Database: Cancer Registry (Lithuania)

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[1] [2]

Primary purpose: Produce a complete registration of cancer cases and cancer mortality across Lithuania.

Sponsor, manager or home institution: National Cancer Institute.

Type of information: Cancer incidence; Mortality; Prevalence; Survival; Patient name; Date of birth; Personal identification number; Place of residence; Primary tumor information; Date of diagnosis, ICD-10 code of the primary site and topography; Stage; Pathological TNM; Clinical TNM; ICD-O-3 code of morphology; Behavior; Most valid basis of diagnosis; Date source and name of the doctor who has diagnosed cancer.

Available type of information: cancer incidence rate (per 100,000 inhabitants); sex; age; Tumor location; Standardized incidence rate for the European population and for the world population (per 100,000 inhabitants); cancer survival rate; Mortality rate; Number of tumor cases; The TNM stage of the tumor; Number of survivors (after 1, 5, and 10 years from diagnosis) and relative survival (in %, after 1 and 5 years from diagnosis); Time since diagnosis.

Source of information: The register is continuously updated with reports about new cancer cases sent by primary, secondary, and tertiary healthcare institutions from across the country.

Data level: patient level.

Available data level: national level.

Number of Records: Contains information regarding the whole territory of Lithuania. Contains more than 500,000 reports and, each year, more than 20,000 new cancer cases are added to the registry.

Date range: Regarding patient level data, there is data about diagnosed cancer cases from 1978 onwards and data about cancer mortality from 1990 onwards. National level data is available from 2006 onwards.

Cancer Areas of Interest: Cancer Registry.

Data access: partially publicly available [3]. Instructions to request data for restricted content [4].

Contact information: Information [5].