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Type of database: registry
Primary purpose: To map the occurrence and change of cancer diseases over time.
Sponsor, manager or home institution: Socialstyrelsen.
Type of information: cross-sectional. age, year, diagnosis, primary tumour localization, tumour histology, tumour staging, hospital location, number of deaths, causes of death, region, sex, place of residence.
Data Dictionary: Socialstyrelsen Cancer Registry.
Click here to learn more.
Available type of information: number of diagnostics; Cases per 100,000; cancer incidence; age; sex; diagnosis, and year.
Source of Information: The data is sent from hospitals to six regional cancer centers for coding and registration. Once the material has been verified, it is then transmitted to the National Board of Health and Welfare to become part of the cancer registry. The registry is updated annually.
Data level: patient level.
Available data level: regional level and national level.
Number of records: 60,000 cases registered every year. Click here to learn more.
Date range: 1970 onwards.
Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.
Data access: partially publicly available: click here to access. Instructions to request data for restricted content: click here to learn more. Data can be downloaded in the formats CSV, XLSX. Data has access costs.
Contact information: Click here to learn more.
Mouth
Throat
Oropharynx
Nasopharynx
Hypopharynx
Larynx
Salivary glands
Lips
Tonsils
base of tongue
Voice box
Esophagus
Stomach
Small intestine
Large intestine
Colon
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Lung
Trachea
Bronchi
Pleura
Mediastinum
Bone
Cartilage
Osteosarcoma
Ewings sarcoma
Skin
Melanoma
Scalp
Lips
Hands
Feet
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Lobular
Breast
Nipple
Areola
Ductal
Vulva
Vagina
Cervix
Uterus
Ovary
Fallopian tubes
Endometrium
Prostate
Testicles
Penis
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Peritoneum
Pericardium
Retroperitoneum
Mesothelium
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::registry
dataOwner::Socialstyrelsen
databaseStructure::cross-sectional
hasVariable::age
hasVariable::year
hasVariable::diagnosis
hasVariable::primary tumour localization
hasVariable::tumour histology
hasVariable::tumour staging
hasVariable::hospital location
hasVariable::number of deaths
hasVariable::causes of death
hasVariable::region
hasVariable::sex
hasVariable::place of residence
hasDataDictionary::Data Dictionary: Socialstyrelsen Cancer Registry
availableVariable::cancer incidence
availableVariable::age
availableVariable::sex
availableVariable::diagnosis
availableVariable::year
dataLevel::patient level
availableDataLevel::regional level
availableDataLevel::national level
dataStart::1970
dataEnd::onwards
dataAvailability::partially publicly available
hasDataAccessInstructions::[https://bestalladata.socialstyrelsen.se/ click here to learn more
hasDownloadableData::CSV
hasDownloadableData::XLSX
hasDataAccessCosts::Data has access costs
isDatabase
hasCancerType::C00-D48: All neoplasms
hasCancerType::C00-C97: All cancer types
hasCancerType::C00-C14: Mouth/throat cancers
hasCancerType::C15-C26: Digestive system cancers
hasCancerType::C30-C39: Lung/chest cancers
hasCancerType::C40-C41: Bone cancers
hasCancerType::C43-C44: Skin cancers/melanoma
hasCancerType::C45-C49: Soft tissue cancer
hasCancerType::C50: Breast cancer
hasCancerType::C51-C58: Female genitalia cancers
hasCancerType::C60-C63: Male genitalia cancer
hasCancerType::C64-C68: Urinary system cancers
hasCancerType::C69-C72: Eye and brain cancer
hasCancerType::C73-C75: Thyroid and other gland cancers
hasCancerType::C76-C80: Cancers of unknown or unspecified areas
hasCancerType::C81-C96: Cancers of the blood and immune system
hasCancerType::C97-C97: Cancers in multiple locations from the start
hasCancerType::D00-D09: Early-stage cancers not yet spread
hasCancerType::D10-D36: Benign tumour
hasCancerType::D37-D48: Growths of uncertain nature
hasCancerType::unknown
