|
|
| (224 intermediate revisions by 5 users not shown) |
| Line 1: |
Line 1: |
| == [[Cancer Centers]] == | | <span style="display:none">forresearchers</span> |
| | <span style="display:none">forpatients</span> |
| | <span style="display:none">forproviders</span> |
| | <span style="display:none">forpolicymakers</span> |
| | <span style="display:none">estoniacountry</span> |
| | [https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.] |
|
| |
|
| === [[North Estonia Medical Centre]] === | | == Cancer Centers == |
| <!-- | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| [[East Tallinn Central Hospital]]
| |
| [[Tartu University Hospital]]
| |
| -->
| |
| == [[Healthcare System]] ==
| |
|
| |
|
| Estonia’s healthcare system is the Health Insurance System, described as “solidarity-based health insurance” [https://www.haigekassa.ee/en/organisation/annual-reports-0 [1]], and the Estonian Health Insurance Fund (EHIF) is the public law organization responsible for providing the organization of national healthcare services in accordance with the Health Insurance Act, the Health Services Organization Act, and other legislation.
| | [[hasCancerCenter::Tartu University Hospital]] |
|
| |
|
| The body responsible for healthcare and all social policies in Estonia is the Ministry of Social Affairs. The Health Board is its child agency. Estonia’s [https://www.riigiteataja.ee/en/eli/514112013001/consolide Public Information Act] details the terms of compliance to request information not already publicly available. The request is exempt from covering expenses if the request is made for research work.
| | [[hasCancerCenter::North Estonia Medical Centre]] |
|
| |
|
| == [[Administrative or Claims Data]] ==
| | [[hasCancerCenter::East Tallinn Central Hospital]] |
| | </div> |
|
| |
|
| ===[https://www.haigekassa.ee/en/organisation/about-us Estonian Health Insurance Fund (EHIF) Database]=== | | == [[hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System]] == |
| [https://link.springer.com/chapter/10.1007/978-3-030-51455-6_16 [2]]
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| | </div> |
|
| |
|
| '''Sponsor, manager or home institution:''' Estonian Health Insurance Fund (EHIF); The Ministry of Social Affairs
| | == Administrative or Claims Data == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| '''Type of information:''' [[Variables: Estonian Health Insurance Fund (EHIF) Database]]
| | === [[hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database]] === |
| | </div> |
|
| |
|
| '''Source of Information:''' Based on claims data from all Estonian healthcare providers that have signed a contract with EHIF and deliver EHIF-financed healthcare.
| | == Registries == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| '''Data level:''' Patient level.
| | === [[hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry]] === |
|
| |
|
| '''Number of Records:''' 1.3 million people, i.e. 95% of Estonia's population.
| | === [[hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry]] === |
|
| |
|
| '''Date Range:''' 2004 onwards.
| | === [[hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death]] === |
|
| |
|
| '''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://www.tervisekassa.ee/koik-teenused here]. Information on how to access the data can be found [https://www.tervisekassa.ee/tervisekassa/teabenoue here].
| | === [[hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death]] === |
|
| |
|
| '''Link/Contact for data request:''' [https://www.haigekassa.ee/en/organisation/contact-client-service Contact information.]
| | === [[hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours]] === |
| <!--
| | </div> |
| Sources for quotes:
| |
| (1) 2020's Annual Report: https://www.haigekassa.ee/en/organisation/annual-reports-0
| |
| (2) https://link.springer.com/chapter/10.1007/978-3-030-51455-6_16 | |
| -->
| |
|
| |
|
| == [[Registries]] == | | == Databases for Clinical Trials, Surveys and Biobanks == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| === Database: Andmebaas Cancer Screening Registry === | | === [[hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)]] === |
|
| |
|
| | === [[hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)]] === |
| | </div> |
|
| |
|
| '''Sponsor, manager or home institution:''' The Health Statistics and Health Research Database; The National Institute for Health Development.
| | == Clinical Practice Guidelines == |
| | === [[hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline]] === |
|
| |
|
| '''Primary purpose:''' The register collects and analyzes personalized data about the target group of breast, cervical and colon cancer screenings.
