasCancerType::D00-D09: Early-stage cancers not yet spread
hasCancerType::D10-D36: Benign tumour
hasCancerType::D37-D48: Growths of uncertain nature
hasCancerType::unknown
