|
|
| (201 intermediate revisions by 5 users not shown) |
| Line 1: |
Line 1: |
| | <span style="display:none">forresearchers</span> |
| | <span style="display:none">forpatients</span> |
| | <span style="display:none">forproviders</span> |
| | <span style="display:none">forpolicymakers</span> |
| | <span style="display:none">estoniacountry</span> |
| | [https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.] |
| | |
| == Cancer Centers == | | == Cancer Centers == |
| <!-- | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| === [[North Estonia Medical Centre]] === | |
| | |
| [[East Tallinn Central Hospital]]
| |
| [[Tartu University Hospital]]
| |
| --> | |
| | |
| == [[Healthcare System]] ==
| |
| | |
| Estonia operates a universal health care system primarily funded through the Estonian Health Insurance Fund (EHIF), covering about 94% of the population. It's a semi-autonomous organization, gaining more responsibilities post a 2017 reform. Financing comes from a social payroll tax, state and municipal budgets (just under 11% of total healthcare expenditure), and private expenditure, mainly co-payments (about a quarter of all health expenditure).
| |
| | |
| The Estonian Ministry of Social Affairs supervises the health care system nationally, with some minor and voluntary input from local municipalities. The Health and Labor Market Policy Department designs health policies, while other agencies assure professional certifications and pharmaceutical quality.
| |
| | |
| Hospitals, primarily state-owned or affiliated with public legal bodies, along with independent general practitioners, form the healthcare service backbone. Additionally, private primary care centres, pharmacies, and outpatient clinics supplement the services. The system ensures primary care, specialist outpatient care, hospital care, maternity services, emergency care, dental care, prescription drugs, rehabilitation services, home nursing, prostheses, medical devices, and preventive services.
| |
| | |
| For benefits access, individuals need to be insured with the EHIF, which includes employed persons and their dependents, the retired, registered unemployed, children, students, pregnant women, and other certain groups.
| |
| | |
| Estonia has a sophisticated, largely digital healthcare system. Providers send claims electronically to the EHIF, and patient data is stored in a decentralized system, the Electronic Health Record (EHR), accessible by authorized providers. These records contribute to health registries for analysis and research, maintaining a centralized health information system.
| |
| | |
| == [[Administrative or Claims Data]] ==
| |
| | |
| === Estonian Health Insurance Fund (EHIF) Database ===
| |
| [https://www.haigekassa.ee/en/organisation/about-us]
| |
| [https://link.springer.com/chapter/10.1007/978-3-030-51455-6_16]
| |
| | |
| '''Sponsor, manager or home institution:''' Estonian Health Insurance Fund (EHIF); The Ministry of Social Affairs
| |
| | |
| '''Type of information:''' [[Variables: Estonian Health Insurance Fund (EHIF) Database]].
| |
| | |
| ''' Available type of information:''' Amount of bills; Numbers of persons; Year; Age group; Gender; Specialist/Family doctor; Diagnosis; THT Type; Quarter; Health care service; Medical facility and speciality [https://www-tervisekassa-ee.translate.goog/koik-teenused?_x_tr_sl=auto&_x_tr_tl=en&_x_tr_hl=en&_x_tr_pto=wapp].
| |
| | |
| '''Source of Information:''' Based on claims data from all Estonian healthcare providers that have signed a contract with EHIF and deliver EHIF-financed healthcare.
| |
| | |
| '''Data level:''' Patient level.
| |
| | |
| '''Number of Records:''' 1.3 million people, i.e. 95% of Estonia's population.
| |
| | |
| '''Date Range:''' 2004 onwards.
| |
| | |
| '''Open data access:''' Partially publicly available [https://www.tervisekassa.ee/koik-teenused]. Instructions to request data for restricted content [https://www.tervisekassa.ee/tervisekassa/teabenoue].
| |
| | |
| '''Link/Contact for data request:''' Contact information [https://www.haigekassa.ee/en/organisation/contact-client-service].