| | == Electronic Health Records == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| '''Type of information:''' Data of persons belonging to the target group of screening studies; Screened research participation data and the results of the basic and additional studies performed. [https://www.tai.ee/et/statistika-ja-registrid/vahi-soeluuringute-register [3]] Data dictionary could not be found for this database.
| | === [[hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System]] === |
| | </div> |
|
| |
|
| '''Available type of information:''' Breast cancer screening target population and women invited to screening; Breast cancer screening coverage by examination in target population; Breast cancer screening invitational coverage and coverage by examination in women invited to screening; Detected cancer cases in breast cancer screening programme; Cervical cancer screening target population and women invited to screening; Cervical cancer screening coverage by examination in target population; Cervical cancer screening invitational coverage and coverage by examination in women invited to screening; Detected cancer cases in cervical cancer screening programme; Colorectal cancer screening target population and men and women invited to screening; Colorectal cancer screening coverage by examination in target population; Colorectal cancer screening invitational coverage and coverage by examination in men and women invited to screening; Detected cancer cases in colorectal cancer screening programme. Filtered by sex, age, county and health insurance. More information about the data contained in the dataset can be found [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__07Soeluuringud/?tablelist=true here].
| | == Latest Policymaking Initiatives == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| '''Source of Information:''' The register collects data from health service providers through electronic mass requests through the health information system. Data is also inherited from the population register, the cause of death register, the cancer register and the health insurance data set of the health insurance fund via the X-tee data exchange layer.
| | === [[hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control]] === |
|
| |
|
| '''Data level:''' Patient level.
| | === [[hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia]] === |
|
| |
|
| '''Number of Records:''' Unknown.
| | === [[hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's]] === |
|
| |
|
| '''Date Range:''' 2015 onwards.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023]] === |
|
| |
|
| '''Cancer Areas of Interest:''' Breast, cervical and colorectal cancer.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Estonia)|Report: EU Country Cancer Profile 2025]] === |
|
| |
|
| '''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://statistika.tai.ee/pxweb/en/Andmebaas/ here] in Population > Morbidity > Cancer screening programmes. Information on how to access the data can be found [https://www.tai.ee/et/kontakt/isikuandmete-paring here].
| | === [[hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival]] === |
| | </div> |
|
| |
|
| '''Information/Contact for data request:''' Contact information can be found [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/02Haigestumus/07Soeluuringud/VSRinfo_en.htm#kontakt here].
| | == Cancer-related Patient Associations and Resources == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| === Database: Andmebaas Cancer Registry === | | === [[hasPatientAssociation::Patient Association: Estonian Cancer Society (Europa Donna Estonia) (Estonia)|Patient Association: Estonian Cancer Society (Europa Donna Estonia)]] === |
|
| |
|
| | === [[hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation]] === |
|
| |
|
| '''Sponsor, manager or home institution:''' The Health Statistics and Health Research Database; The National Institute for Health Development.
| | === [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Estonia)|Patient Guides: ESMO Patient Guides Compilation]] === |
|
| |
|
| '''Primary purpose:''' The main task of the cancer registry is to ensure the most complete and reliable registration of cancer cases.
| | === [[hasPatientGuides::Patient Guides: Ravijuhend Patient Guides (Estonia)|Patient Guides: Ravijuhend Patient Guides]] === |
|
| |
|
| '''Type of information:''' Diagnosis, i.e. detailed location, time of diagnosis, research methods that confirmed the diagnosis, morphological diagnosis and degree of malignancy, spread of the tumor; Primary treatment by type of treatment - nature of treatment, place of treatment, date of initiation of treatment and method of treatment; Details of the person who completed the cancer notification time and cause of death or time of departure from Estonia; Patient's name, personal identification number, gender, date of birth, place of birth, place of residence at the time of diagnosis and nationality [https://www.tai.ee/et/statistika-ja-registrid/vahiregister [4]]. Data dictionary could not be found for this database.
| | == [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research]] == |
| | </div> |
|
| |
|
| '''Available type of information:''' Cases of malignant neoplasm; Age-specific incidence rate of malignant neoplasms per 100.000 inhabitants; Incidence rate of malignant neoplasms per 100.000 inhabitants filtered by specified site, sex, age group, year and county. More information about the data contained in the dataset can be found [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__04PahaloomulisedKasvajad/?tablelist=true here].
