Estonia: Difference between revisions

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=== [[hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database]] ===
=== [[hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database]] ===
[https://www.haigekassa.ee/en/organisation/about-us]
[https://link.springer.com/chapter/10.1007/978-3-030-51455-6_16]
'''Sponsor, manager or home institution:''' Estonian Health Insurance Fund (EHIF); The Ministry of Social Affairs.
'''Type of information:''' [[Data Dictionary: Estonian Health Insurance Fund (EHIF) Database]].
''' Available type of information:''' healthcare costs, numbers of patients; year; age; sex; diagnosis; type of medical activity; medical procedures; hospital location [https://www-tervisekassa-ee.translate.goog/koik-teenused?_x_tr_sl=auto&_x_tr_tl=en&_x_tr_hl=en&_x_tr_pto=wapp].
'''Source of Information:''' Based on claims data from all Estonian healthcare providers that have signed a contract with EHIF and deliver EHIF-financed healthcare.
'''Data level:''' patient level.
'''Available data level:''' regional level.
'''Number of Records:''' 1.3 million people, i.e. 95% of Estonia's population.
'''Date Range:''' 2004 onwards.
'''Data access:''' partially publicly available [https://www.tervisekassa.ee/koik-teenused]. Instructions to request data for restricted content [https://www.tervisekassa.ee/tervisekassa/teabenoue].
'''Contact information:''' Information [https://www.haigekassa.ee/en/organisation/contact-client-service].
</div>
</div>


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=== [[hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry]] ===
=== [[hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry]] ===
'''Sponsor, manager or home institution:''' The Health Statistics and Health Research Database; The National Institute for Health Development.
'''Primary purpose:''' The register collects and analyzes personalized data about the target group of breast, cervical and colon cancer screenings.
'''Type of information:''' Data of people belonging to the target group of screening studies; Screened research participation data and the results of the basic and additional studies performed [https://www.tai.ee/et/statistika-ja-registrid/vahi-soeluuringute-register]. Data dictionary could not be found for this database.
'''Available type of information:''' screening, sex, age, place of residence, year [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__07Soeluuringud/?tablelist=true].
'''Source of Information:''' The register collects data from health service providers through electronic mass requests through the health information system. Data is also inherited from the population register, the cause of death register, the cancer register and the health insurance data set of the health insurance fund via the X-tee data exchange layer.
'''Data level:''' patient level.
'''Number of Records:''' unknown.
'''Date Range:''' 2015 onwards.
'''Cancer Areas of Interest:''' colon cancer (C18-C20), breast cancer (C50), and cervical cancer (C53).
'''Data access:''' partially publicly available [https://statistika.tai.ee/pxweb/en/Andmebaas/], to access go to Morbidity > Cancer screening programmes. Instructions to request data for restricted content [https://www.tai.ee/et/kontakt/isikuandmete-paring].
'''Contact information:''' Information [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/02Haigestumus/07Soeluuringud/VSRinfo_en.htm#kontakt].


=== [[hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry]] ===
=== [[hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry]] ===
'''Sponsor, manager or home institution:''' The Health Statistics and Health Research Database; The National Institute for Health Development.
'''Primary purpose:''' The main task of the cancer registry is to ensure the most complete and reliable registration of cancer cases.
'''Type of information:''' [[Data Dictionary: Andmebaas Cancer Registry]] [https://www.tai.ee/et/statistika-ja-registrid/vahiregister].
'''Available type of information:''' type of cancer, sex, age, cancer incidence, place of residence [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__04PahaloomulisedKasvajad/?tablelist=true].
'''Source of Information:''' Data is updated from the Estonian population register (personal data, including time of leaving the country)
from the register of causes of death (death data, including the cause of death). Reporting cancer cases is mandatory for all doctors working in Estonia who diagnose or treat cancer. Forensic experts also submit data to the register.
'''Data level:''' patient level.
'''Available data level:''' regional level.
'''Number of Records:''' unknown.
'''Date Range:''' 1968 onwards.
'''Cancer Areas of Interest:''' malignant tumors and carcinomas in situ (C00-C96, D00-D09), benign and unclear and unspecified tumors of the brain and central nervous system (D32.0–D33.9, D35.2–D35.4, D42.0–D43.9, D44.3–D44.5), Other neoplasms of lymphoid and hematopoietic tissue and similar tissues (D45-D47).
'''Data access:''' partially publicly available [https://statistika.tai.ee/pxweb/en/Andmebaas/], to access go to Morbidity > Malignant neoplasms. Instructions to request data for restricted content [https://www.tai.ee/et/statistika-ja-registrid/vahiregister].
'''Contact information:''' Information [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/02Haigestumus/04PahaloomulisedKasvajad/PKinfo_en.htm#kontakt].


