Czech Republic: Difference between revisions
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=== [[hasDatabase::Database:_ÚZIS_National_Cancer_Registry_(Czech_Republic)|Database: ÚZIS National Cancer Registry]]=== | === [[hasDatabase::Database:_ÚZIS_National_Cancer_Registry_(Czech_Republic)|Database: ÚZIS National Cancer Registry]]=== | ||
'''Sponsor, manager or home institution:''' Ústav zdravotnických informací a statistiky ČR. | '''Sponsor, manager or home institution:''' Ústav zdravotnických informací a statistiky ČR. | ||
| Line 93: | Line 88: | ||
'''Source of Information:''' Healthcare providers who diagnose or treat neoplasms, as well as providers in the fields of pathology and cytology. | '''Source of Information:''' Healthcare providers who diagnose or treat neoplasms, as well as providers in the fields of pathology and cytology. | ||
'''Data level:''' | '''Data level:''' patient level. | ||
'''Number of Records:''' | '''Number of Records:''' unknown. | ||
'''Date Range:''' 1959 onwards [https://www.uzis.cz/index.php?pg=registry-sber-dat--narodni-zdravotni-registry--narodni-onkologicky-registr#publikace]. | '''Date Range:''' 1959 onwards [https://www.uzis.cz/index.php?pg=registry-sber-dat--narodni-zdravotni-registry--narodni-onkologicky-registr#publikace]. | ||
'''Cancer Areas of Interest:''' | '''Cancer Areas of Interest:''' malignant neoplasms (C00-C97). | ||
'''Data access:''' | '''Data access:''' partially publicly available. Screening information: Mammography [https://www.nzip.cz/datova-sada/106], Colorectal [https://www.nzip.cz/datova-sada/105] and Cervical [https://www.nzip.cz/datova-sada/1]. Reports information: [https://www.uzis.cz/index.php?pg=registry-sber-dat--narodni-zdravotni-registry--narodni-onkologicky-registr#publikace]. Instructions to request data for restricted content [https://www.uzis.cz/index.php?pg=registry-sber-dat--registrace-a-vstup-do-registru]. | ||
'''Contact information:''' Information [https://www.uzis.cz/index.php?pg=registry-sber-dat--narodni-zdravotni-registry--narodni-onkologicky-registr#o-registru]. | '''Contact information:''' Information [https://www.uzis.cz/index.php?pg=registry-sber-dat--narodni-zdravotni-registry--narodni-onkologicky-registr#o-registru]. | ||
Revision as of 22:10, 25 November 2023
Go back to Cancer Centers list.
Cancer Centers
Healthcare System
The Czech Republic operates a compulsory, universal healthcare system based on a social health insurance model. This system provides healthcare services to all citizens and residents, regardless of their financial means or employment status. The healthcare system is primarily funded through payroll taxes, with contributions from both employees and employers, as well as government subsidies.
The healthcare system is managed at the national level by the Ministry of Health of the Czech Republic. The country is divided into 14 administrative regions, each with its own Regional Authority, which oversees the implementation of healthcare policies and services within its jurisdiction. Additionally, the Czech Republic has a network of public health insurance funds, with the largest being the General Health Insurance Company (VZP). These insurance funds are responsible for administering and distributing healthcare funds to providers.
The population of the Czech Republic receives a wide range of healthcare benefits through the system, including primary care, specialist care, hospital care, dental care, emergency care, maternity care, preventive services, mental health services, prescription medications, and rehabilitation services. These services are provided to citizens and residents with minimal or no out-of-pocket expenses.
To access healthcare benefits, individuals must be registered with a public health insurance fund and possess a valid health insurance card. Czech citizens are automatically enrolled in the system at birth, while non-citizen residents must register within 90 days of arrival in the country or commencement of employment. Employed individuals and their employers contribute to the system through payroll taxes, while the government covers the contributions for children, students, pensioners, and other vulnerable groups.
The Czech Republic's healthcare system is transitioning towards a more digitized and integrated model. Electronic health records (EHRs) are being implemented across healthcare providers, enabling more efficient access to patient information and better care coordination. The National Registry of Electronic Health Records (NREH) is responsible for the creation, storage, and management of EHRs. Claims data and health registries are also being modernized and digitized to streamline processes, enhance data accuracy, and improve overall healthcare system efficiency.
Administrative or Claims Data
Database: ÚZIS National register of hospitalized patients
Sponsor, manager or home institution: Ústav zdravotnických informací a statistiky ČR.
Primary purpose: To obtain information on the health status of the population and evaluate the activities of individual inpatient facilities and their departments.
Type of information: Data Dictionary: ÚZIS National register of hospitalized patients. More metadata information [1].
Available type of information: duration of hospitalization, age, year, type of cancer, sex, place of residence, type of medical activity, number of patients, hospital discharges, medical procedure, hospital location [2].
Source of Information: Mandatory reporting from inpatient care medical facilities, excluding spa clinics and sanatoriums, where patient hospitalizations have been terminated.
Data level: patient level.
Available data level: regional level.
Number of Records: unknown.
Date Range: 1960 onwards.
Cancer Areas of Interest: malignant neoplasms (C00-C97).
Data access: partially publicly available [3]. Instructions to request data for restricted content [4].
Contact information: Information [5].
Database: National Register of Reimbursed Health Services (NRHZS)
Sponsor, manager or home institution: Ústav zdravotnických informací a statistiky ČR.
Primary purpose: To collect data for the National Register of Paid Health Services, facilitating statistical analysis, healthcare optimization, and supporting scientific research.
Type of information: Data Dictionary: National Register of Reimbursed Health Services (NRHZS). More metadata information and a data dictionary [6].
Available type of information: number of medical staff, remuneration of staff, year, hospital location.
Source of Information: Health insurance companies (Zdravotní pojišťovna) that provide data to the Register.
Data level: patient level.
Number of Records: unknown.
Date Range: unknown.
Cancer Areas of Interest: unknown.
Data access: partially publicly available [7]. More data can also be seen here [8]. Instructions to request data for restricted content [9].
Contact information: Contact information [10].
Registries
Database: ÚZIS National Cancer Registry
Sponsor, manager or home institution: Ústav zdravotnických informací a statistiky ČR.
Primary purpose: To register oncological diseases and monitor their development for statistical overviews, epidemiological studies, and health research.
Type of information: Data Dictionary: Czech Republic's National Cancer Registry. More metadata information [11].
Source of Information: Healthcare providers who diagnose or treat neoplasms, as well as providers in the fields of pathology and cytology.
Data level: patient level.
Number of Records: unknown.
Date Range: 1959 onwards [12].
Cancer Areas of Interest: malignant neoplasms (C00-C97).
Data access: partially publicly available. Screening information: Mammography [13], Colorectal [14] and Cervical [15]. Reports information: [16]. Instructions to request data for restricted content [17].
Contact information: Information [18].
Database: ÚZIS Cause of Death Register
Sponsor, manager or home institution: Ústav zdravotnických informací a statistiky ČR.
Primary purpose: To collect data on deceased individuals and the circumstances of their death to create mortality and causes of death statistics.
Type of information: Data Dictionary: ÚZIS Cause of Death Register. More metadata information [19].
Source of Information: Doctors who perform examinations or autopsies of deceased individuals.
Data level: Patient level.
Number of Records: Unknown.
Date Range: Unknown.
Cancer Areas of Interest: Unknown.
Data access: Partially publicly available [20]. Instructions to request data for restricted content [21].
Contact information: Information [22].
Database: Register of Medical Devices
Sponsor, manager or home institution: Coordination Centre for Departmental Medical Information Systems (KSRZIS); Státní ústav pro kontrolu léčiv (SUKL); Ministerstvo zdravotnictví.
Primary purpose: To collect data on registered persons handling medical devices, information on notified medical devices, on certificates issued by notified persons based in the Czech Republic, about adverse events and about safety corrective measures and information about clinical trials.
Type of information: The data set includes information about registered individuals in RZPRO and the medical devices they have notified, containing details about the person, the associated activity, and the validity of the device.
Available type of information: Data Dictionary: Register of Medical Devices.
Source of Information: Authorized representatives, importers, distributors, persons engaged in servicing medical devices, sponsors of clinical trials, and Notified Bodies for medical devices who notify the Ministry of Health of their purchases and activities.
Data level: Individual level.
Number of Records: Unknown.
Date Range: 2015 onwards.
Cancer Areas of Interest: Unknown.
Data access: Partially publicly available [23]. Instructions to request data for restricted content [24].
Contact information: information [25].
Databases for Clinical Trials, Surveys and Biobanks
Survey: European Health Interview Survey - EHIS
Primary purpose: To collect health-related data of the Czech population.
Sponsor, manager or home institution: Institute of Health Information and Statistics of the Czech Republic.
Type of information: Characteristics of health status; gender; age groups; Year; Incidence of selected health problems; Body mass index, fruit and vegetable consumption and physical activity; Smokers of tobacco products and alcohol consumption; Use of preventive care.
Data level: Respondent level.
Number of Records: About 26,999 interviews in the Czech Republic.
Date Range: 1993 onwards.
Cancer Areas of Interest: Unknown.
Data access: Partially publicly available [26]. Instructions to request data for restricted content [27].
Contact information: Information [28].
Clinical Practices Guidelines
KDP Guidelines
Sponsor, manager or home institution: Agency for Health Research of the Czech Republic (AZV ČR).
Primary purpose: To propose a standardized system for creating and updating KDP (Key Disease Proposals) in the Czech Republic, aiming to improve the availability, quality, and efficiency of health services through the establishment of governing bodies, methodological frameworks, and educational initiatives.
Type of information: Guidelines about diagnoses, treatments, follow up, quality of life measures, prevention and care of many types of cancer.
Access to information: List of guidelines [29].
Latest Policymaking Initiatives
Compilation: ÚZIS Statistical Outputs
Sponsor, manager or home institution: Ústav zdravotnických informací a statistiky ČR.
Primary purpose: Provide compiled statistical information based on databases managed by the institute.
Type of information: Reports on cancer incidence, hospitalizations, pharmacy care, and medical equipment, among other information.
Data Level: National level.
Access to information: Reports information [30].
Compilation: SVOD Reports
Sponsor, manager or home institution: Ústav zdravotnických informací a statistiky ČR; Ministry of Health of the Czech Republic.
Primary purpose: To offer accessible and comprehensive tumor epidemiology data for users in the Czech Republic and abroad, providing updated information, interactive analyses, and relevant presentations.
Type of information: Cancer incidence, prevalence, and the number of cancer patients treated with anti-tumor therapy; Cancer mortality; Cancer survival.
Data level: National level.
Access to information: Access Information [31].
Report: EU Country Cancer Profile 2023
Sponsor, manager or home institution: OECD and European Commission.
Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
Data level: National level.
Access to information: Access Information [32].
Compilation: ESMO Patient Guides
Sponsor, manager or home institution: European Society for Medical Oncology
Primary purpose: To translate complex medical language into understandable information for patients.
Available guides: Pancreatic Carcinoma.
Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
Access to information: List of guides [33].
Patient Association: Asociace mužů sobě
Primary purpose: To support men with prostate cancer through discussions, expert guidance, and reconditioning programs to improve their treatment outcomes and quality of life.
Contact Information: Information [34].
Patient Association: Amelie
Primary purpose: To provide psychosocial support and promote social integration for oncology patients and their families in the Czech Republic through various advisory, therapeutic, and motivational activities while complementing medical care.
Contact Information: Information [35].
Patient Association: Český občanský spolek proti plicním nemocem - ČOPN
Primary purpose: To raise awareness of lung diseases, improve the quality of life for patients with lung conditions, promote modern treatment trends, enhance mutual awareness among professionals and the public, and advocate for the interests of pulmonary patients with other organizations and institutions.
Contact Information: Information [36].
Patient Association: Diagnóza leukemie
Primary purpose: To represent the views and opinions of patients with malignant blood diseases, improve conditions for treatment, provide educational programs, and advocate for patients' interests in dealings with medical societies and healthcare institutions.
Contact Information: Information [37].
Patient Association: Klub pacientů mnohočetný myelom
Primary purpose: To provide quality information, facilitate communication, and support patients diagnosed with multiple myeloma and their loved ones, aiming to improve their understanding and management of this rare disease.
Contact Information: Information [38].
Patient Association: Lymphom Help
Primary purpose: To unite individuals affected by malignant lymphoma, including patients, their families, healthcare professionals, and friends, to enhance information sharing, visibility of the disease, and support for those dealing with lymphoma.
Contact Information: Information [39].
Patient Association: Maminy s Rakovinou
Primary purpose: To provide support, information, and a sense of community for mothers battling cancer and their families, addressing both their emotional and practical needs during this challenging period.
Contact Information: Information [40].
Patient Association: Veronica
Primary purpose: To unite and support patients with gynecological cancers and BRCA genetic mutations, raise awareness about cancer prevention and treatment, and provide education and resources through various campaigns and initiatives.
Contact Information: Information [41].
Patient Association: Alen – ženy s rakovinou prsu
Primary purpose: To provide guidance, psychological support, and a sense of community for women diagnosed with breast cancer, assisting them in their journey to recovery and active life through various activities and support programs.
Contact Information: Information [42].
Patient Association: Klubu ŽAP
Primary purpose: To enhance the quality of life for women with cancer, raise awareness about cancer, provide assistance with health and social issues, offer guidance on prosthetic devices and insurance claims, and improve mental and physical well-being through education and support.
Contact Information: Information [43].
Patient Association: Liga proti rakovině Praha
Primary purpose: To reduce the death rate from cancer in the Czech Republic through continuous information, improving the quality of life for cancer patients, and supporting oncology research and modernization.
Contact Information: Information [44].
Patient Association: České ILCO
Primary purpose: To advocate for the rights of ostomies, alleviate their fears, and address health, social, and psychological challenges associated with living with an ostomy.
Contact Information: Information [45].
Quality of Life and Palliative Care Research
List of Articles: Quality of Life [46] and Palliative Care [47].
