Data Dictionary: Finnish Cancer Registry

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Cancer Registry
prefLabel	technicalName	description	partOfGroup
Identification number	personnummer eller annat forskningsnummer	personal identification number or research number	Basic variables
Sex	sex	The sex of the patient	Basic variables
Date of diagnosis	dg_date	Date of cancer diagnosis	Basic variables
Age at diagnosis	dg_age	Age at the time of diagnosis, years rounded to one decimal place	Basic variables
The primary organ of the tumour	topo	Topographic code according to the ICD-O-3 classification	Basic variables
Cytological or histological diagnosis of the tumour	morpho	Morphological code according to the ICD-O-3 classification	Basic variables
Cancer malignancy	beh	Behavior code according to the ICD-O-3 classification	Basic variables
Cancer laterality	later	Cancer laterality	Basic variables
Basis of diagnosis	basis	The surest basis of diagnosis	Basic variables
Clinical spread of the tumour	stage	Finnish Cancer Registry’s classification	Basic variables
Type of cancer	cancertype	The name of the cancer, Finnish Cancer Registry’s classification	Basic variables
Date of exit from follow-up	ex_date	Cancer follow-up end date	Basic variables
Follow-up/survival status at registry close date	exit_status	Is the person alive, dead, or living abroad at the end of follow-up	Basic variables
Home municipality on the year of finding	dg_munic_staty	Home municipality for the person who fell ill with cancer in the year of the finding according to the municipal division for the statistical year. Will not be disclosed if the person has prohibited the disclosure of his/her data.	Basic variables
Hospital district on the year of finding	dg_hosp_staty	Hospital district of diagnosis based on municipality code from statistical year. Will not be disclosed if the person has prohibited the disclosure of his/her data.	Basic variables
University hospital district of diagnosis	dg_uni_staty	University hospital district of diagnosis based on municipality code from statistical year.Will not be disclosed if the person has prohibited the disclosure of his/her data.	Basic variables
The date of birth	bi_date	Patient's birthday. The THL permit should mention the retrieval of the date of birth or social security number.	Permit specific variables
Follow-up/survival status at registry close date, unmodified	status_close	Alive, dead of this cancer, dead of causes other than this cancer, living abroad. A permit from Statistics Finland for cause of death data.	Permit specific variables
Pathology laboratory sample identifier	lab_sample_id	Laboratory-specific designation that identifies the sample. The THL permit should mention the pathology laboratory sample number.	Permit specific variables
Tumour grade	gradus	The degree of tumour differentiation (gradus) is recorded directly according to the reports. The degree is recorded primarily from the surgical specimen. The grade given for the preoperative needle sample/biopsy is always preliminary, and the grade for the surgical preparation always replaces the information for the previous needle sample.	Special variables
Spread category basis	met_def_type	TNM: TNM rating of the Cancer Registry clinical report within 4 months of diagnosis. May also be based on information provided in the pathology report in the case of a surgical specimen. Stage / Ann Arbor: A stage described in a cancer registry clinical report within 4 months of diagnosis if TNM data is missing. Verbal staging: The spread is described verbally in a clinical report within 4 months of detection if TNM and stage are missing.	Special variables
Spread category, tumour	met_tumor	See met_def_type, what information the variable includes	Special variables
Spread category, lymph node	met_lymph_node	See met_def_type, what information the variable includes	Special variables
Spread category, metastasis	met_metastases	See met_def_type, what information the variable includes	Special variables
Pathology laboratory organization identifier	org_name	Pathology laboratory organization identifier. Will not be disclosed if the person has prohibited the disclosure of his/her data.	Special variables
Diagnosis of pathology sample	pad, morpho_text, topo_text	Sample-specific, one cancer diagnosis may be associated with multiple pathological diagnoses.	Special variables
Multiple primary rank	multi	Multiple primary rank. Will be supplied upon request, definition to be agreed separately.	Special variables
Childhood cancer classification (ICCC3)	iccc3	Intern. Class. of Childhood Cancer, 3rd ed. Will be disclosed if specifically requested.	Special variables
ICD-10	iarccrtools_icd10	ICD-10 code produced by the ICD-O-3 -> ICD-10 programme of IARC CRG Tools. Automatically generated ICD-10 classes may be illogical due to changes in registration practices.	Special variables
Municipality at exit from follow-up	ex_munic_staty	Home municipality for the person who fell ill with cancer in the year of the finding according to the municipal division for the statistical year. Will not be disclosed if the person has prohibited the disclosure of his/her data.	Special variables
Hospital district at exit from follow-up	ex_hosp_staty	Hospital district of diagnosis based on municipality code from statistical year. Will not be disclosed if the person has prohibited the disclosure of his/her data.	Special variables
University hospital district at exit from follow-up	ex_uni_staty	University hospital district of diagnosis based on municipality code from statistical year.Will not be disclosed if the person has prohibited the disclosure of his/her data.	Special variables

Breast Cancer Screening
prefLabel	technicalName	description	partOfGroup
Identification number	personnummer eller annat forskningsnummer	personal identification number or research number	Basic variables
The date of birth	synt_pvm	Patient's birthday. The THL permit should mention the retrieval of the date of birth or social security number.	Permit specific variables
Invitation year	vuosi_era	Invitation year	Basic variables
Age	ika	Age at the end of the invitation year	Basic variables
Date of death	kuolin_pvm	Date of death	Basic variables
Invited	kutsuttu	The invitation to a screening visit can be found	Basic variables
Invitation municipality	k_kunta	Invitation municipality (or the municipality that made the test, if the invitation is missing) according to the municipal division for the statistical year.	Basic variables
Hospital district on the invitation year	shp	Hospital district of diagnosis based on municipality code from statistical year.	Basic variables
University hospital district on the invitation year	erva	University hospital district of diagnosis based on municipality code from statistical year.	Basic variables
Participated	osallistunut	Participated in screening	Basic variables
Date of screening	t_pvm	Date of screening visit	Basic variables
Symptoms and findings: nipple discharge	rintaer	Symptoms and findings: nipple discharge	Special variables
Symptoms and findings: lump	kyhmy	Symptoms and findings: lump	Special variables
Symptoms and findings: retraction	sisvet	Symptoms and findings: retraction	Special variables
Symptoms and findings: scar	learpi	Symptoms and findings: scar	Special variables
Symptoms and findings: breast removed	rintapois	Symptoms and findings: breast removed	Special variables
Symptoms and findings: breast cancer	rintas	Symptoms and findings: breast cancer	Special variables
Symptoms and findings: year of breast cancer diagnosis dx	rintastoddx	Symptoms and findings: year of breast cancer diagnosis dx	Special variables
Symptoms and findings: year of breast cancer diagnosis sin	rintastodsin	Symptoms and findings: year of breast cancer diagnosis sin	Special variables
Inspection/palpation: scar	arpi	Inspection/palpation: scar	Special variables
Inspection/palpation: lump	kyhmyip	Inspection/palpation: lump	Special variables
Inspection/palpation: mole/wart	luosyy	Inspection/palpation: mole/wart	Special variables
Inspection/palpation: retraction	sisvetret	Inspection/palpation: retraction	Special variables
Inspection/palpation: breast removed	rintapoisip	Inspection/palpation: breast removed	Special variables
Use of menopause hormones	vvhormon	Use of menopause hormones	Special variables
Finding; 1. radiologist dx	l1raddx	Finding; 1. radiologist dx	Special variables
Finding; 1. radiologist sin	l1radsin	Finding; 1. radiologist sin	Special variables
Finding; 2. radiologist dx	l2raddx	Finding; 2. radiologist dx	Special variables
Finding; 2. radiologist sin	l2radsin	Finding; 2. radiologist sin	Special variables
Recommended for a co-reading dx	suosyldx	Recommended for a co-reading dx	Special variables
Recommended for a co-reading sin	suosylsin	Recommended for a co-reading sin	Special variables
Result of a co-reading dx	yltudx	Result of a co-reading dx	Special variables
Result of a co-reading sin	yltusin	Result of a co-reading sin	Special variables
To confirmation examinations	uvarmdxsin	An invitation to confirmation examinations	Special variables
Date of the confirmatory mammogram	tdmapvm	Date of the confirmatory mammogram	Special variables
Tomosynthesis dx	utomodx	Tomosynthesis dx	Special variables
Tomosynthesis sin	utomosin	Tomosynthesis sin	Special variables
A finding of the confirmatory mammogram dx	tdmaloydx	A finding of the confirmatory mammogram dx	Special variables
A finding of the confirmatory mammogram sin	tdmaloysin	A finding of the confirmatory mammogram sin	Special variables
Date of other confirmation examinations	mvarmpvm	Date of other confirmation examinations	Special variables
Ultrasound dx	ultradx	Ultrasound dx	Special variables
Ultrasound sin	ultrasin	Ultrasound sin	Special variables
Pneumocystography dx	pneumodx	Pneumocystography dx	Special variables
Pneumocystography sin	pneumosin	Pneumocystography sin	Special variables
Cyst puncture dx	kystapdx	Cyst puncture dx	Special variables
Cyst puncture sin	kystapsin	Cyst puncture sin	Special variables
Galactography dx	galakdx	Galactography dx	Special variables
Galactography sin	galaksin	Galactography sin	Special variables
Radiological finding dx	radioldx	Radiological finding dx	Special variables
Radiological finding sin	radiolsin	Radiological finding sin	Special variables