| |
| <!--
| |
| Sources for quotes:
| |
| (1) 2020's Annual Report: https://www.haigekassa.ee/en/organisation/annual-reports-0
| |
| (2) https://link.springer.com/chapter/10.1007/978-3-030-51455-6_16
| |
| -->
| |
| | |
| == [[Registries]] ==
| |
| | |
| === Database: Andmebaas Cancer Screening Registry ===
| |
| | |
| | |
| '''Sponsor, manager or home institution:''' The Health Statistics and Health Research Database; The National Institute for Health Development.
| |
| | |
| '''Primary purpose:''' The register collects and analyzes personalized data about the target group of breast, cervical and colon cancer screenings.
| |
| | |
| '''Type of information:''' Data of persons belonging to the target group of screening studies; Screened research participation data and the results of the basic and additional studies performed [https://www.tai.ee/et/statistika-ja-registrid/vahi-soeluuringute-register]. Data dictionary could not be found for this database.
| |
| | |
| '''Available type of information:''' Breast cancer screening target population and women invited to screening; Breast cancer screening coverage by examination in target population; Breast cancer screening invitational coverage and coverage by examination in women invited to screening; Detected cancer cases in breast cancer screening programme; Cervical cancer screening target population and women invited to screening; Cervical cancer screening coverage by examination in target population; Cervical cancer screening invitational coverage and coverage by examination in women invited to screening; Detected cancer cases in cervical cancer screening programme; Colorectal cancer screening target population and men and women invited to screening; Colorectal cancer screening coverage by examination in target population; Colorectal cancer screening invitational coverage and coverage by examination in men and women invited to screening; Detected cancer cases in colorectal cancer screening programme. Filtered by sex, age, county and health insurance. More information about the data contained in the dataset [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__07Soeluuringud/?tablelist=true].
| |
| | |
| '''Source of Information:''' The register collects data from health service providers through electronic mass requests through the health information system. Data is also inherited from the population register, the cause of death register, the cancer register and the health insurance data set of the health insurance fund via the X-tee data exchange layer.
| |
| | |
| '''Data level:''' Patient level.
| |
| | |
| '''Number of Records:''' Unknown.
| |
| | |
| '''Date Range:''' 2015 onwards.
| |
| | |
| '''Cancer Areas of Interest:''' Breast, cervical and colorectal cancer.
| |
| | |
| '''Open data access:''' Partially publicly available [https://statistika.tai.ee/pxweb/en/Andmebaas/], to access go to Population > Morbidity > Cancer screening programmes. Instructions to request data for restricted content [https://www.tai.ee/et/kontakt/isikuandmete-paring].
| |
| | |
| '''Information/Contact for data request:''' Contact information [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/02Haigestumus/07Soeluuringud/VSRinfo_en.htm#kontakt].
| |
| | |
| === Database: Andmebaas Cancer Registry ===
| |
| | |
| | |
| '''Sponsor, manager or home institution:''' The Health Statistics and Health Research Database; The National Institute for Health Development.
| |
| | |
| '''Primary purpose:''' The main task of the cancer registry is to ensure the most complete and reliable registration of cancer cases.
| |
| | |
| '''Type of information:''' Diagnosis, i.e. detailed location, time of diagnosis, research methods that confirmed the diagnosis, morphological diagnosis and degree of malignancy, spread of the tumor; Primary treatment by type of treatment - nature of treatment, place of treatment, date of initiation of treatment and method of treatment; Details of the person who completed the cancer notification time and cause of death or time of departure from Estonia; Patient's name, personal identification number, gender, date of birth, place of birth, place of residence at the time of diagnosis and nationality [https://www.tai.ee/et/statistika-ja-registrid/vahiregister]. Data dictionary could not be found for this database.
| |
| | |
| '''Available type of information:''' Cases of malignant neoplasm; Age-specific incidence rate of malignant neoplasms per 100.000 inhabitants; Incidence rate of malignant neoplasms per 100.000 inhabitants filtered by specified site, sex, age group, year and county. More information about the data contained in the dataset [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__04PahaloomulisedKasvajad/?tablelist=true].