| | __NOTOC__ |
| | | <span style="display:none">hasCancerCenter::Tartu University Hospital</span> |
| '''Source of Information:''' Data is updated from the Estonian population register (personal data, including time of leaving the country)
| | <span style="display:none">hasCancerCenter::North Estonia Medical Centre</span> |
| from the register of causes of death (death data, including cause of death). Reporting cancer cases is mandatory for all doctors working in Estonia who diagnose or treat cancer. Forensic experts also submit data to the register.
| | <span style="display:none">hasCancerCenter::East Tallinn Central Hospital</span> |
| | | <span style="display:none">hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System</span> |
| '''Data level:''' Patient level.
| | <span style="display:none">hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database</span> |
| | | <span style="display:none">hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry</span> |
| '''Number of Records:''' Unknown.
| | <span style="display:none">hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry</span> |
| | | <span style="display:none">hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death</span> |
| '''Date Range:''' 1968 onwards.
| | <span style="display:none">hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death</span> |
| | | <span style="display:none">hasDatabase::Statistics_Estonia:_Malignant_Tumours_(Estonia)|Statistics Estonia: Malignant Tumours</span> |
| '''Cancer Areas of Interest:''' All malignant tumors (C00-C97); Tumors in situ (D00–D09); Benign and unclear and unspecified tumors of the brain and central nervous system, as well as endocrine glands located in the brain region (D32.0–D33.9, D35.2–D35.4, D42.0–D43.9, D44.3–D44.5); Other neoplasms of lymphoid and hematopoietic tissue and similar tissues (D45-D47).
| | <span style="display:none">hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)</span> |
| | | <span style="display:none">hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)</span> |
| '''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://statistika.tai.ee/pxweb/en/Andmebaas/ here] in Population > Morbidity > Malignant neoplasms. Information on how to access the data can be found [https://www.tai.ee/et/statistika-ja-registrid/vahiregister here].
| | <span style="display:none">hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Palliative Care Treatment Guideline</span> |
| | | <span style="display:none">hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System</span> |
| '''Information/Contact for data request:''' Contact information can be found [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/02Haigestumus/04PahaloomulisedKasvajad/PKinfo_en.htm#kontakt here].
| | <span style="display:none">hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control</span> |
| | | <span style="display:none">hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia</span> |
| === Database: Andmebaas Cause of Death ===
| | <span style="display:none">hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's</span> |
| | | <span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023</span> |
| '''Sponsor, manager or home institution:''' The Health Statistics and Health Research Database; The National Institute for Health Development.
| | <span style="display:none">hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival</span> |
| | | <span style="display:none">hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation</span> |
| '''Primary purpose:''' The register collects and processes data on causes of death for various purposes, including the development of social policy, assessment of population health, and planning of preventive activities in the social and health sectors.
| | <span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Estonia)|Compilation: ESMO Patient Guides</span> |
| | | <span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research</span> |
| '''Type of information:''' Personal data of the deceased (sex, county, month, age group, year and municipality); Causes and circumstances of death; Socio-demographic data of the deceased (education, last place of residence, citizenship, etc.); Details of the basic documents and their authors [https://www.tai.ee/et/statistika-ja-registrid/surma-pohjuste-register [5]]. Data dictionary could not be found for this database.
| | <span style="display:none">hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours</span> |
| | | <span style="display:none">hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline</span> |
| '''Available type of information:''' Data of cause of death by sex; county; month; age group; year and municipality. Data of causes of death, Autopsies, Preventable deaths, Amenable deaths, Infant deaths, Standardised mortality rates per 100.000 inhabitants and deaths per 100.000 inhabitants. More information about the data contained in the dataset can be found [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__01Rahvastik__04Surmad/?tablelist=true here].
| | <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> |
| | | <span style="display:none">hasCancerType::C00-C97: All cancer types</span> |
| '''Source of Information:''' The socio-demographic data of the deceased is provided by the Estonian population register, submitted by the doctors and coroners who have established the death.
| | <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> |
| | | <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> |
| '''Data level:''' Patient level.
| | <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> |
| | | <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> |
| '''Available data level:''' National level.
| | <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> |
| | | <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> |
| '''Number of Records:''' Unkown.
