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Type of database: administrative/claims data.
Primary purpose: The patient register serves multiple purposes. One of its main functions is to track the health development of the population over an extended period. In doing so, it helps to improve the possibilities of preventing and treating diseases. Additionally, the patient register contributes to the overall development of healthcare by providing valuable data and insights. It also enables healthcare providers to monitor the quality of their operations and identify areas where improvements may be needed.
Sponsor, manager or home institution: Socialstyrelsen.
Type of information: longitudinal. age, sex, marital status, place of residence, diagnosis, medical procedures, hospital location, type of medical activity, medication use, hospital discharges, type of patient discharge, length of stay, number of visits, types of visits, year.
Data Dictionary: Socialstyrelsen National Patient Register.
Click here to learn more.
Source of information: Healthcare providers must submit patient information to the patient register monthly, including hospital code and medical area. Data is submitted via a reporting portal or register service.
Data level: patient level.
Number of records: unknown.
Date range: 1964 onwards.
Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.
Data access: not publicly available. Instructions to request data for restricted content: click here to learn more. Data has access costs. Click here to learn more.
Contact information: Click here to learn more.
Mouth
Throat
Oropharynx
Nasopharynx
Hypopharynx
Larynx
Salivary glands
Lips
Tonsils
base of tongue
Voice box
Esophagus
Stomach
Small intestine
Large intestine
Colon
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Lung
Trachea
Bronchi
Pleura
Mediastinum
Bone
Cartilage
Osteosarcoma
Ewings sarcoma
Skin
Melanoma
Scalp
Lips
Hands
Feet
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Lobular
Breast
Nipple
Areola
Ductal
Vulva
Vagina
Cervix
Uterus
Ovary
Fallopian tubes
Endometrium
Prostate
Testicles
Penis
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Peritoneum
Pericardium
Retroperitoneum
Mesothelium
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::administrative/claims data
dataOwner::Socialstyrelsen
databaseStructure::longitudinal
hasVariable::age
hasVariable::sex
hasVariable::marital status
hasVariable::place of residence
hasVariable::diagnosis
hasVariable::medical procedures
hasVariable::hospital location
hasVariable::type of medical activity
hasVariable::medication use
hasVariable::hospital discharges
hasVariable::type of patient discharge
hasVariable::length of stay
hasVariable::number of visits
hasVariable::types of visits
hasVariable::year
hasDataDictionary::Data Dictionary: Socialstyrelsen National Patient Register
dataLevel::patient level
numberRecords::unknown
dataStart::1964
dataEnd::onwards
dataAvailability::not publicly available
hasDataAccessInstructions::[https://bestalladata.socialstyrelsen.se/ click here to learn more
hasDataAccessCosts::Data has access costs
isDatabase
hasCancerType::C00-D48: All neoplasms
hasCancerType::C00-C97: All cancer types
hasCancerType::C00-C14: Mouth/throat cancers
hasCancerType::C15-C26: Digestive system cancers
hasCancerType::C30-C39: Lung/chest cancers
hasCancerType::C40-C41: Bone cancers
hasCancerType::C43-C44: Skin cancers/melanoma
hasCancerType::C45-C49: Soft tissue cancer
hasCancerType::C50: Breast cancer
hasCancerType::C51-C58: Female genitalia cancers
hasCancerType::C60-C63: Male genitalia cancer
hasCancerType::C64-C68: Urinary system cancers
hasCancerType::C69-C72: Eye and brain cancer
hasCancerType::C73-C75: Thyroid and other gland cancers
hasCancerType::C76-C80: Cancers of unknown or unspecified areas
hasCancerType::C81-C96: Cancers of the blood and immune system
hasCancerType::C97-C97: Cancers in multiple locations from the start
hasCancerType::D00-D09: Early-stage cancers not yet spread
hasCancerType::D10-D36: Benign tumour
hasCancerType::D37-D48: Growths of uncertain nature
hasCancerType::unknown
