Database: Andmebaas Cancer Registry (Estonia)
Sponsor, manager or home institution: The Health Statistics and Health Research Database; The National Institute for Health Development.
Primary purpose: The main task of the cancer registry is to ensure the most complete and reliable registration of cancer cases.
Type of information: Diagnosis, i.e. detailed location, time of diagnosis, research methods that confirmed the diagnosis, morphological diagnosis and degree of malignancy, spread of the tumor; Primary treatment by type of treatment - nature of treatment, place of treatment, date of initiation of treatment and method of treatment; Details of the person who completed the cancer notification time and cause of death or time of departure from Estonia; Patient's name, personal identification number, gender, date of birth, place of birth, place of residence at the time of diagnosis and nationality [1]. Data dictionary could not be found for this database.
Available type of information: Cases of malignant neoplasm; Age-specific incidence rate of malignant neoplasms per 100.000 inhabitants; Incidence rate of malignant neoplasms per 100.000 inhabitants filtered by specified site, sex, age group, year and county. More information about the data contained in the dataset [2].
Source of Information: Data is updated from the Estonian population register (personal data, including time of leaving the country) from the register of causes of death (death data, including the cause of death). Reporting cancer cases is mandatory for all doctors working in Estonia who diagnose or treat cancer. Forensic experts also submit data to the register.
Data level: Patient level.
Number of Records: Unknown.
Date Range: 1968 onwards.
Cancer Areas of Interest: All malignant tumors (C00-C97); Tumors in situ (D00–D09); Benign and unclear and unspecified tumors of the brain and central nervous system, as well as endocrine glands located in the brain region (D32.0–D33.9, D35.2–D35.4, D42.0–D43.9, D44.3–D44.5); Other neoplasms of lymphoid and hematopoietic tissue and similar tissues (D45-D47).
Data access: Partially publicly available [3], to access go to Population > Morbidity > Malignant neoplasms. Instructions to request data for restricted content [4].
Contact information: Information [5].
