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Type of database: registry.
Primary purpose: Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance.
Sponsor, manager or home institution: Oncological Institute of Cluj (IOCN).
Type of information: longitudinal. year; age; sex; place of residence; hospital location; diagnosis; primary tumour localization; tumour histology; tumour staging; medical procedures; causes of death; number of deaths; cancer incidence.
Data Dictionary: Database: North-West Regional Cancer Registry.
Available type of information: cancer incidence; region; diagnosis; year; sex; Annual incidence by 100.000 inhabitants;
Sexual rate (M/F) of new cases of cancer; Percentage distribution of new cases of cancer; age group; number of deaths by cancer; Crude rate of mortality by 100.000 inhabitants; Standardized mortality rate by 100.000 inhabitants (related to the world population).
Source of Information: Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries.
Data level: patient level.
Available data level: regional level.
Number of Records: unknown.
Date Range: Regarding the county of Cluj, information is available from 2000 onwards. There is data about other counties from 2008 onwards.
Cancer Areas of Interest: C00-D48: All neoplasms. Click here to learn more. Some specific cancer locations are excluded.
Cancer areas of interest - North-West Regional Cancer Registry
Data access: partially publicly available. Click here to access. Data can be downloaded in the PDF format. Instructions to request data for restricted content click here to learn more.
Contact information: Click here to learn more.
Mouth
Throat
Oropharynx
Nasopharynx
Hypopharynx
Larynx
Salivary glands
Lips
Tonsils
base of tongue
Voice box
Esophagus
Stomach
Small intestine
Large intestine
Colon
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Lung
Trachea
Bronchi
Pleura
Mediastinum
Bone
Cartilage
Osteosarcoma
Ewings sarcoma
Skin
Melanoma
Scalp
Lips
Hands
Feet
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Lobular
Breast
Nipple
Areola
Ductal
Vulva
Vagina
Cervix
Uterus
Ovary
Fallopian tubes
Endometrium
Prostate
Testicles
Penis
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Peritoneum
Pericardium
Retroperitoneum
Mesothelium
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::registry
dataOwner::Oncological Institute of Cluj (IOCN)
databaseStructure::longitudinal
hasVariable::year
hasVariable::age
hasVariable::sex
hasVariable::place of residence
hasVariable::hospital location
hasVariable::diagnosis
hasVariable::primary tumour localization
hasVariable::tumour histology
hasVariable::tumour staging
hasVariable::medical procedures
hasVariable::causes of death
hasVariable::number of deaths
hasVariable::cancer incidence
hasDataDictionary::Data Dictionary: Database: North-West Regional Cancer Registry
availableVariable::cancer incidence
availableVariable::region
availableVariable::diagnosis
availableVariable::year
availableVariable::sex
availableVariable::age
availableVariable::number of deaths
availableVariable::number of deaths|mortality
dataLevel::patient level
availableDataLevel::regional level
numberRecords::unknown
dataStart::2000
dataEnd::onwards
dataAvailability::partially publicly available
hasDownloadableData::PDF
hasDataAccessInstructions::[https://www.old.iocn.ro/en/modul--Contact.html click here to learn more
isDatabase
hasCancerType::C00-D48: All neoplasms
hasCancerType::C00-C97: All cancer types
hasCancerType::C00-C14: Mouth/throat cancers
hasCancerType::C15-C26: Digestive system cancers
hasCancerType::C30-C39: Lung/chest cancers
hasCancerType::C40-C41: Bone cancers
hasCancerType::C43-C44: Skin cancers/melanoma
hasCancerType::C45-C49: Soft tissue cancer
hasCancerType::C50: Breast cancer
hasCancerType::C51-C58: Female genitalia cancers
hasCancerType::C60-C63: Male genitalia cancer
hasCancerType::C64-C68: Urinary system cancers
hasCancerType::C69-C72: Eye and brain cancer
hasCancerType::C73-C75: Thyroid and other gland cancers
hasCancerType::C76-C80: Cancers of unknown or unspecified areas
hasCancerType::C81-C96: Cancers of the blood and immune system
hasCancerType::C97-C97: Cancers in multiple locations from the start
hasCancerType::D00-D09: Early-stage cancers not yet spread
hasCancerType::D10-D36: Benign tumour
hasCancerType::D37-D48: Growths of uncertain nature
hasCancerType::unknown
Head
Neck
Oral
Oral cavity
Pharynx
Pharyngeal
Tongue
Lingual
Nasal cavity
Nasal
Sinonasal
Sinus
Sinuses
Paranasal sinuses
Ear
Mandible
Maxilla
Jaw
Esophageal
Gastric
Intestinal
Bowel
Colorectal
Appendix
Appendiceal
Duodenum
Jejunum
Ileum
Anal
Perianal
Hepatic
Biliary
Hepatobiliary
Pulmonary
Thorax
Thoracic
Chest
Mediastinal
Pleural
Cutaneous
Dermal
Epidermal
Subcutaneous
Skeletal
Osseous
Chondral
Extremity
Axilla
Axillary
Mammary
Cervical
Uterine
Endometrial
Ovarian
Tubal
Fallopian
Vaginal
Vulvar
Adnexal
Renal
Urothelial
Ureteral
Urethral
Prostatic
Testicular
Penile
Ocular
Orbital
Retinal
Optic nerve
Meninges
Meningeal
Cerebral
Cerebellar
Brainstem
Lymphatic
Lymphoid
Lymphoma
Hematologic
Hematopoietic
Myeloma
Plasma cell
Diaphragm
Peripheral nerve
Heart
Cardiac
Endocrine