| |
| | |
| '''Source of Information:''' Data is updated from the Estonian population register (personal data, including time of leaving the country)
| |
| from the register of causes of death (death data, including the cause of death). Reporting cancer cases is mandatory for all doctors working in Estonia who diagnose or treat cancer. Forensic experts also submit data to the register.
| |
| | |
| '''Data level:''' Patient level.
| |
| | |
| '''Number of Records:''' Unknown.
| |
| | |
| '''Date Range:''' 1968 onwards.
| |
| | |
| '''Cancer Areas of Interest:''' All malignant tumors (C00-C97); Tumors in situ (D00–D09); Benign and unclear and unspecified tumors of the brain and central nervous system, as well as endocrine glands located in the brain region (D32.0–D33.9, D35.2–D35.4, D42.0–D43.9, D44.3–D44.5); Other neoplasms of lymphoid and hematopoietic tissue and similar tissues (D45-D47).
| |
| | |
| '''Open data access:''' Partially publicly available [https://statistika.tai.ee/pxweb/en/Andmebaas/], to access go to Population > Morbidity > Malignant neoplasms. Instructions to request data for restricted content [https://www.tai.ee/et/statistika-ja-registrid/vahiregister].
| |
| | |
| '''Information/Contact for data request:''' Contact information [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/02Haigestumus/04PahaloomulisedKasvajad/PKinfo_en.htm#kontakt].
| |
| | |
| === Database: Andmebaas Cause of Death ===
| |
| | |
| '''Sponsor, manager or home institution:''' The Health Statistics and Health Research Database; The National Institute for Health Development.
| |
| | |
| '''Primary purpose:''' The register collects and processes data on causes of death for various purposes, including the development of social policy, assessment of population health, and planning of preventive activities in the social and health sectors.
| |
| | |
| '''Type of information:''' Personal data of the deceased (sex, county, month, age group, year and municipality); Causes and circumstances of death; Socio-demographic data of the deceased (education, last place of residence, citizenship, etc.); Details of the basic documents and their authors [https://www.tai.ee/et/statistika-ja-registrid/surma-pohjuste-register]. Data dictionary could not be found for this database.
| |
| | |
| '''Available type of information:''' Data of cause of death by sex; county; month; age group; year and municipality. Data of causes of death, Autopsies, Preventable deaths, Amenable deaths, Infant deaths, Standardised mortality rates per 100.000 inhabitants and deaths per 100.000 inhabitants. More information about the data contained in the dataset [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__01Rahvastik__04Surmad/?tablelist=true].
| |
| | |
| '''Source of Information:''' The socio-demographic data of the deceased is provided by the Estonian population register, submitted by the doctors and coroners who have established the death.
| |
| | |
| '''Data level:''' Patient level.
| |
| | |
| '''Available data level:''' National level.
| |
| | |
| '''Number of Records:''' Unkown.
| |
| | |
| '''Date Range:''' 1989 onwards.
| |
| | |
| '''Cancer Areas of Interest:''' [[Cancer Areas of Interest: Andmebaas Cause of Death]].
| |
| | |
| '''Open data access:''' Partially publicly available [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__01Rahvastik], to access go to Population > Deaths. Instructions to request data for restricted content [https://www.tai.ee/et/kontakt/isikuandmete-paring].
| |
| | |
| '''Information/Contact for data request:''' Contact information [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/01Rahvastik/04Surmad/SDinfo_en.htm#kontakt].
| |
| | |
| === Database: Statistics Estonia Cause of Death ===
| |
| | |
| '''Sponsor, manager or home institution:''' Statistics Estonia.
| |
| | |
| '''Primary purpose:''' The database provides information on deaths of Estonian permanent residents, including causes of death, to be used for population statistics, mortality rate assessment, population forecasting, and comparison with other EU member states, as well as by various state institutions, statisticians, and international organizations.
| |
| | |
| '''Type of information:''' The number of deaths registered during the calendar year and the distribution of the dead by demographic indicators and medical causes of death; indicators are published in absolute and relative numbers (multipliers). By type of deceased settlement unit, place of residence and month of death, gender, age group, nationality, marital status, education level, cause of death. Perinatal deaths;
| |
| Stillbirths. Infant deaths by gender, age, place of residence, date of birth, mother's age, mother's marital status, mother's level of education.
| |
| | |
| '''Available type of information:''' Total deaths, death rate, standardized death multiplier, death per 100,000 population, cause of death, sex, and age.
| |
| | |
| '''Source of Information:''' Census.
| |
| | |
| '''Data level:''' Patient level.
| |
| | |
| '''Available data level:''' National level.
| |
| | |
| '''Number of Records:''' Unknown.
| |
| | |
| '''Date Range:''' 1989 onwards.
| |
| | |
| '''Cancer Areas of Interest:''' [[Cancer Areas of Interest: Statistics Estonia Cause of Death]].
| |
| | |
| '''Open data access:''' Partially publicly available [https://andmed.stat.ee/et/stat] to access go to Population > Population indicators and composition > Population and population composition. Instructions to request data for restricted content [https://www.stat.ee/sites/default/files/2020-08/Konfidentsiaalsete%20andmete%20teaduslikel%20eesm%c3%a4rkidel%20edastamise%20kord%202015.pdf].
| |
| | |
| '''Information/Contact for data request:''' Contact information [https://www.stat.ee/et/avasta-statistikat/metoodika-ja-kvaliteet/esms-metaandmed/30205#1-Kontaktandmed-0].
| |
| | |
| === Database: [https://rkav.tehik.ee/rkav/faces/pages/tegevuslubaForm/tegevuslubaOtsing.xhtml Activity License Registry] ===
| |
| | |
| '''Primary purpose:''' A search tool for any pharmacy, wholesale distributor or manufacturer
| |
| with an Estonian activity licence for handling medicines.
| |
| | |
| '''Sponsor, manager, or home institution:''' Estonian Agency of Medicine.
| |
| | |
| '''Available information:''' Site name, activity license holder, activity license number, county, city/town/village and type of activity license.
| |
| | |
| '''Level:''' City/town/village level.
| |
| | |
| === Database: [https://ravimiregister.ee/en/publichomepage.aspx Medical Products Registry] ===
| |
| | |
| '''Primary purpose:''' To have an account of all medicinal products and their packages sold in Estonia.
| |
| | |
| '''Sponsor, manager, or home institution:''' Estonian Agency of Medicine.
| |
| | |
| '''Available information:''' Active substance, pharmaceutical form, strength, information about the marketing authorisation, the last date of import, reference price, discount prices and rates, unique codes for package sizes, among other information.
| |
| <!--
| |
| == [[Databases for Clinical Trials, Surveys and Biobanks]] ==
| |
| -->
| |
| | |
| == [[Databases for Clinical Trials, Surveys and Biobanks]] ==
| |
| | |
| === Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE) ===
| |
| | |
| '''Primary purpose:''' A pan-European longitudinal survey of the elderly (50+) population, which focuses on the study of the course of the individual aging process and the causal relationships that influence it, for the monitoring of existing policy measures as well as the research-based initiation of new measures.
| |
| | |
| '''Sponsor, manager or home institution:''' The Max Planck Society Munich Centre for the Economics of Aging (MEA); The Estonian Institute for Population Studies.
| |
| | |
| '''Type of information:''' Self-assessment of health; Limitations in coping and daily activities; Health condition; Use of medicines; Mental health; Use of health and social services; Physical activity and body weight; Nutrition; Alcohol consumption; Smoking; A social network; Expectations and Satisfaction; Economic activity and material livelihood; Socio-economic background characteristics; Longitudinal indicators;
| |
| Health status; Living conditions and employment; Longitudinal data; Health and activity indicators for the 3rd wave and elderly poverty, coping and social relationships [http://share-estonia.ee/statistika/[6]]. [[Variables: SHARE Estonia]]. More information about the data contained in the dataset can be found [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__05Uuringud__08SHARE__03Terviseseisund/?tablelist=true here.] Questionnaires can be found [https://share-eric.eu/data/data-documentation/questionnaires here] in SHARE wave 4, 5 and 6. More methodological information can be found [https://share-eric.eu/fileadmin/user_upload/Release_Guides/SHARE_release_guide_8-0-0.pdf here]. Data dictionary could not be found for this database.
| |
| | |
| '''Data level:''' Respondent level.
| |
| | |
| '''Available data level:''' National and regional level.
| |
| | |
| '''Number of Records:''' Unknown.
| |
| | |
| '''Date Range:''' 2010 onwards.
| |
| | |
| '''Cancer Areas of Interest:''' Unknown.
| |
| | |
| '''Open data access:''' Data is partially publicly available. Publicly available data can be found [http://share-estonia.ee/statistika/ here]. Information on how to access the data can be found [https://share-eric.eu/data/data-access here.]
| |
| | |
| '''Information/Contact for data request:''' Contact information can be found [http://share-estonia.ee/kusitlustoo-organisatsioon/ here].
| |
| | |
| === Survey: The Estonian Health Interview Survey (ETeU) ===
| |
| | |
| '''Primary purpose:''' The aim of ETeU is to assess the health status of the Estonian population, the factors influencing it, the restrictions caused by health, the need for assistance, the use of health care services and to compare the results with previous surveys.
| |
| | |
| '''Sponsor, manager or home institution:''' National Institute for Health Development; Statistics Estonia.
| |
| | |
| '''Type of information:''' General data on the household and household members; Health status; Accidents and injuries; Mental health; Emotional feeling; Physical and sensory functional limitations; Taking care of yourself; Housework; Preventive actions; Sexual behavior; Studies and work; Place of residence; Childhood home; Social support; Use of outpatient care; Use of hospital and day care; Use of medicines; Smoking, Alcohol consumption; Drug use; Weight, Growth and physical activity, Eating habits, and attitudes [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/05Uuringud/01ETeU/03Haigused/ETUinfo_en.htm#metoodika [7]]. More information about the data contained in the dataset can be found [https://statistika.tai.ee/pxweb/et/Andmebaas/Andmebaas__05Uuringud here] in Health behavior and health > Estonian Health Survey. Questionnaires can be found [https://www.tai.ee/et/teadustoo/teadustoo-ulevaade/rahvastikupohised-uuringud/eesti-terviseuuring here] in Results and Publications > 2019 Survey.
| |
| | |
| '''Data level:''' Respondent level.
| |
| | |
| '''Available data level:''' Estonian residents aged 15 and older are surveyed.
| |
| | |
| '''Number of Records:''' Unknown.
| |
| | |
| '''Date Range:''' 1996 onwards.
| |
| | |
| '''Cancer Areas of Interest:''' Unknown.
| |
| | |
| '''Open data access:''' The data is openly available [https://statistika.tai.ee/pxweb/et/Andmebaas/Andmebaas__05Uuringud here] in Health and health behaviour > Estonian Health Interview Survey.
| |
| | |
| '''Information/Contact for data request:''' Contact information can be found [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/05Uuringud/01ETeU/03Haigused/ETUinfo_en.htm#kontakt here].
| |
| | |
| == [[Electronic Health Records]] ==
| |
| | |
| === Database: [https://www.tehik.ee/en/health-information-system Health Information System] ===
| |
| | |
| '''Primary Purpose:''' Allowing healthcare service providers to see and share patient information and healthcare data across the country.
| |
| | |
| '''Sponsor, manager, or home institution:''' Ministry of Social Affairs (sponsor); Health and Welfare Information Systems Centre - TEHIK (manager)
| |
| | |
| '''Number of records:''' Any Estonian citizen who used a healthcare service since 2008.
| |
| | |
| '''Data source:''' Data inserted by healthcare providers.
| |
| | |
| '''Date range:''' 2008 onwards.
| |
| | |
| '''Link/contact:''' [https://www.digilugu.ee/login Contact information.]
| |
| | |
| == [[Clinical Practices Guidelines]] ==
| |
| | |
| === [https://ravimiamet.ee/oigusaktid-juhendid-materjalid/oigusaktid-juhendid-ja-vormid/kliinilised-uuringud Good Practices Guidelines for Clinical Trials] ===
| |
| | |
| '''Primary purpose:''' To ensure the rights, safety and well-being of the participant according to the principles of the [https://www.wma.net/what-we-do/medical-ethics/declaration-of-helsinki/ Declaration of Helsinki].
| |
| | |
| '''Sponsor, manager or home institution:''' European Medicines Agency.
| |
| | |
| '''Level:''' National level.
| |
| | |
| '''Cancer Areas of Interest:''' All.
| |
| | |
| '''Availability in English:''' [https://www.ema.europa.eu/en/ich-e6-r2-good-clinical-practice-scientific-guideline Yes].
| |
| | |
| === Compilation: [https://ravimiamet.ee/oigusaktid-juhendid-materjalid/oigusaktid-juhendid-ja-vormid/kliinilised-uuringud Other Requirements for Clinical Trials] ===
| |
| | |
| == [[Latest Policymaking Initiatives]] ==
| |
| | |
| === National Plan: Action Plan for Cancer Control ===
| |
| | |
| '''Primary purpose:''' Reducing the number of cancer cases and deaths, and improving the quality of life of cancer patients.
| |
| | |
| '''Sponsor, manager or home institution:''' Ministry of Social Affairs; National Institute of Health Development; Estonian Cancer Society.
| |
| | |
| '''Level:''' National level.
| |
| | |
| '''Cancer ares of interest:''' All.
| |
| | |
| '''Information access:''' Access [https://www.tai.ee/et/valjaanded/vahitorje-tegevuskava-2021-2030 ].
| |
| | |
| === National Plan: Population Health Development Plan 2030 ===
| |
| | |
| '''Institution:''' Ministry of Social Affairs
| |
| | |
| '''Primary purpose:''' National health plan to increase life expectancy and quality of life during later years, and decrease healthcare inequalities.
| |
| | |
| '''Type of information:''' A detailed plan to deliver on the goals stated above, with data to support policy decisions, which includes cancer-related decision-making.
| |
| | |
| '''Level:''' National level.
| |
| | |
| '''Information access:''' Access [https://www.sm.ee/rahvastiku-tervise-arengukava-2020-2030].
| |
| | |
| === Report: The State of Healthcare Integration in Estonia Report ===
| |
| | |
| '''Institution:''' Estonian Health Insurance Fund.
| |
| | |
| '''Primary purpose:''' Assess healthcare integration in Estonia.
| |
| | |
| '''Type of information:''' Overview of the Estonian healthcare system, information about avoidable admissions to hospitals and specialist visits, hospital stay, NMIS procedures, patient behavior, provider behavior, care continuity, preventive services, and other various information.
| |
| | |
| '''Level:''' National level.
| |
| | |
| '''Information access:''' Information [https://www.haigekassa.ee/en/organisation/about-us/reports-and-studies].
| |
| | |
| === Report: "Quality Bonus System Needs Adjustment" Report ===
| |
| | |
| '''Institution:''' Estonian Health Insurance Fund.
| |
| | |
| '''Primary purpose:''' Point out flaws in the QBS system and suggest easy-to-make adjustments.
| |
| | |
| '''Type of information:''' Analysis of QBS score distribution including tables and graphs for various data, list of proposals for adjustments to the QBS system with details, among other information.
| |
| | |
| '''Level:''' National level.
