Estonia: Difference between revisions

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== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">estoniacountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


=== [[North Estonia Medical Centre]] ===
== Cancer Centers ==
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[[East Tallinn Central Hospital]]
[[Tartu University Hospital]]
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== [[Healthcare System]] ==


Estonia’s healthcare system is the Health Insurance System, described as “solidarity-based health insurance”(1) and the Estonian Health Insurance Fund (EHIF) is the public law organization responsible for providing the organization of national healthcare services in accordance with the Health Insurance Act, the Health Services Organization Act and other legislation.
[[hasCancerCenter::Tartu University Hospital]]


The body responsible for healthcare and all social policies in Estonia is the Ministry of Social Affairs. The Health Board is its child agency. Estonia’s [https://www.riigiteataja.ee/en/eli/514112013001/consolide Public Information Act] details the terms of compliance to request information not already publicly available. The request is exempt from covering expenses if the request is made for research work.
[[hasCancerCenter::North Estonia Medical Centre]]  
== [[Administrative or Claims Data]] ==


====[https://www.haigekassa.ee/en/organisation/about-us Estonian Health Insurance Fund (EHIF) Database]====
[[hasCancerCenter::East Tallinn Central Hospital]]
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'''Sponsor, manager or home institution:''' Estonian Health Insurance Fund (EHIF); The Ministry of Social Affairs
== [[hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System]] ==
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'''Type of information:''' Medical contacts (physician visit, hospital stay, etc.), including diagnostic tests, prescription medicine, medical devices, and treatment.
== Administrative or Claims Data ==
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'''Source of Information:''' Based on claims data from all Estonian healthcare providers that have signed a contract with EHIF and deliver EHIF-financed healthcare.
=== [[hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database]] ===
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'''Data level:''' Patient level.
== Registries ==
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'''Number of Records:''' 1.3 million people, i.e. 95% of Estonia's population.
=== [[hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry]] ===


'''Date Range:''' 2004 onwards.
=== [[hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry]] ===


'''Link/Contact for data request:''' [https://www.haigekassa.ee/en/organisation/contact-client-service Contact information.]
=== [[hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death]] ===
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== [[Registries]] ==
=== [[hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death]] ===


=== [https://en.tai.ee/en/r-and-d/registers/estonian-cancer-registry Estonian Cancer Registry] ===
=== [[hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours]] ===
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'''Primary purpose:''' A complete and reliable registration of incident cancer cases in Estonia.
== Databases for Clinical Trials, Surveys and Biobanks ==
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'''Sponsor, manager, or home institution:''' The [https://en.tai.ee/en/ National Institute for Health Development]
=== [[hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)]] ===


'''Available databases:''' The [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__04PahaloomulisedKasvajad/?tablelist=true Health Statistics and Health Research Database] and the [http://pub.stat.ee/px-web.2001/dialog/statfile1.asp Statistics Estonia Database]
=== [[hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)]] ===
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== Clinical Practice Guidelines ==
===[https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__04PahaloomulisedKasvajad/?tablelist=true Health Statistics and Health Research Database]===
=== [[hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline]] ===


'''Primary purpose:''' A complete and reliable registration of incident cancer cases in Estonia.
== Electronic Health Records ==
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'''Sponsor, manager, or home institution:''' The [https://en.tai.ee/en/r-and-d/registers/estonian-cancer-registry National Institute for Health Development]
=== [[hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System]] ===
</div>


'''Type of information:''' Datasets about incidence of cancer in general and specific types of cancer, sortable by year, sex, site and age group.
== Latest Policymaking Initiatives ==
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'''Data level:''' National level. Malignant neoplasms' statistics are submitted by 15 counties.
=== [[hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control]] ===
<!-- ''' Number of records:''' Unknown. -->


'''Number of records:''' Every registered Estonian citizen i.e. 1.3 million people.
=== [[hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia]] ===


'''Date range:''' From 1968 to 2019.
=== [[hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's]] ===


'''Data source:''' “Reporting of cancer cases is compulsory to all physicians working in Estonia who diagnose or treat cancer. Data are submitted to the registry also by forensic pathologists-experts” (3).
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023]] ===


'''Cancer areas of interest (ICD):''' All sites (C00–C97);
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Estonia)|Report: EU Country Cancer Profile 2025]] ===
All sites except other skin (C00–C97, except C44);
Lip, oral cavity and pharynx (C00–C14);
Digestive organs (C15–C26);
Respiratory and intrathoracic organs (C30–C39);
Female genital organs (C51–C58);
Male genital organs (C60–C63);
Urinary tract (C64–C68);
Brain and central nervous system (C70–C72);
Leukaemia (C91–C95);
Lymphomas (C81–C85/C96); county-level lymphoma data include Hodgkin’s disease as well as non-Hodgkin lymphomas.