=== [[hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death]] ===
=== [[hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death]] ===
'''Sponsor, manager or home institution:''' The Health Statistics and Health Research Database; The National Institute for Health Development.
'''Primary purpose:''' The register collects and processes data on causes of death for various purposes, including the development of social policy, assessment of population health, and planning of preventive activities in the social and health sectors.
'''Type of information:''' [[Data Dictionary: Andmebaas Cause of Death]]. Personal data of the deceased (sex, county, month, age group, year and municipality); Causes and circumstances of death; Socio-demographic data of the deceased (education, last place of residence, citizenship, etc.); Details of the basic documents and their authors [https://www.tai.ee/et/statistika-ja-registrid/surma-pohjuste-register].
'''Available type of information:''' number of deaths, cause of death, age, sex, place of residence, month, year [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__01Rahvastik__04Surmad/?tablelist=true].
'''Source of Information:''' The socio-demographic data of the deceased is provided by the Estonian population register, submitted by the doctors and coroners who have established the death.
'''Data level:''' patient level.
'''Available data level:''' national level.
'''Number of Records:''' unknown.
'''Date Range:''' 1989 onwards.
'''Cancer Areas of Interest:''' [[Cancer Areas of Interest: Andmebaas Cause of Death]].
'''Data access:''' partially publicly available [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__01Rahvastik], to access go to Population > Deaths. Instructions to request data for restricted content [https://www.tai.ee/et/kontakt/isikuandmete-paring].
'''Contact information:''' Information [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/01Rahvastik/04Surmad/SDinfo_en.htm#kontakt].


=== [[hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death]] ===
=== [[hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death]] ===
'''Sponsor, manager or home institution:''' Statistics Estonia.
'''Primary purpose:''' The database provides information on deaths of Estonian permanent residents, including causes of death, to be used for population statistics, mortality rate assessment, population forecasting, and comparison with other EU member states, as well as by various state institutions, statisticians, and international organizations.
'''Type of information:''' Data dictionary has not been found.
'''Available type of information:''' number of deaths, sex, place of residence, age, causes of death, marital status, education [https://andmed.stat.ee/et/stat]
'''Source of Information:''' Census.
'''Data level:''' patient level.
'''Available data level:''' national level.
'''Number of Records:''' unknown.
'''Date Range:''' 1989 onwards.
'''Cancer Areas of Interest:''' neoplasms (C00-D48).
'''Data access:''' partially publicly available [https://andmed.stat.ee/et/stat] (To access, open the website, click in "Population" -> "Population events" -> "Deaths"). Instructions to request data for restricted content [https://www.stat.ee/sites/default/files/2020-08/Konfidentsiaalsete%20andmete%20teaduslikel%20eesm%c3%a4rkidel%20edastamise%20kord%202015.pdf].
'''Contact information:''' Information [https://www.stat.ee/et/avasta-statistikat/metoodika-ja-kvaliteet/esms-metaandmed/30205#1-Kontaktandmed-0].


=== [[hasDatabase::Statistics_Estonia:_Malignant_Tumors_(Estonia)|Statistics Estonia: Malignant Tumors]] ===
=== [[hasDatabase::Statistics_Estonia:_Malignant_Tumors_(Estonia)|Statistics Estonia: Malignant Tumors]] ===
'''Sponsor, manager or home institution:''' Statistics Estonia.
'''Primary purpose:''' Provides information about the morbidity and incidence of malignant tumors in Estonia (1950-2013).
'''Type of information:''' Data dictionary has not been found.
'''Available type of information:''' cancer incidence, sex, year.
'''Source of Information:''' Census.
'''Data level:''' patient level.
'''Available data level:''' national level.
'''Number of Records:''' unknown.
'''Date Range:''' 1950 - 2013.
'''Cancer Areas of Interest:''' unknown.
'''Data access:''' partially publicly available [https://andmed.stat.ee/et/stat/Lepetatud_tabelid__Sotsiaalelu.%20Arhiiv__Tervis.%20%20Arhiiv__haigestumus-ja-arstiabi-kasutamine/TH04]. Instructions to request data for restricted content [https://www.stat.ee/sites/default/files/2020-08/Konfidentsiaalsete%20andmete%20teaduslikel%20eesm%c3%a4rkidel%20edastamise%20kord%202015.pdf].
'''Contact information:''' Information [https://www.stat.ee/en/statistics-estonia/contacts].


=== [[hasDatabase::Database:_Activity_License_Registry_(Estonia)|Database: Activity License Registry]] ===
=== [[hasDatabase::Database:_Activity_License_Registry_(Estonia)|Database: Activity License Registry]] ===


{{#subobject:Activity License Registry
|dct:title=Activity License Registry
|datatype=registry
}}
[https://rkav.tehik.ee/rkav/faces/pages/tegevuslubaForm/tegevuslubaOtsing.xhtml]
'''Primary purpose:''' A search tool for any pharmacy, wholesale distributor or manufacturer
with an Estonian activity licence for handling medicines.
'''Sponsor, manager, or home institution:''' Estonian Agency of Medicine.
'''Available information:''' Site name, activity license holder, activity license number, county, city/town/village and type of activity license.
'''Data level:''' City/town/village level.


=== [[hasDatabase::Database:_Medical_Products_Registry_(Estonia)|Database: Medical Products Registry]] ===
=== [[hasDatabase::Database:_Medical_Products_Registry_(Estonia)|Database: Medical Products Registry]] ===
{{#subobject:Medical Products Registry
|dct:title=Medical Products Registry
|datatype=registry
}}
[https://ravimiregister.ee/en/publichomepage.aspx]
'''Primary purpose:''' To have an account of all medicinal products and their packages sold in Estonia.
'''Sponsor, manager, or home institution:''' Estonian Agency of Medicine.
'''Available information:''' Active substance, pharmaceutical form, strength, information about the marketing authorization, the last date of import, reference price, discount prices and rates, unique codes for package sizes, among other information.
</div>
</div>


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=== [[hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)]] ===
=== [[hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)]] ===
'''Primary purpose:''' A pan-European longitudinal survey of the elderly (50+) population, which focuses on the study of the course of the individual aging process and the causal relationships that influence it, for the monitoring of existing policy measures as well as the research-based initiation of new measures.
'''Sponsor, manager or home institution:''' The Max Planck Society Munich Centre for the Economics of Aging (MEA); The Estonian Institute for Population Studies.
'''Type of information:''' The information collected in the questionnaires are available [https://share-eric.eu/data/data-documentation/questionnaires here]. More methodological information [https://share-eric.eu/fileadmin/user_upload/Release_Guides/SHARE_release_guide_8-0-0.pdf].
'''Available type of information''': self-perceived health, number of drugs, alcohol consumption, smoking habit, other determinants of health, economic activity, household characteristics, employment status, self-reported prevalence of chronic diseases, year, age, sex, place of residence, marital status, education, income [http://share-estonia.ee/statistika/]. More information about the data contained in the dataset [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__05Uuringud__08SHARE__03Terviseseisund/?tablelist=true]
'''Data level:''' patient level.
'''Available data level:''' regional level.
'''Number of Records:''' unknown.
'''Date Range:''' 2010 onwards.
'''Cancer Areas of Interest:''' unknown.
'''Data access:''' partially publicly available [http://share-estonia.ee/statistika/]. Instructions to request data for restricted content [https://share-eric.eu/data/data-access]
'''Contact information:''' Information [http://share-estonia.ee/kusitlustoo-organisatsioon/].


=== [[hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)]] ===
=== [[hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)]] ===
'''Primary purpose:''' The aim of ETeU is to assess the health status of the Estonian population, the factors influencing it, the restrictions caused by health, the need for assistance, the use of health care services and to compare the results with previous surveys.
'''Sponsor, manager or home institution:''' National Institute for Health Development; Statistics Estonia.
'''Type of information:''' The information collected in the questionnaires are available [https://www.tai.ee/et/teadustoo/teadustoo-ulevaade/rahvastikupohised-uuringud/eesti-terviseuuring here] in "Results" and "Publications" > "2019 Survey".
'''Available type of information:''' household characteristics, self-perceived health, other determinants of health, education, employment status, place of residence, periodicity of physician consultation, number of drugs, smoking habit, alcohol consumption. [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/05Uuringud/01ETeU/03Haigused/ETUinfo_en.htm#metoodika]. More information about the data contained in the dataset [https://statistika.tai.ee/pxweb/et/Andmebaas/Andmebaas__05Uuringud], in Health behavior and health > Estonian Health Survey.
'''Data level:''' patient level.
'''Available data level:''' regional level.
'''Number of Records:''' unknown.
'''Date Range:''' 1996 onwards.
'''Cancer Areas of Interest:''' unknown.
'''Data access:''' publicly available [https://statistika.tai.ee/pxweb/et/Andmebaas/Andmebaas__05Uuringud], in Health and health behaviour > Estonian Health Interview Survey.
'''Contact information:''' Information [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/05Uuringud/01ETeU/03Haigused/ETUinfo_en.htm#kontakt].
</div>
</div>


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=== [[hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System]] ===
=== [[hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System]] ===
{{#subobject:Health Information System
|dct:title=Health Information System
|datatype=ehr
}}


[https://www.tehik.ee/en/health-information-system]
[https://www.tehik.ee/en/health-information-system]
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=== [[hasClinicalGuidelines::Good_Practices_Guidelines_for_Clinical_Trials_(Estonia)|Good Practices Guidelines for Clinical Trials]] ===
=== [[hasClinicalGuidelines::Good_Practices_Guidelines_for_Clinical_Trials_(Estonia)|Good Practices Guidelines for Clinical Trials]] ===
{{#subobject:Good Practices Guidelines for Clinical Trials
|dct:title=Good Practices Guidelines for Clinical Trials
|datatype=guideline
}}


[https://ravimiamet.ee/oigusaktid-juhendid-materjalid/oigusaktid-juhendid-ja-vormid/kliinilised-uuringud]
[https://ravimiamet.ee/oigusaktid-juhendid-materjalid/oigusaktid-juhendid-ja-vormid/kliinilised-uuringud]
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=== [[hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control]] ===
=== [[hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control]] ===
{{#subobject:Action Plan for Cancer Control
|dct:title=Action Plan for Cancer Control
|datatype=policymaking
}}


'''Sponsor, manager or home institution:''' Ministry of Social Affairs; National Institute of Health Development; Estonian Cancer Society.
'''Sponsor, manager or home institution:''' Ministry of Social Affairs; National Institute of Health Development; Estonian Cancer Society.
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=== [[hasPolicy::National_Plan:_Population_Health_Development_Plan_2030_(Estonia)|National Plan: Population Health Development Plan 2030]] ===
=== [[hasPolicy::National_Plan:_Population_Health_Development_Plan_2030_(Estonia)|National Plan: Population Health Development Plan 2030]] ===
{{#subobject:Population Health Development Plan 2030
|dct:title=Population Health Development Plan 2030
|datatype=policymaking
}}


'''Sponsor, manager or home institution:''' Ministry of Social Affairs.
'''Sponsor, manager or home institution:''' Ministry of Social Affairs.
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=== [[hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_Report_(Estonia)|Report: The State of Healthcare Integration in Estonia Report]] ===
=== [[hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_Report_(Estonia)|Report: The State of Healthcare Integration in Estonia Report]] ===
{{#subobject:The State of Healthcare Integration in Estonia Report
|dct:title=The State of Healthcare Integration in Estonia Report
|datatype=policymaking
}}


'''Sponsor, manager or home institution:''' Estonian Health Insurance Fund.
'''Sponsor, manager or home institution:''' Estonian Health Insurance Fund.
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=== [[hasReport::Report:_"Quality_Bonus_System_Needs_Adjustment"_Report_(Estonia)|Report: "Quality Bonus System Needs Adjustment" Report]] ===
=== [[hasReport::Report:_"Quality_Bonus_System_Needs_Adjustment"_Report_(Estonia)|Report: "Quality Bonus System Needs Adjustment" Report]] ===
{{#subobject:Quality Bonus System Needs Adjustment
|dct:title=Quality Bonus System Needs Adjustment
|datatype=policymaking
}}


'''Sponsor, manager or home institution:''' Estonian Health Insurance Fund.
'''Sponsor, manager or home institution:''' Estonian Health Insurance Fund.
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=== [[hasReport::Report:_Healthcare_Costs_2019_(Estonia)|Report: Healthcare Costs 2019]] ===
=== [[hasReport::Report:_Healthcare_Costs_2019_(Estonia)|Report: Healthcare Costs 2019]] ===
{{#subobject:Healthcare Costs 2019
|dct:title=Healthcare Costs 2019
|datatype=policymaking
}}


'''Sponsor, manager or home institution:''' National Institute for Health Development.
'''Sponsor, manager or home institution:''' National Institute for Health Development.
Line 409: Line 160:


=== [[hasGuideline::Guideline:_Estonian_Handbook_for_Guideline_Development_(Estonia)|Guideline: Estonian Handbook for Guideline Development]] ===
=== [[hasGuideline::Guideline:_Estonian_Handbook_for_Guideline_Development_(Estonia)|Guideline: Estonian Handbook for Guideline Development]] ===
{{#subobject:Estonian Handbook for Guideline Development
|dct:title=Estonian Handbook for Guideline Development
|datatype=policymaking
}}


'''Sponsor, manager or home institution:''' Estonian Health Insurance Fund.
'''Sponsor, manager or home institution:''' Estonian Health Insurance Fund.
Line 426: Line 172:


=== [[hasPolicy::Policy:_Marketing_Authorization_for_a_Drug_(Estonia)|Policy: Marketing Authorization for a Drug]] ===
=== [[hasPolicy::Policy:_Marketing_Authorization_for_a_Drug_(Estonia)|Policy: Marketing Authorization for a Drug]] ===
{{#subobject:Marketing Authorization for a Drug
|dct:title=Marketing Authorization for a Drug
|datatype=policymaking
}}


'''Sponsor, manager or home institution:''' Medicines Board
'''Sponsor, manager or home institution:''' Medicines Board
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=== [[hasPolicy::Policy:_Handling_of_Medicine_(Estonia)|Policy: Handling of Medicine]] ===
=== [[hasPolicy::Policy:_Handling_of_Medicine_(Estonia)|Policy: Handling of Medicine]] ===
{{#subobject:Handling of Medicine
|dct:title=Handling of Medicine
|datatype=policymaking
}}


'''Sponsor, manager or home institution:''' Medicines Board
'''Sponsor, manager or home institution:''' Medicines Board
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=== [[hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's]] ===
=== [[hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's]] ===
{{#subobject:The Health Fund's
|dct:title=The Health Fund's
|datatype=policymaking
}}


'''Sponsor, manager or home institution:''' Tervisekassa.
'''Sponsor, manager or home institution:''' Tervisekassa.
Line 477: Line 208:


=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023]] ===
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023]] ===
{{#subobject:EU Country Cancer Profile 2023
|dct:title=EU Country Cancer Profile 2023
|datatype=policymaking
}}


'''Sponsor, manager or home institution:''' OECD and European Commission.
'''Sponsor, manager or home institution:''' OECD and European Commission.
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=== [[hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival]] ===
=== [[hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival]] ===
{{#subobject:Cancer in Estonia: morbidity and survival
|dct:title=Cancer in Estonia: morbidity and survival
|datatype=policymaking
}}


'''Sponsor, manager or home institution:''' Tervise Arengu Instituut.
'''Sponsor, manager or home institution:''' Tervise Arengu Instituut.
Line 511: Line 232:


=== [[hasPolicy::Compilation:_Other_Estonian_Health_Legislation_(Estonia)|Compilation: Other Estonian Health Legislation]] ===
=== [[hasPolicy::Compilation:_Other_Estonian_Health_Legislation_(Estonia)|Compilation: Other Estonian Health Legislation]] ===
{{#subobject:Other Estonian Health Legislation
|dct:title=Other Estonian Health Legislation
|datatype=policymaking
}}


'''Information access:''' Information access [https://www.haigekassa.ee/en/partner/legislation].
'''Information access:''' Information access [https://www.haigekassa.ee/en/partner/legislation].
Line 524: Line 240:


=== [[hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation]] ===
=== [[hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation]] ===
{{#subobject:Gift of Life Foundation
|dct:title=Gift of Life Foundation
|datatype=group
}}


'''Primary purpose:''' To support cancer treatment not covered by the Estonian Health Insurance Fund.
'''Primary purpose:''' To support cancer treatment not covered by the Estonian Health Insurance Fund.
Line 537: Line 248:


=== [[hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Estonia)|Compilation: ESMO Patient Guides]] ===
=== [[hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Estonia)|Compilation: ESMO Patient Guides]] ===
{{#subobject:ESMO Patient Guides
|dct:title=ESMO Patient Guides
|datatype=group
}}


'''Sponsor, manager or home institution:''' European Society for Medical Oncology
'''Sponsor, manager or home institution:''' European Society for Medical Oncology

Revision as of 19:10, 6 December 2023

Go back to Cancer Centers list.

Cancer Centers

Tartu University Hospital

North Estonia Medical Centre

East Tallinn Central Hospital

Healthcare System

Estonia operates a universal health care system primarily funded through the Estonian Health Insurance Fund (EHIF), covering about 94% of the population. It's a semi-autonomous organization, gaining more responsibilities post a 2017 reform. Financing comes from a social payroll tax, state and municipal budgets (just under 11% of total healthcare expenditure), and private expenditure, mainly co-payments (about a quarter of all health expenditure).

The Estonian Ministry of Social Affairs supervises the health care system nationally, with some minor and voluntary input from local municipalities. The Health and Labor Market Policy Department designs health policies, while other agencies assure professional certifications and pharmaceutical quality.

Hospitals, primarily state-owned or affiliated with public legal bodies, along with independent general practitioners, form the healthcare service backbone. Additionally, private primary care centres, pharmacies, and outpatient clinics supplement the services. The system ensures primary care, specialist outpatient care, hospital care, maternity services, emergency care, dental care, prescription drugs, rehabilitation services, home nursing, prostheses, medical devices, and preventive services.

For benefits access, individuals need to be insured with the EHIF, which includes employed persons and their dependents, the retired, registered unemployed, children, students, pregnant women, and other certain groups.

Estonia has a sophisticated, largely digital healthcare system. Providers send claims electronically to the EHIF, and patient data is stored in a decentralized system, the Electronic Health Record (EHR), accessible by authorized providers. These records contribute to health registries for analysis and research, maintaining a centralized health information system.

Administrative or Claims Data

Database: Estonian Health Insurance Fund (EHIF) Database

Registries

Database: Andmebaas Cancer Screening Registry

Database: Andmebaas Cancer Registry

Database: Andmebaas Cause of Death

Database: Statistics Estonia Cause of Death

Statistics Estonia: Malignant Tumors

Database: Activity License Registry

Database: Medical Products Registry

Databases for Clinical Trials, Surveys and Biobanks

Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)

Survey: The Estonian Health Interview Survey (ETeU)

Electronic Health Records

Database: Health Information System

[1]

Primary Purpose: Allowing healthcare service providers to see and share patient information and healthcare data across the country.

Sponsor, manager, or home institution: Ministry of Social Affairs (sponsor); Health and Welfare Information Systems Centre - TEHIK (manager).

Number of records: Any Estonian citizen who used a healthcare service since 2008.

Data source: Data inserted by healthcare providers.

Date range: 2008 onwards.

Contact information: Information [2].

Clinical Practices Guidelines

Good Practices Guidelines for Clinical Trials

[3]

Primary purpose: To ensure the rights, safety, and well-being of the participant according to the principles of the Declaration of Helsinki [4].

Sponsor, manager or home institution: European Medicines Agency.

Data level: National level.

Cancer Areas of Interest: All.

Availability in English: Yes [5].

Latest Policymaking Initiatives

National Plan: Action Plan for Cancer Control

Sponsor, manager or home institution: Ministry of Social Affairs; National Institute of Health Development; Estonian Cancer Society.

Primary purpose: Reducing the number of cancer cases and deaths, and improving the quality of life of cancer patients.

Data level: National level.

Cancer areas of interest: All.

Information access: Information access [6].

National Plan: Population Health Development Plan 2030

Sponsor, manager or home institution: Ministry of Social Affairs.

Primary purpose: National health plan to increase life expectancy and quality of life during later years, and decrease healthcare inequalities.

Type of information: A detailed plan to deliver on the goals stated above, with data to support policy decisions, which includes cancer-related decision-making.

Data level: National level.

Information access: Information access [7].

Report: The State of Healthcare Integration in Estonia Report

Sponsor, manager or home institution: Estonian Health Insurance Fund.

Primary purpose: Assess healthcare integration in Estonia.

Type of information: Overview of the Estonian healthcare system, information about avoidable admissions to hospitals and specialist visits, hospital stay, NMIS procedures, patient behavior, provider behavior, care continuity, preventive services, and other various information.

Data level: National level.

Information access: Information access [8].

Report: "Quality Bonus System Needs Adjustment" Report

Sponsor, manager or home institution: Estonian Health Insurance Fund.

Primary purpose: Point out flaws in the QBS system and suggest easy-to-make adjustments.

Type of information: Analysis of QBS score distribution including tables and graphs for various data, list of proposals for adjustments to the QBS system with details, among other information.

Data level: National level.

Information access: Information access [9].

Report: Healthcare Costs 2019

Sponsor, manager or home institution: National Institute for Health Development.

Primary purpose: Provide information about healthcare costs for anyone interested in healthcare.

Type of information: Total national health expenditure, comparisons to previous years, share of public sector and other details, household expenditures, and healthcare insurance fund expenditures, among others.

Data level: National level.

Information access: Information access [10].

Guideline: Estonian Handbook for Guideline Development

Sponsor, manager or home institution: Estonian Health Insurance Fund.

Primary purpose: To serve as an up-to-date practical resource for developing health guidelines.

Type of information: Guideline development process, topic proposals, evidence retrieving, report, dissemination of recommendations, among other topics.

Data level: National level.

Information access: Information access [11].

Policy: Marketing Authorization for a Drug

Sponsor, manager or home institution: Medicines Board

Primary purpose: Legislation and Forms to inform the marketing authorization for drugs.

Type of information: Medicine-related laws, regulations, conditions, requirements and statutes related to the authorization of drug marketing, guides, and manuals to inform the process as well as forms that are required to be authorized.

Data level: National level.

Information access: Information access [12].

Policy: Handling of Medicine

Sponsor, manager or home institution: Medicines Board

Primary purpose: Legislation and Forms to inform the handling of drugs.

Type of information: Medicine-related laws, regulations, conditions, requirements and statutes related to the handling of drugs, guides to inform the handling of drugs as well as forms that are required to be authorized to handle drugs.

Data level: National level.

Information access: Information access [13].

Reports: The Health Fund's

Sponsor, manager or home institution: Tervisekassa.

Primary purpose: To outline the vision, mission, and strategic goals of the Health Insurance Fund in Estonia, focusing on ensuring the availability of health insurance benefits and improving healthcare services through prevention, early intervention, and better-coordinated treatment.

Type of information: Health care costs; Medicine costs; Costs of disease prevention; total health costs in general.

Data level: National level.

Access to information: Access Information [14].

Report: EU Country Cancer Profile 2023

Sponsor, manager or home institution: OECD and European Commission.

Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.

Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.

Data level: National level.

Access to information: Access Information [15].

Report: Cancer in Estonia: morbidity and survival

Sponsor, manager or home institution: Tervise Arengu Instituut.

Primary purpose: To provide comprehensive and up-to-date cancer incidence statistics in Estonia, based on data from the cancer registry, enabling analysis of cancer survival and scientific research.

Type of information: More common cancer sites; Cancer incidence and morbidity; Distribution of primary cases by cancer site and spread at diagnosis; Cancer prevalence and survival.

Data level: National level.

Access to information: Access Information [16].

Compilation: Other Estonian Health Legislation

Information access: Information access [17].

Cancer-related Patient Associations and Resources

Patient Association: "Gift of Life" Foundation

Primary purpose: To support cancer treatment not covered by the Estonian Health Insurance Fund.

Data level: National level.

Information access: Information access [18].

Compilation: ESMO Patient Guides

Sponsor, manager or home institution: European Society for Medical Oncology

Primary purpose: To translate complex medical language into understandable information for patients.

Available guides: Cancer Care During the COVID-19 Pandemic; Bone Sarcoma; Colorectal Cancer; Non-Small-Cell Lung Cancer; Soft Tissue Sarcomas.

Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, and care after treatment, among others.

Access to information: List of guides [19].

Quality of Life and Palliative Care Research

List of Articles: Quality of Life [20] and Palliative Care [21].

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