| |
| | |
| '''Information access:''' Information [https://www.haigekassa.ee/en/organisation/about-us/reports-and-studies].
| |
| | |
| === Report: Healthcare Costs 2019 ===
| |
| | |
| '''Institution:''' National Institute for Health Development.
| |
| | |
| '''Primary purpose:''' Provide information about healthcare costs for anyone interested in healthcare.
| |
| | |
| '''Type of information:''' Total national health expenditure, comparisons to previous years, share of public sector and other details, household expenditures, and healthcare insurance fund expenditures, among others.
| |
| | |
| '''Level:''' National level.
| |
| | |
| '''Information access:''' Information [https://intra.tai.ee//images/prints/documents/161537779082_Tervishoiukulud_2019.pdf].
| |
|
| |
|
| === Guideline: Estonian Handbook for Guideline Development ===
| | [[hasCancerCenter::Tartu University Hospital]] |
|
| |
|
| '''Institution:''' Estonian Health Insurance Fund.
| | [[hasCancerCenter::North Estonia Medical Centre]] |
|
| |
|
| '''Primary purpose:''' To serve as an up-to-date practical resource for developing health guidelines.
| | [[hasCancerCenter::East Tallinn Central Hospital]] |
| | </div> |
|
| |
|
| '''Type of information:''' Guideline development process, topic proposals, evidence retrieving, report, dissemination of recommendations, among other topics.
| | == [[hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System]] == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| | </div> |
|
| |
|
| '''Level:''' National level.
| | == Administrative or Claims Data == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| '''Information access:''' Information [https://tervis.ut.ee/sites/default/files/inline-files/estonian_handbook_for_guidelines_development_2020.pdf].
| | === [[hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database]] === |
| | </div> |
|
| |
|
| === Policy: Marketing Authorization for a Drug === | | == Registries == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| '''Institution:''' Medicines Board
| | === [[hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry]] === |
|
| |
|
| '''Primary purpose:''' Legislation and Forms to inform the marketing authorization for drugs.
| | === [[hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry]] === |
|
| |
|
| '''Type of information:''' Medicine-related laws, regulations, conditions, requirements and statutes related to the authorization of drug marketing, guides and manuals to inform the process as well as forms that are required to be authorized.
| | === [[hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death]] === |
|
| |
|
| '''Level:''' National level.
| | === [[hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death]] === |
|
| |
|
| '''Information access:''' Information [https://ravimiamet.ee/oigusaktid-juhendid-materjalid/oigusaktid-juhendid-ja-vormid/ravimi-muugiluba].
| | === [[hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours]] === |
| | </div> |
|
| |
|
| === Policy: Handling of Medicine === | | == Databases for Clinical Trials, Surveys and Biobanks == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| '''Institution:''' Medicines Board
| | === [[hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)]] === |
|
| |
|
| '''Primary purpose:''' Legislation and Forms to inform the handling of drugs.
| | === [[hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)]] === |
| | </div> |
|
| |
|
| '''Type of information:''' Medicine-related laws, regulations, conditions, requirements and statutes related to the handling of drugs, guides to inform the handling of drugs as well as forms that are required to be authorized to handle drugs.
| | == Clinical Practice Guidelines == |
| | === [[hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline]] === |
|
| |
|
| '''Level:''' National level.
| | == Electronic Health Records == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| '''Information access:''' Information [https://ravimiamet.ee/oigusaktid-juhendid-materjalid/oigusaktid-juhendid-ja-vormid/ravimite-kaitlemine].
| | === [[hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System]] === |
| | </div> |
|
| |
|
| === Compilation: Other Estonian Health Legislation === | | == Latest Policymaking Initiatives == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| '''Information access:''' Information [https://www.haigekassa.ee/en/partner/legislation].