'''Link/contact:''' [https://en.tai.ee/en/r-and-d/registers/estonian-cancer-registry Contact information.]
=== [[hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival]] ===
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=== [https://andmed.stat.ee/en/stat/search?searchquery=malignant%20neoplasm Statistics Estonia Database] ===
== Cancer-related Patient Associations and Resources ==
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'''Primary Purpose:''' To provide information about demographic, social, economic and environmental development of Estonia for the purposes of development plans and projections, policy planning, scientific and applied research, and making informed decisions.
=== [[hasPatientAssociation::Patient Association: Estonian Cancer Society (Europa Donna Estonia) (Estonia)|Patient Association: Estonian Cancer Society (Europa Donna Estonia)]] ===


'''Sponsor, manager, or home institution:''' [https://www.stat.ee/en/statistics-estonia/about-us Statistics Estonia], responsible for coordinating the system of classifications and for data governance in the country.
=== [[hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation]] ===


'''Type of information:''' Datasets on causes of death and death rates.
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Estonia)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Data level:''' National level.
=== [[hasPatientGuides::Patient Guides: Ravijuhend Patient Guides (Estonia)|Patient Guides: Ravijuhend Patient Guides]] ===


'''Number of records:''' Every registered Estonian citizen i.e. 1.3 million people.
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research]] ==
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'''Date range:''' From 1989 onwards.
__NOTOC__
 
<span style="display:none">hasCancerCenter::Tartu University Hospital</span>
'''Data source:''' Estonian Causes of Death Registry
<span style="display:none">hasCancerCenter::North Estonia Medical Centre</span>
 
<span style="display:none">hasCancerCenter::East Tallinn Central Hospital</span>
'''Cancer areas of interest (ICD):''' All sites (C00–C97);
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System</span>
All sites (C00–C97);
<span style="display:none">hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database</span>
Lip, oral cavity and pharynx (C00–C14);
<span style="display:none">hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry</span>
Oesophagus (C15);
<span style="display:none">hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry</span>
Stomach (C16);
<span style="display:none">hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death</span>
Colon and rectosigmoid junction (C18, C19);
<span style="display:none">hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death</span>
Colon (C18);
<span style="display:none">hasDatabase::Statistics_Estonia:_Malignant_Tumours_(Estonia)|Statistics Estonia: Malignant Tumours</span>
Colon and rectosigmoid junction (C19);
<span style="display:none">hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)</span>
Rectum and anus (C20, 21);
<span style="display:none">hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)</span>
Liver and intrahepatic bile ducts (C22);
<span style="display:none">hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Palliative Care Treatment Guideline</span>
Pancreas (C25);
<span style="display:none">hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System</span>
Respiratory organs (C30–C39);
<span style="display:none">hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control</span>
Larynx, trachea, bronchus and lung (C32-C34);
<span style="display:none">hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia</span>
Melanoma of skin (C43);
<span style="display:none">hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's</span>
Breast (C50);
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023</span>
Cervix uteri (C53);
<span style="display:none">hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival</span>
Other parts of uterus (C54, C55);
<span style="display:none">hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation</span>
Ovary (C56)
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Estonia)|Compilation: ESMO Patient Guides</span>
Prostate (C61);
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research</span>
Kidney (C64);
<span style="display:none">hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours</span>
Bladder (C67);
<span style="display:none">hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline</span>
Lymphoid/haemotopoietic tissue (C81-C96);
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
Leukaemia (C91–C95);
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
 
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
'''Link/contact:''' [https://www.stat.ee/en/find-statistics/methodology-and-quality/esms-metadata/30205#1-Contact-0 Contact information.]
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
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<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
Sources for quotes:
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
 
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
(3) https://en.tai.ee/en/r-and-d/registers/estonian-cancer-registry
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
-->
<span style="display:none">hasCancerType::C50: Breast cancer</span>
 
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
== [[Electronic Health Records]] ==
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
 
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
=== [https://www.tehik.ee/en/health-information-system Health Information System] ===
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
 
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
'''Primary Purpose:''' Allowing healthcare service providers to see and share patient information and healthcare data.
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
 
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
'''Sponsor, manager, or home institution:''' Ministry of Social Affairs (sponsor); Health and Welfare Information Systems Centre - TEHIK (manager)
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
 
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
'''Number of records:''' 1.3 million people i.e. any Estonian citizen who used a healthcare service since 2008.
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
 
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
'''Data source:''' Data inserted by healthcare providers.
<span style="display:none">hasCancerType::unknown</span>
 
'''Date range:''' 2008 onwards.
 
'''Link/contact:''' [https://www.digilugu.ee/login Contact information.]
 
== [[Clinical Practices Guidelines]] ==
 
=== [https://www.tai.ee/et/valjaanded/vahitorje-tegevuskava-2021-2030 Action Plan for Cancer Control] ===
 
'''Primary purpose:''' Reducing the number of cancer cases and deaths, and improving the quality of life of cancer patients.
 
'''Level:''' National level.
 
'''Cancer ares of interest:''' All.
 
== [[Latest Policymaking Initiatives]] ==
 
=== [https://intra.tai.ee//images/prints/documents/161537779082_Tervishoiukulud_2019.pdf Healthcare Costs 2019] ===
 
'''Institution:''' National Institute for Health Development
 
'''Primary purpose:''' Provide information about healthcare costs for anyone interested in healthcare.
 
'''Type of information:''' Total national health expenditure, comparisons to previous years, share of public sector and other details, household expenditures, and healthcare insurance fund expenditures, among others.
 
'''Level:''' National level.
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Latest revision as of 03:17, 21 January 2026

forresearchers forpatients forproviders forpolicymakers estoniacountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Registries[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Clinical Practice Guidelines[edit | edit source]

Guidelines: Palliative Care Treatment Guideline[edit | edit source]

Electronic Health Records[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]


hasCancerCenter::Tartu University Hospital hasCancerCenter::North Estonia Medical Centre hasCancerCenter::East Tallinn Central Hospital hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death hasDatabase::Statistics_Estonia:_Malignant_Tumours_(Estonia)|Statistics Estonia: Malignant Tumours hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE) hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU) hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Palliative Care Treatment Guideline hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023 hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Estonia)|Compilation: ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown