Estonia: Difference between revisions

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== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">estoniacountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


=== [[North Estonia Medical Centre]] ===
== Cancer Centers ==
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[[East Tallinn Central Hospital]]
[[Tartu University Hospital]]
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== [[Healthcare System]] ==


Estonia’s healthcare system is the Health Insurance System, described as “solidarity-based health insurance”(1) and the Estonian Health Insurance Fund (EHIF) is the public law organization responsible for providing the organization of national healthcare services in accordance with the Health Insurance Act, the Health Services Organization Act and other legislation.
[[hasCancerCenter::Tartu University Hospital]]


The body responsible for healthcare and all social policies in Estonia is the Ministry of Social Affairs. The Health Board is its child agency. Estonia’s [https://www.riigiteataja.ee/en/eli/514112013001/consolide Public Information Act] details the terms of compliance to request information not already publicly available. The request is exempt from covering expenses if the request is made for research work.
[[hasCancerCenter::North Estonia Medical Centre]]  
== [[Administrative or Claims Data]] ==


====[https://www.haigekassa.ee/en/organisation/about-us Estonian Health Insurance Fund (EHIF) Database]====
[[hasCancerCenter::East Tallinn Central Hospital]]
</div>


'''Sponsor, manager or home institution:''' Estonian Health Insurance Fund (EHIF); The Ministry of Social Affairs
== [[hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System]] ==
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'''Type of information:''' Medical contacts (physician visit, hospital stay, etc.), including diagnostic tests, prescription medicine, medical devices, and treatment.
== Administrative or Claims Data ==
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'''Source of Information:''' The database is based on claims data from all Estonian healthcare providers that have signed a contract with EHIF and deliver EHIF-financed healthcare, which is almost all of them.
=== [[hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database]] ===
</div>


'''Data level:''' Patient level.
== Registries ==
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'''Number of Records:''' 1.3 million people, i.e. 95% of Estonia's population.
=== [[hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry]] ===


'''Date Range:''' 2004 onwards.
=== [[hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry]] ===


'''Link/Contact for data request:''' [https://www.haigekassa.ee/en/organisation/contact-client-service Contact information.]]
=== [[hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death]] ===
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(1) 2020's Annual Report: https://www.haigekassa.ee/en/organisation/annual-reports-0
(2) https://link.springer.com/chapter/10.1007/978-3-030-51455-6_16
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== [[Registries]] ==
=== [[hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death]] ===


===[https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__04PahaloomulisedKasvajad/?tablelist=true Health Statistics and Health Research Database]===
=== [[hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours]] ===
</div>


'''Primary purpose:''' A complete and reliable registration of incident cancer cases in Estonia.
== Databases for Clinical Trials, Surveys and Biobanks ==
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'''Sponsor, manager, or home institution:''' The [https://en.tai.ee/en/r-and-d/registers/estonian-cancer-registry National Institute for Health Development]
=== [[hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)]] ===


'''Type of information:''' Datasets about incidence of cancer in general and specific types of cancer, sortable by year, sex, site and age group.
=== [[hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)]] ===
</div>


'''Data level:''' National level. Malignant neoplasms' statistics are submitted by 15 counties.
== Clinical Practice Guidelines ==
<!-- ''' Number of records:''' Unknown. -->
=== [[hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline]] ===


'''Number of records:''' Every registered Estonian citizen i.e. 1.3 million people.
== Electronic Health Records ==
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'''Date range:''' From 1968 to 2019.
=== [[hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System]] ===
</div>


'''Data source:''' According to the Institute, “Reporting of cancer cases is compulsory to all physicians working in Estonia who diagnose or treat cancer. Data are submitted to the registry also by forensic pathologists-experts” (3).
== Latest Policymaking Initiatives ==
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'''Cancer areas of interest (ICD):''' All sites (C00–C97);
=== [[hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control]] ===
All sites except other skin (C00–C97, except C44);
Lip, oral cavity and pharynx (C00–C14);
Digestive organs (C15–C26);
Respiratory and intrathoracic organs (C30–C39);
Female genital organs (C51–C58);
Male genital organs (C60–C63);
Urinary tract (C64–C68);
Brain and central nervous system (C70–C72);
Leukaemia (C91–C95);
Lymphomas (C81–C85/C96); county-level lymphoma data include Hodgkin’s disease as well as non-Hodgkin lymphomas.


'''Link/contact:''' Margit Mägi,
=== [[hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia]] ===
Head of Registry,
Tel: +372 659 3830,
Email: margit.magi@tai.ee


=== [https://andmed.stat.ee/en/stat/search?searchquery=malignant%20neoplasm Statistics Estonia Database] ===
=== [[hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's]] ===


'''Primary Purpose:''' To provide information about demographic, social, economic and environmental development of Estonia for the purposes of development plans and projections, policy planning, scientific and applied research, and making informed decisions.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023]] ===


'''Sponsor, manager, or home institution:''' [https://www.stat.ee/en/statistics-estonia/about-us Statistics Estonia], responsible for coordinating the system of classifications and for data governance in the country.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Estonia)|Report: EU Country Cancer Profile 2025]] ===


'''Type of information:''' Datasets on causes of death and death rates.
=== [[hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival]] ===
</div>


'''Data level:''' National level.
== Cancer-related Patient Associations and Resources ==
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'''Number of records:''' Every registered Estonian citizen i.e. 1.3 million people.
=== [[hasPatientAssociation::Patient Association: Estonian Cancer Society (Europa Donna Estonia) (Estonia)|Patient Association: Estonian Cancer Society (Europa Donna Estonia)]] ===


'''Date range:''' From 1989 onwards.
=== [[hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation]] ===


'''Data source:''' Estonian Causes of Death Registry
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Estonia)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Cancer areas of interest (ICD):''' All sites (C00–C97);
=== [[hasPatientGuides::Patient Guides: Ravijuhend Patient Guides (Estonia)|Patient Guides: Ravijuhend Patient Guides]] ===
All sites (C00–C97);
Lip, oral cavity and pharynx (C00–C14);
Oesophagus (C15);
Stomach (C16);
Colon and rectosigmoid junction (C18, C19);
Colon (C18);
Colon and rectosigmoid junction (C19);
Rectum and anus (C20, 21);
Liver and intrahepatic bile ducts (C22);
Pancreas (C25);
Respiratory organs (C30–C39);
Larynx, trachea, bronchus and lung (C32-C34);
Melanoma of skin (C43);
Breast (C50);
Cervix uteri (C53);
Other parts of uterus (C54, C55);
Ovary (C56)
Prostate (C61);
Kidney (C64);
Bladder (C67);
Lymphoid/haemotopoietic tissue (C81-C96);
Leukaemia (C91–C95);


'''Link/contact:''' Terje Trasberg, Leading Analyst, Tel: +372 625 9300, Email: terje.trasberg@stat.ee
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research]] ==
<!--
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Sources for quotes:


(3) https://en.tai.ee/en/r-and-d/registers/estonian-cancer-registry
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<span style="display:none">hasCancerCenter::Tartu University Hospital</span>
 
<span style="display:none">hasCancerCenter::North Estonia Medical Centre</span>
== [[Electronic Health Records]] ==
<span style="display:none">hasCancerCenter::East Tallinn Central Hospital</span>
 
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System</span>
=== [https://www.tehik.ee/en/health-information-system Health Information System] ===
<span style="display:none">hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database</span>
 
<span style="display:none">hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry</span>
'''Primary Purpose:''' Allowing healthcare service providers to see and share patient information and healthcare data.
<span style="display:none">hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry</span>
 
<span style="display:none">hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death</span>
'''Sponsor, manager, or home institution:''' Ministry of Social Affairs (sponsor); Health and Welfare Information Systems Centre - TEHIK (manager)
<span style="display:none">hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death</span>
 
