Survey: Family Studies of Childhood Cancer - Genealogy Database (Sweden)

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Type of database: genomics.

Primary purpose: To establish a genealogy database incorporating DNA from new cases of childhood cancer, facilitating genetic research in children with cancer in the southern healthcare region.

Sponsor, manager or home institution: Lund University; Region Skåne.

Type of information: cross-sectional. age, place of residence, diagnosis, primary tumour localization, comorbidities, cancer incidence, risk of cancer, carcinogenicity, self-reported prevalence of chronic diseases. All new and existing cases of childhood cancer in southern Sweden, focusing on patients aged ≤18 with malignant diseases, and includes genetic information, familial cancer history, and details about cancer diagnoses in relatives. Click here to learn more.

Source of information: Children with less than 18 years of age recently diagnosed with malignancy and those visiting Lund's Skåne University Hospital for follow-up after completing treatment were invited to join the study.

Data level: respondent level.

Number of records: Until 2014, 650 children have been included, as well as blood from 125 parents.

Date range: 2008 onwards.

Cancer areas of interest: C00-C97: All cancer types. Click here to learn more.

Data access: not publicly available. Dataset information and contact to request data: click here to access. Instructions to request data for restricted content: click here to learn more.

Contact information: Click here to learn more.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::genomics dataOwner::Lund University dataOwner::Region Skåne databaseStructure::cross-sectional hasVariable::age hasVariable::place of residence hasVariable::diagnosis hasVariable::comorbidities hasVariable::cancer incidence hasVariable::risk of cancer hasVariable::carcinogenicity dataLevel::respondent level dataStart::2008 dataEnd::onwards isDatabase hasCancerType::C00-D48: All neoplasms hasCancerType::C40-C41: Bone cancers hasCancerType::C50: Breast cancer Head Neck Oral Oral cavity Pharynx Pharyngeal Tongue Lingual Nasal cavity Nasal Sinonasal Sinus Sinuses Paranasal sinuses Ear Mandible Maxilla Jaw Esophageal Gastric Intestinal Bowel Colorectal Appendix Appendiceal Duodenum Jejunum Ileum Anal Perianal Hepatic Biliary Hepatobiliary Pulmonary Thorax Thoracic Chest Mediastinal Pleural Cutaneous Dermal Epidermal Subcutaneous Skeletal Osseous Chondral Extremity Axilla Axillary Mammary Cervical Uterine Endometrial Ovarian Tubal Fallopian Vaginal Vulvar Adnexal Renal Urothelial Ureteral Urethral Prostatic Testicular Penile Ocular Orbital Retinal Optic nerve Meninges Meningeal Cerebral Cerebellar Brainstem Lymphatic Lymphoid Lymphoma Hematologic Hematopoietic Myeloma Plasma cell Diaphragm Peripheral nerve Heart Cardiac Endocrine