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Type of database: administrative/claims data.
Primary purpose: To organize and oversee the utilization of cancer medications nationally.
Sponsor, manager or home institution: National Cancer Control Programme (NCCP); Health Service Executive; National Cancer Drug Management Programme; Primary Care Reimbursement Service (PCRS).
Type of information: longitudinal. Data dictionary is not available. Patient demographics, number of drugs, usage of cancer drugs, and expenditures on cancer medications; Other patients' information comprises their name, date of birth, sex, address, and contact details (if provided), as well as their PPS or medical card number or long-term illness card number (if available). Click here to learn more.
Source of Information: The hospital personnel enters the necessary data into an internet-based system supervised and run by PCRS. PCRS provides NCCP with anonymous and combined reports generated from the system. The data is gathered every month.
Data level: patient level.
Number of records: 21,030 claims submitted – 2021; 17,019 claims submitted – 2020; 15,640 claims submitted - 2019.
Date range: Data collection started in September 2012, and reporting procedure began in April 2013 onwards.
Cancer areas of interest: C00-D48: All neoplasms.
Data access: not publicly available. Instructions to request data for restricted content click here to access.
Contact information: Click here to access.
Mouth
Throat
Oropharynx
Nasopharynx
Hypopharynx
Larynx
Salivary glands
Lips
Tonsils
base of tongue
Voice box
Esophagus
Stomach
Small intestine
Large intestine
Colon
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Lung
Trachea
Bronchi
Pleura
Mediastinum
Bone
Cartilage
Osteosarcoma
Ewings sarcoma
Skin
Melanoma
Scalp
Lips
Hands
Feet
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Lobular
Breast
Nipple
Areola
Ductal
Vulva
Vagina
Cervix
Uterus
Ovary
Fallopian tubes
Endometrium
Prostate
Testicles
Penis
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Peritoneum
Pericardium
Retroperitoneum
Mesothelium
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::administrative/claims data
dataOwner::National Cancer Control Programme (NCCP)
dataOwner::Health Service Executive
dataOwner::National Cancer Drug Management Programme
dataOwner::Primary Care Reimbursement Service (PCRS)
databaseStructure::longitudinal
hasVariable::number of drugs
hasVariable::medication use|cancer drugs
hasVariable::healthcare costs|expenditures on cancer medications
hasVariable::age|date of birth
hasVariable::sex
hasVariable::place of residence|address
dataLevel::patient level
dataStart::2012
dataEnd::onwards
dataAvailability::not publicly available
isDatabase
hasCancerType::C00-D48: All neoplasms
hasCancerType::C00-C97: All cancer types
hasCancerType::C00-C14: Mouth/throat cancers
hasCancerType::C15-C26: Digestive system cancers
hasCancerType::C30-C39: Lung/chest cancers
hasCancerType::C40-C41: Bone cancers
hasCancerType::C43-C44: Skin cancers/melanoma
hasCancerType::C45-C49: Soft tissue cancer
hasCancerType::C50: Breast cancer
hasCancerType::C51-C58: Female genitalia cancers
hasCancerType::C60-C63: Male genitalia cancer
hasCancerType::C64-C68: Urinary system cancers
hasCancerType::C69-C72: Eye and brain cancer
hasCancerType::C73-C75: Thyroid and other gland cancers
hasCancerType::C76-C80: Cancers of unknown or unspecified areas
hasCancerType::C81-C96: Cancers of the blood and immune system
hasCancerType::C97-C97: Cancers in multiple locations from the start
hasCancerType::D00-D09: Early-stage cancers not yet spread
hasCancerType::D10-D36: Benign tumour
hasCancerType::D37-D48: Growths of uncertain nature
hasCancerType::unknown