<span style="display:none">hasDatabase::Statistics_Estonia:_Malignant_Tumours_(Estonia)|Statistics Estonia: Malignant Tumours</span>
'''Number of records:''' 1.3 million people i.e. any Estonian citizen who used a healthcare service since 2008.
<span style="display:none">hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)</span>
 
<span style="display:none">hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)</span>
'''Data source:''' Data inserted by healthcare providers.
<span style="display:none">hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Palliative Care Treatment Guideline</span>
 
<span style="display:none">hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System</span>
'''Date range:''' 2008 onwards.
<span style="display:none">hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control</span>
 
<span style="display:none">hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia</span>
'''Link/contact:''' abi@tehik.ee
<span style="display:none">hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's</span>
 
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023</span>
== [[Clinical Practices Guidelines]] ==
<span style="display:none">hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation</span>
=== [https://www.tai.ee/et/valjaanded/vahitorje-tegevuskava-2021-2030 Action Plan for Cancer Control] ===
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Estonia)|Compilation: ESMO Patient Guides</span>
 
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research</span>
'''Primary purpose:''' Reducing the number of cancer cases and deaths, and improving the quality of life of cancer patients.
<span style="display:none">hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours</span>
 
<span style="display:none">hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline</span>
'''Level:''' National level.
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
 
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
'''Cancer ares of interest:''' All.
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
 
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
== [[Latest Policymaking Initiatives]] ==
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
 
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
=== [https://intra.tai.ee//images/prints/documents/161537779082_Tervishoiukulud_2019.pdf Healthcare Costs 2019] ===
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
 
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
'''Institution:''' National Institute for Health Development
<span style="display:none">hasCancerType::C50: Breast cancer</span>
 
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
'''Primary purpose:''' Provide information about healthcare costs for anyone interested in healthcare.
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
 
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
'''Type of information:''' Total national health expenditure, comparisons to previous years, share of public sector and other details, household expenditures, and healthcare insurance fund expenditures, among others.
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
 
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
'''Level:''' National level.
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<!--
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
This RSS feed shows the Public Information Act updates.
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
 
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<rss max=3 highlight="Test RSS">https://www.riigiteataja.ee/en/tolge/versions?grupiId=100220</rss>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
-->
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Latest revision as of 03:17, 21 January 2026

forresearchers forpatients forproviders forpolicymakers estoniacountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Tartu University Hospital

North Estonia Medical Centre

East Tallinn Central Hospital

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Database: Estonian Health Insurance Fund (EHIF) Database[edit | edit source]

Registries[edit | edit source]

Database: Andmebaas Cancer Screening Registry[edit | edit source]

Database: Andmebaas Cancer Registry[edit | edit source]

Database: Andmebaas Cause of Death[edit | edit source]

Database: Statistics Estonia Cause of Death[edit | edit source]

Database: Statistics Estonia - Malignant Tumours[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)[edit | edit source]

Survey: The Estonian Health Interview Survey (ETeU)[edit | edit source]

Clinical Practice Guidelines[edit | edit source]

Guidelines: Palliative Care Treatment Guideline[edit | edit source]

Electronic Health Records[edit | edit source]

Database: Health Information System[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

National Plan: Action Plan for Cancer Control[edit | edit source]

Report: The State of Healthcare Integration in Estonia[edit | edit source]

Reports: The Health Fund's[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Report: Cancer in Estonia: morbidity and survival[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Association: Estonian Cancer Society (Europa Donna Estonia)[edit | edit source]

Patient Association: "Gift of Life" Foundation[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Patient Guides: Ravijuhend Patient Guides[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]


hasCancerCenter::Tartu University Hospital hasCancerCenter::North Estonia Medical Centre hasCancerCenter::East Tallinn Central Hospital hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death hasDatabase::Statistics_Estonia:_Malignant_Tumours_(Estonia)|Statistics Estonia: Malignant Tumours hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE) hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU) hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Palliative Care Treatment Guideline hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023 hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Estonia)|Compilation: ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

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