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Type of database: administrative/claims data.
Primary purpose: Reunite administrative, financial, and medical data from hospitals all around the Netherlands, facilitating policymaking and research processes.
Sponsor, manager or home institution: Dutch Hospital Data Foundation (DHD).
Type of information: longitudinal. age, sex, place of residence, region, diagnosis, comorbidities, medical procedures, hospital location, number of patients, type of medical activity, healthcare costs, costs reimbursement, medication use, hospital discharges, type of patient discharge, length of stay, number of visits, types of visits, year.
Data dictionary - National Basic Register of Hospital Care (LBZ)
Click here to learn more (To access, open "Data model LBZ medical version 9.0" and "Data model LBZ financial version 24.0" available in the section "Data models and source tables" of the page).
There are other resources available:
The Oncological Care Monitor: it is a partnership between the Netherlands Cancer Registry (NKR) and the National Basic Register of Hospital Care (LBZ). It aims to increase the availability of information about the treatments used in each type of cancer diagnosis and the number of diagnoses for each region by combining data from the two databases. Also, there is information about palliative care and care in the last phase of life of cancer patients who died in hospital. These informations are very useful for hospitals to compare their methods and numbers with other hospitals in different regions or with the national average. Click here to learn more.
Source of information: Hospital's reports. Click here to learn more.
Data level: patient level.
Number of records: unknown.
Date range: 1991 onwards. Data referring from 1991 to 2013 are from the Dutch Medical Registration (LMR) and are also available in the registry. The National Basic Register of Hospital Care (LBZ) replaced this entity and offers standardized data from 2014 on.
Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.
Data access: not publicly available. Data has access costs. Instructions to request data for patient level LBZ restricted content Click here to learn more. Instructions to request data for Oncological Care Monitor restricted content Click here to learn more.
Contact information: Click here to learn more.
Mouth
Throat
Oropharynx
Nasopharynx
Hypopharynx
Larynx
Salivary glands
Lips
Tonsils
base of tongue
Voice box
Esophagus
Stomach
Small intestine
Large intestine
Colon
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Lung
Trachea
Bronchi
Pleura
Mediastinum
Bone
Cartilage
Osteosarcoma
Ewings sarcoma
Skin
Melanoma
Scalp
Lips
Hands
Feet
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Lobular
Breast
Nipple
Areola
Ductal
Vulva
Vagina
Cervix
Uterus
Ovary
Fallopian tubes
Endometrium
Prostate
Testicles
Penis
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Peritoneum
Pericardium
Retroperitoneum
Mesothelium
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::administrative/claims data
dataOwner::Dutch Hospital Data Foundation (DHD)
databaseStructure::longitudinal
hasVariable::age
hasVariable::sex
hasVariable::place of residence
hasVariable::region
hasVariable::diagnosis
hasVariable::comorbidities
hasVariable::medical procedures
hasVariable::hospital location
hasVariable::number of patients
hasVariable::type of medical activity
hasVariable::healthcare costs
hasVariable::costs reimbursement
hasVariable::medication use
hasVariable::hospital discharges
hasVariable::type of patient discharge
hasVariable::length of stay
hasVariable::number of visits
hasVariable::types of visits
hasVariable::year
hasDataDictionary::Data dictionary - National Basic Register of Hospital Care (LBZ)
hasVariable::palliative care
dataLevel::patient level
numberRecords::unknown
dataStart::1991
dataEnd::onwards
dataAvailability::not publicly available
hasDataAccessCosts::Data has access costs
hasDataAccessInstructions::[https://www.dhd.nl/producten-diensten/registratie-data/aanvraag-van-ziekenhuisdata Click here to learn more
hasDataAccessInstructions::[https://www.dhd.nl/over-ons/toegang-tot-producten Click here to learn more
isDatabase
hasCancerType::C00-D48: All neoplasms
hasCancerType::C00-C97: All cancer types
hasCancerType::C00-C14: Mouth/throat cancers
hasCancerType::C15-C26: Digestive system cancers
hasCancerType::C30-C39: Lung/chest cancers
hasCancerType::C40-C41: Bone cancers
hasCancerType::C43-C44: Skin cancers/melanoma
hasCancerType::C45-C49: Soft tissue cancer
hasCancerType::C50: Breast cancer
hasCancerType::C51-C58: Female genitalia cancers
hasCancerType::C60-C63: Male genitalia cancer
hasCancerType::C64-C68: Urinary system cancers
hasCancerType::C69-C72: Eye and brain cancer
hasCancerType::C73-C75: Thyroid and other gland cancers
hasCancerType::C76-C80: Cancers of unknown or unspecified areas
hasCancerType::C81-C96: Cancers of the blood and immune system
hasCancerType::C97-C97: Cancers in multiple locations from the start
hasCancerType::D00-D09: Early-stage cancers not yet spread
hasCancerType::D10-D36: Benign tumour
hasCancerType::D37-D48: Growths of uncertain nature
hasCancerType::unknown
Head
Neck
Oral
Oral cavity
Pharynx
Pharyngeal
Tongue
Lingual
Nasal cavity
Nasal
Sinonasal
Sinus
Sinuses
Paranasal sinuses
Ear
Mandible
Maxilla
Jaw
Esophageal
Gastric
Intestinal
Bowel
Colorectal
Appendix
Appendiceal
Duodenum
Jejunum
Ileum
Anal
Perianal
Hepatic
Biliary
Hepatobiliary
Pulmonary
Thorax
Thoracic
Chest
Mediastinal
Pleural
Cutaneous
Dermal
Epidermal
Subcutaneous
Skeletal
Osseous
Chondral
Extremity
Axilla
Axillary
Mammary
Cervical
Uterine
Endometrial
Ovarian
Tubal
Fallopian
Vaginal
Vulvar
Adnexal
Renal
Urothelial
Ureteral
Urethral
Prostatic
Testicular
Penile
Ocular
Orbital
Retinal
Optic nerve
Meninges
Meningeal
Cerebral
Cerebellar
Brainstem
Lymphatic
Lymphoid
Lymphoma
Hematologic
Hematopoietic
Myeloma
Plasma cell
Diaphragm
Peripheral nerve
Heart
Cardiac
Endocrine