| | === [[hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control]] === |
|
| |
|
| == [[Cancer-related Patient Associations and Resources]] == | | === [[hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia]] === |
|
| |
|
| === Patient Association: "Gift of Life" Foundation === | | === [[hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's]] === |
|
| |
|
| '''Primary purpose:''' To support cancer treatment not covered by the Estonian Health Insurance Fund.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023]] === |
|
| |
|
| '''Level:''' National level.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Estonia)|Report: EU Country Cancer Profile 2025]] === |
|
| |
|
| '''Information access:''' Information [https://kingitudelu.ee/for-cancer-patients].
| | === [[hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival]] === |
| <!-- | | </div> |
| This RSS feed shows the Public Information Act updates.
| |
|
| |
|
| <rss max=3 highlight="Test RSS">https://www.riigiteataja.ee/en/tolge/versions?grupiId=100220</rss> | | == Cancer-related Patient Associations and Resources == |
| -->
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| === Compilation: ESMO Patient Guides === | | === [[hasPatientAssociation::Patient Association: Estonian Cancer Society (Europa Donna Estonia) (Estonia)|Patient Association: Estonian Cancer Society (Europa Donna Estonia)]] === |
|
| |
|
| '''Sponsor, manager or home institution:''' European Society for Medical Oncology
| | === [[hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation]] === |
|
| |
|
| '''Primary purpose:''' To translate complex medical language into understandable information for patients.
| | === [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Estonia)|Patient Guides: ESMO Patient Guides Compilation]] === |
|
| |
|
| '''Available guides:''' Cancer Care During the COVID-19 Pandemic; Bone Sarcoma; Colorectal Cancer; Non-Small-Cell Lung Cancer; Soft Tissue Sarcomas.
| | === [[hasPatientGuides::Patient Guides: Ravijuhend Patient Guides (Estonia)|Patient Guides: Ravijuhend Patient Guides]] === |
|
| |
|
| '''Type of information:''' Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
| | == [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research]] == |
| | </div> |
|
| |
|
| '''Access to information:''' List of guides [https://www.esmo.org/for-patients/patient-guides/patient-guides-by-language/cancer-patient-guides-in-russian [8]]. | | __NOTOC__ |
| | <span style="display:none">hasCancerCenter::Tartu University Hospital</span> |
| | <span style="display:none">hasCancerCenter::North Estonia Medical Centre</span> |
| | <span style="display:none">hasCancerCenter::East Tallinn Central Hospital</span> |
| | <span style="display:none">hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System</span> |
| | <span style="display:none">hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database</span> |
| | <span style="display:none">hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry</span> |
| | <span style="display:none">hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry</span> |
| | <span style="display:none">hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death</span> |
| | <span style="display:none">hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death</span> |
| | <span style="display:none">hasDatabase::Statistics_Estonia:_Malignant_Tumours_(Estonia)|Statistics Estonia: Malignant Tumours</span> |
| | <span style="display:none">hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)</span> |
| | <span style="display:none">hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)</span> |
| | <span style="display:none">hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Palliative Care Treatment Guideline</span> |
| | <span style="display:none">hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System</span> |
| | <span style="display:none">hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control</span> |
| | <span style="display:none">hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia</span> |
| | <span style="display:none">hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's</span> |
| | <span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023</span> |
| | <span style="display:none">hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival</span> |
| | <span style="display:none">hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation</span> |
| | <span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Estonia)|Compilation: ESMO Patient Guides</span> |
| | <span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research</span> |
| | <span style="display:none">hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours</span> |
| | <span style="display:none">hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline</span> |
| | <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> |
| | <span style="display:none">hasCancerType::C00-C97: All cancer types</span> |
| | <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> |
| | <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> |
| | <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> |
| | <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> |
| | <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> |
| | <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> |
| | <span style="display:none">hasCancerType::C50: Breast cancer</span> |
| | <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> |
| | <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> |
| | <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> |
| | <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> |
| | <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> |
| | <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> |
| | <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> |
| | <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> |
| | <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> |
| | <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> |
| | <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> |
| | <span style="display:none">hasCancerType::unknown</span> |