| | <span style="display:none">hasCancerType::C50: Breast cancer</span> |
| | | <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> |
| '''Date Range:''' 1989 onwards.
| | <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> |
| | | <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> |
| '''Cancer Areas of Interest:''' [[Cancer Areas of Interest: Andmebaas Cause of Death]]
| | <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> |
| | | <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> |
| '''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__01Rahvastik here] in Population > Deaths. Information on how to access the data can be found [https://www.tai.ee/et/kontakt/isikuandmete-paring here].
| | <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> |
| | | <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> |
| '''Information/Contact for data request:''' The contact information can be found [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/01Rahvastik/04Surmad/SDinfo_en.htm#kontakt here].
| | <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> |
| | | <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> |
| === Database: Statistics Estonia Cause of Death ===
| | <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> |
| | | <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> |
| '''Sponsor, manager or home institution:''' Statistics Estonia.
| | <span style="display:none">hasCancerType::unknown</span> |
| | |
| '''Primary purpose:''' The database provides information on deaths of Estonian permanent residents, including causes of death, to be used for population statistics, mortality rate assessment, population forecasting, and comparison with other EU member states, as well as by various state institutions, statisticians, and international organizations.
| |
| | |
| '''Type of information:''' The number of deaths registered during the calendar year and the distribution of the dead by demographic indicators and medical causes of death; indicators are published in absolute and relative numbers (multipliers). By type of deceased settlement unit, place of residence and month of death, gender, age group, nationality, marital status, education level, cause of death. Perinatal deaths;
| |
| Stillbirths. Infant deaths by gender, age, place of residence, date of birth, mother's age, mother's marital status, mother's level of education.
| |
| | |
| '''Available type of information:''' Total deaths, death rate, standardized death multiplier, death per 100,000 population, cause of death, sex, and age.
| |
| | |
| '''Source of Information:''' Census.
| |
| | |
| '''Data level:''' Patient level.
| |
| | |
| '''Available data level:''' National level.
| |
| | |
| '''Number of Records:''' Unknown.
| |
| | |
| '''Date Range:''' 1989 onwards.
| |
| | |
| '''Cancer Areas of Interest:''' Neoplasms (C00-D48); malignant neoplasms (C00-C97); malignant neoplasm of lip, oral cavity and pharynx (C00-C14); malignant neoplasm of oesophagus (C15); malignant neoplasm of stomach (C16); malignant neoplasm of colon and rectosigmoid junction (C18; C19); malignant neoplasm of colon (C18); malignant neoplasm of colon and rectosigmoid junction (C19); malignant neoplasm of rectum and anus (C20; C21); malignant neoplasm of liver and intrahepatic bile ducts (C22); malignant neoplasm of pancreas (C25); malignant neoplasms of respiratory organs (C30-39); malignant neoplasm of larynx, trachea, bronchus and lung (C32-C34); malignant melanoma of skin (C43); malignant neoplasm of breast (C50); malignant neoplasm of cervix uteri (C53); malignant neoplasm of other parts of uterus (C54; C55); malignant neoplasm of ovary (C56); malignant neoplasm of prostate (C61); malignant neoplasm of kidney (C64); malignant neoplasm of bladder (C67); malignant neoplasms of lymphoid/haemotopoietic tissue (C81-C96); leukemia (C91-C95).
| |
| | |
| '''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://andmed.stat.ee/et/stat here] at "Population > Population indicators and composition > Population and population composition". Information on how to access full database can be found [https://www.stat.ee/sites/default/files/2020-08/Konfidentsiaalsete%20andmete%20teaduslikel%20eesm%c3%a4rkidel%20edastamise%20kord%202015.pdf here].
| |
| | |
| '''Information/Contact for data request:''' Contact information can be found [https://www.stat.ee/et/avasta-statistikat/metoodika-ja-kvaliteet/esms-metaandmed/30205#1-Kontaktandmed-0 here].
| |
| | |
| === [https://rkav.tehik.ee/rkav/faces/pages/tegevuslubaForm/tegevuslubaOtsing.xhtml Activity License Registry] === | |
| | |
| '''Primary purpose:''' A search tool for any pharmacy, wholesale distributor or manufacturer
| |
| with an Estonian activity licence for handling medicines.