Palpation dx	palpdx	Palpation dx	Special variables
Palpation sin	palpsin	Palpation sin	Special variables
The change is palpable dx	muutpalpdx	The change is palpable dx	Special variables
The change is palpable sin	muutpalpsin	The change is palpable sin	Special variables
Fine-needle biopsy breast dx	onbdx	Fine-needle biopsy breast dx	Special variables
Fine-needle biopsy breast sin	onbsin	Fine-needle biopsy breast sin	Special variables
Fine-needle biopsy armpit dx	onbkaidx	Fine-needle biopsy armpit dx	Special variables
Fine-needle biopsy armpit sin	onbkaisin	Fine-needle biopsy armpit sin	Special variables
Cytological finding dx	sytldx	Cytological finding dx	Special variables
Cytological finding sin	sytlsin	Cytological finding sin	Special variables
Date of core-needle biopsy	upnbpvm	Date of core-needle biopsy	Special variables
PNB-diagnosis 1 dx	pad1dx	PNB-diagnosis 1 dx	Special variables
PNB-diagnosis 1 sin	pad1sin	PNB-diagnosis 1 sin	Special variables
PNB-diagnosis 2 dx	pad2dx	PNB-diagnosis 2 dx	Special variables
PNB-diagnosis 2 sin	pad2sin	PNB-diagnosis 2 sin	Special variables
Date of surgical referral	lahkirpvm	Date of surgical referral	Special variables
Referral for a surgical procedure	ulahkir	Referral for a surgical procedure	Special variables
Date of surgical procedure	kirtoimpvm	Date of surgical procedure	Special variables
Main diagnosis 1 dx	pdiag1dx	1. Code of the main diagnosis, ICD-O-3 or SNOMED, dx	Special variables
Main diagnosis 1 sin	pdiag1sin	1. Code of the main diagnosis, ICD-O-3 or SNOMED, sin	Special variables
Main diagnosis 2 dx	pdiag2dx	2. Code of the main diagnosis, ICD-O-3 or SNOMED, dx	Special variables
Main diagnosis 2 sin	pdiag2sin	2. Code of the main diagnosis, ICD-O-3 or SNOMED, sin	Special variables
Other diagnosis dx	mdiagdx	Code of the other diagnosis, ICD-O-3 or SNOMED, dx	Special variables
Other diagnosis sin	mdiagsin	Code of the other diagnosis, ICD-O-3 or SNOMED, sin	Special variables
Final diagnosis	updiagdxsin	Final diagnosis	Special variables

Cervical Cancer Screening
prefLabel	technicalName	description	partOfGroup
Identification number	personnummer eller annat forskningsnummer	personal identification number or research number	Basic variables
The date of birth	synt_pvm	Patient's birthday. The THL permit should mention the retrieval of the date of birth or social security number.	Permit specific variables
Invitation year	vuosi_era	Invitation year	Basic variables
Age	ika	Age at the end of the invitation year	Basic variables
Year of death	kuolin_pvm	Year of death	Basic variables
Invited	kutsuttu	The invitation to a screening visit can be found	Basic variables
Invitation municipality	k_kunta	Invitation municipality (or the municipality that made the test, if the invitation is missing) according to the municipal division for the statistical year.	Basic variables
Hospital district on the invitation year	shp	Hospital district of diagnosis based on municipality code from statistical year.	Basic variables
University hospital district on the invitation year	erva	University hospital district of diagnosis based on municipality code from statistical year.	Basic variables
Participated	osallistunut	Participated in screening	Basic variables
Date of screening	t_pvm	Date of screening visit	Basic variables
The reason for the invitation	kutsutapa	The reason for the screening invitation	Basic variables
Screening method	seul_menetelma	Screening method	Basic variables
Screening result	seul_tulos	Coarse screening result	Basic variables
Further research result	jatko_tulos	Coarsened histological diagnosis (further research result after the screening test)	Basic variables
Atypia grade	atyp_lka	Atypia grade / Pap grade	Special variables
Interpretability	nayt_tulk	Interpretability of the sample	Special variables
General classification	ylei_luok	General classification	Special variables
Atypical squamous cells	levyepit_typ	Atypical squamous cells	Special variables
Atypical glandular cells	lierepit_typ	Atypical glandular cells	Special variables
Location of atypical squamous cells	lieratyp_sij	Location of atypical squamous cells	Special variables
HPV test result	hpvt	High-risk HPV test result	Special variables
HPV type 16	hpvt_16	High-risk HPV type 16	Special variables
HPV type 18	hpvt_18	High-riski HPV type 18	Special variables
HPV type other	hpvt_muu	High-risk HPV type other	Special variables
HPV type	hpvt_tyyp	HPV type	Special variables
Colposcopy	kolp	Referral: Colposcopy is recommended	Special variables
Endocervix scraping	endo	Referral: Endocervix scraping is recommended	Special variables
Fracted test scraping	frak	Referral: Fracted test scraping is recommended	Special variables
New sample	uusi	A new sample is recommended	Special variables
Date of referral	lah_jatk_pvm	Date of referral for further studies	Special variables
Date of diagnosis	lop_diag_pvm	Date of final diagnosis	Special variables
Diagnosis code	diag_code	Histological diagnosis code, ICD-O-3 or SNOMED (NNNN).	Special variables
Primary site	prim	The primary site of discovery	Special variables
Cancer type	syopatyyppi	Histological diagnosis/cancer type of cervical cancer (malignancy).	Special variables