| |
| | |
| '''Sponsor, manager, or home institution:''' Estonian Agency of Medicine.
| |
| | |
| '''Available information:''' Site name, activity license holder, activity license number, county, city/town/village and type of activity license.
| |
| | |
| '''Level:''' City/town/village level.
| |
| | |
| === [https://ravimiregister.ee/en/publichomepage.aspx Medical Products Registry] === | |
| | |
| '''Primary purpose:''' To have an account of all medicinal products and their packages sold in Estonia.
| |
| | |
| '''Sponsor, manager, or home institution:''' Estonian Agency of Medicine.
| |
| | |
| '''Available information:''' Active substance, pharmaceutical form, strength, information about the marketing authorisation, the last date of import, reference price, discount prices and rates, unique codes for package sizes, among other information.
| |
| <!-- | |
| == [[Databases for Clinical Trials, Surveys and Biobanks]] == | |
| -->
| |
| | |
| == [[Databases for Clinical Trials, Surveys and Biobanks]] == | |
| | |
| === Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE) === | |
| | |
| '''Primary purpose:''' A pan-European longitudinal survey of the elderly (50+) population, which focuses on the study of the course of the individual aging process and the causal relationships that influence it, for the monitoring of existing policy measures as well as the research-based initiation of new measures.
| |
| | |
| '''Sponsor, manager or home institution:''' The Max Planck Society Munich Centre for the Economics of Aging (MEA); The Estonian Institute for Population Studies.
| |
| | |
| '''Type of information:''' Self-assessment of health; Limitations in coping and daily activities; Health condition; Use of medicines; Mental health; Use of health and social services; Physical activity and body weight; Nutrition; Alcohol consumption; Smoking; A social network; Expectations and Satisfaction; Economic activity and material livelihood; Socio-economic background characteristics; Longitudinal indicators;
| |
| Health status; Living conditions and employment; Longitudinal data; Health and activity indicators for the 3rd wave and elderly poverty, coping and social relationships [http://share-estonia.ee/statistika/[6]]. [[Variables: SHARE Estonia]]. More information about the data contained in the dataset can be found [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__05Uuringud__08SHARE__03Terviseseisund/?tablelist=true here.] Questionnaires can be found [https://share-eric.eu/data/data-documentation/questionnaires here] in SHARE wave 4, 5 and 6. More methodological information can be found [https://share-eric.eu/fileadmin/user_upload/Release_Guides/SHARE_release_guide_8-0-0.pdf here]. Data dictionary could not be found for this database.
| |
| | |
| '''Data level:''' Respondent level.
| |
| | |
| '''Available data level:''' National and regional level.
| |
| | |
| '''Number of Records:''' Unknown.
| |
| | |
| '''Date Range:''' 2010 onwards.
| |
| | |
| '''Cancer Areas of Interest:''' Unknown.
| |
| | |
| '''Open data access:''' Data is partially publicly available. Publicly available data can be found [http://share-estonia.ee/statistika/ here]. Information on how to access the data can be found [https://share-eric.eu/data/data-access here.]
| |
| | |
| '''Information/Contact for data request:''' Contact information can be found [http://share-estonia.ee/kusitlustoo-organisatsioon/ here].
| |
| | |
| === Survey: The Estonian Health Interview Survey (ETeU) ===
| |
| | |
| '''Primary purpose:''' The aim of ETeU is to assess the health status of the Estonian population, the factors influencing it, the restrictions caused by health, the need for assistance, the use of health care services and to compare the results with previous surveys.
| |
| | |
| '''Sponsor, manager or home institution:''' National Institute for Health Development; Statistics Estonia.
| |
| | |
| '''Type of information:''' General data on the household and household members; Health status; Accidents and injuries; Mental health; Emotional feeling; Physical and sensory functional limitations; Taking care of yourself; Housework; Preventive actions; Sexual behavior; Studies and work; Place of residence; Childhood home; Social support; Use of outpatient care; Use of hospital and day care; Use of medicines; Smoking, Alcohol consumption; Drug use; Weight, Growth and physical activity, Eating habits, and attitudes [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/05Uuringud/01ETeU/03Haigused/ETUinfo_en.htm#metoodika [7]]. More information about the data contained in the dataset can be found [https://statistika.tai.ee/pxweb/et/Andmebaas/Andmebaas__05Uuringud here] in Health behavior and health > Estonian Health Survey. Questionnaires can be found [https://www.tai.ee/et/teadustoo/teadustoo-ulevaade/rahvastikupohised-uuringud/eesti-terviseuuring here] in Results and Publications > 2019 Survey.
| |
| | |
| '''Data level:''' Respondent level.
| |
| | |
| '''Available data level:''' Estonian residents aged 15 and older are surveyed.
| |
| | |
| '''Number of Records:''' Unknown.
| |
| | |
| '''Date Range:''' 1996 onwards.
| |
| | |
| '''Cancer Areas of Interest:''' Unknown.
| |
| | |
| '''Open data access:''' The data is openly available [https://statistika.tai.ee/pxweb/et/Andmebaas/Andmebaas__05Uuringud here] in Health and health behaviour > Estonian Health Interview Survey.
| |
| | |
| '''Information/Contact for data request:''' Contact information can be found [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/05Uuringud/01ETeU/03Haigused/ETUinfo_en.htm#kontakt here].
| |
| | |
| == [[Electronic Health Records]] ==
| |
| | |
| === [https://www.tehik.ee/en/health-information-system Health Information System] ===
| |
| | |
| '''Primary Purpose:''' Allowing healthcare service providers to see and share patient information and healthcare data across the country.
| |
| | |
| '''Sponsor, manager, or home institution:''' Ministry of Social Affairs (sponsor); Health and Welfare Information Systems Centre - TEHIK (manager)
| |
| | |
| '''Number of records:''' Any Estonian citizen who used a healthcare service since 2008.
| |
| | |
| '''Data source:''' Data inserted by healthcare providers.
| |
| | |
| '''Date range:''' 2008 onwards.
| |
| | |
| '''Link/contact:''' [https://www.digilugu.ee/login Contact information.]
| |
| | |
| == [[Clinical Practices Guidelines]] ==
| |
| | |
| === [https://www.tai.ee/et/valjaanded/vahitorje-tegevuskava-2021-2030 Action Plan for Cancer Control] ===
| |
| | |
| '''Primary purpose:''' Reducing the number of cancer cases and deaths, and improving the quality of life of cancer patients.
| |
| | |
| '''Sponsor, manager or home institution:''' Ministry of Social Affairs; National Institute of Health Development; Estonian Cancer Society.
| |
| | |
| '''Level:''' National level.
| |
| | |
| '''Cancer ares of interest:''' All.
| |
| | |
| '''Availability in English:''' No.
| |
| | |
| === [https://ravimiamet.ee/oigusaktid-juhendid-materjalid/oigusaktid-juhendid-ja-vormid/kliinilised-uuringud Good Practices Guidelines for Clinical Trials] ===
| |
| | |
| '''Primary purpose:''' To ensure the rights, safety and well-being of the participant according to the principles of the [https://www.wma.net/what-we-do/medical-ethics/declaration-of-helsinki/ Declaration of Helsinki].
| |
| | |
| '''Sponsor, manager or home institution:''' European Medicines Agency.
| |
| | |
| '''Level:''' National level.
| |
| | |
| '''Cancer Areas of Interest:''' All.
| |
| | |
| '''Availability in English:''' [https://www.ema.europa.eu/en/ich-e6-r2-good-clinical-practice-scientific-guideline Yes].
| |
| | |
| === [https://ravimiamet.ee/oigusaktid-juhendid-materjalid/oigusaktid-juhendid-ja-vormid/kliinilised-uuringud Other Requirements for Clinical Trials] ===
| |
| | |
| == [[Latest Policymaking Initiatives]] ==
| |
| | |
| === [https://www.sm.ee/rahvastiku-tervise-arengukava-2020-2030 Population Health Development Plan 2030] ===
| |
| | |
| '''Institution:''' Ministry of Social Affairs
| |
| | |
| '''Primary purpose:''' National health plan to increase life expectancy and quality of life during later years, and decrease healthcare inequalities.
| |
| | |
| '''Type of information:''' A detailed plan to deliver on the goals stated above, with data to support policy decisions, which includes cancer-related decision-making.
| |
| | |
| '''Level:''' National level.
| |
| | |
| === [https://www.haigekassa.ee/en/organisation/about-us/reports-and-studies The State of Healthcare Integration in Estonia Report] ===
| |
| | |
| '''Institution:''' Estonian Health Insurance Fund.
| |
| | |
| '''Primary purpose:''' Assess healthcare integration in Estonia.
| |
| | |
| '''Type of information:''' Overview of the Estonian healthcare system, information about avoidable admissions to hospitals and specialist visits, hospital stay, NMIS procedures, patient behavior, provider behavior, care continuity, preventive services, and other various information.
| |
| | |
| '''Level:''' National level.
| |
| | |
| === [https://www.haigekassa.ee/en/organisation/about-us/reports-and-studies "Quality Bonus System Needs Adjustment" Report] ===
| |
| | |
| '''Institution:''' Estonian Health Insurance Fund.
| |
| | |
| '''Primary purpose:''' Point out flaws in the QBS system and suggest easy-to-make adjustments.
| |
| | |
| '''Type of information:''' Analysis of QBS score distribution including tables and graphs for various data, list of proposals for adjustments to the QBS system with details, among other information.
| |
| | |
| '''Level:''' National level.
| |
| | |
| === [https://intra.tai.ee//images/prints/documents/161537779082_Tervishoiukulud_2019.pdf Healthcare Costs 2019] ===
| |
| | |
| '''Institution:''' National Institute for Health Development.
| |
| | |
| '''Primary purpose:''' Provide information about healthcare costs for anyone interested in healthcare.
| |
| | |
| '''Type of information:''' Total national health expenditure, comparisons to previous years, share of public sector and other details, household expenditures, and healthcare insurance fund expenditures, among others.
| |
| | |
| '''Level:''' National level.
| |
| | |
| === [https://tervis.ut.ee/sites/default/files/inline-files/estonian_handbook_for_guidelines_development_2020.pdf Estonian Handbook for Guideline Development] ===
| |
| | |
| '''Institution:''' Estonian Health Insurance Fund.
| |
| | |
| '''Primary purpose:''' To serve as an up-to-date practical resource for developing health guidelines.
| |
| | |
| '''Type of information:''' Guideline development process, topic proposals, evidence retrieving, report, dissemination of recommendations, among other topics.
| |
| | |
| '''Level:''' National level.
| |
| | |
| === [https://ravimiamet.ee/oigusaktid-juhendid-materjalid/oigusaktid-juhendid-ja-vormid/ravimi-muugiluba Marketing Authorization for a Drug] ===
| |
| | |
| '''Institution:''' Medicines Board
| |
| | |
| '''Primary purpose:''' Legislation and Forms to inform the marketing authorization for drugs.
| |
| | |
| '''Type of information:''' Medicine-related laws, regulations, conditions, requirements and statutes related to the authorization of drug marketing, guides and manuals to inform the process as well as forms that are required to be authorized.
| |
| | |
| '''Level:''' National level.
| |
| | |
| === [https://ravimiamet.ee/oigusaktid-juhendid-materjalid/oigusaktid-juhendid-ja-vormid/ravimite-kaitlemine Handling of Medicine] ===
| |
| | |
| '''Institution:''' Medicines Board
| |
| | |
| '''Primary purpose:''' Legislation and Forms to inform the handling of drugs.
| |
| | |
| '''Type of information:''' Medicine-related laws, regulations, conditions, requirements and statutes related to the handling of drugs, guides to inform the handling of drugs as well as forms that are required to be authorized to handle drugs.
| |
| | |
| '''Level:''' National level.
| |
| | |
| === [https://www.haigekassa.ee/en/partner/legislation Other Estonian Health Legislation] ===
| |
| | |
| == [[Cancer-related Patient Associations and Resources]] == | |
| | |
| === [https://kingitudelu.ee/for-cancer-patients "Gift of Life" Foundation] ===
| |
| | |
| '''Primary purpose:''' To support cancer treatment not covered by the Estonian Health Insurance Fund.
| |
| | |
| '''Level:''' National level.
| |
| <!--
| |
| This RSS feed shows the Public Information Act updates.
| |
| | |
| <rss max=3 highlight="Test RSS">https://www.riigiteataja.ee/en/tolge/versions?grupiId=100220</rss>
| |
| -->
| |
