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| | <span style="display:none">forresearchers</span> |
| | <span style="display:none">forpatients</span> |
| | <span style="display:none">forproviders</span> |
| | <span style="display:none">forpolicymakers</span> |
| | <span style="display:none">portugalcountry</span> |
| [https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.] | | [https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.] |
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| <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| [[Instituto Português de Oncologia do Porto Francisco Gentil]] | | [[hasCancerCenter::Instituto Português de Oncologia do Porto Francisco Gentil]] |
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| [[Instituto Português de Oncologia de Lisboa Francisco Gentil]] | | [[hasCancerCenter::Instituto Português de Oncologia de Lisboa Francisco Gentil]] |
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| [[Instituto Português de Oncologia de Coimbra Francisco Gentil]] | | [[hasCancerCenter::Instituto Português de Oncologia de Coimbra Francisco Gentil]] |
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| </div> | | </div> |
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| == [[hasHealthcareSystem::Healthcare_System_(Portugal)|Healthcare System]] == | | == [[hasHealthcareSystem::Healthcare_System_(Portugal)|Healthcare System]] == |
| <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| [[dct:title::Portugal]] provides universal healthcare to all its residents, including the unemployed and illegal immigrants. There are also health insurance schemes that provide coverage for specific sectors, both public and private. Citizens can also opt for private health insurance schemes. The system providing healthcare in Portugal is called Serviço Nacional de Saúde (SNS), managed by the Ministry of Health, and is mainly funded through general taxation, but a third of its funding comes from the private sector such as out-of-pocket payments via co-funding or direct payment by the patient.
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| Primary care in Portugal is delivered through a combination of public and private healthcare providers, with the National Health Service (NHS) primarily offering primary and acute general and specialized hospital care. While dental consultations, diagnostic services, renal dialysis, and rehabilitation services are mostly offered by private healthcare providers, these services are often funded by the government under contractual agreements with the NHS. Secondary and tertiary care is mainly provided in hospitals organized into Hospital Centres based on geographical location.
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| Portugal's main statistical authority is the Instituto Nacional de Estatística (INE), responsible for the production and dissemination of official statistics that ensure the supervision and the technical and scientific coordination of the National Statistical System.
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| </div> | | </div> |
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| === [[hasDatabase::Database:_Hospital_Morbidity_Data_Base_(Portugal)|Database: Hospital Morbidity Data Base]] === | | === [[hasDatabase::Database:_Health_Care_Personnel_Statistics_(Portugal)|Database: Health Care Personnel Statistics]] === |
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| {{#subobject:Diagnosis Related Groups (GDH)
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| |dct:title=Diagnosis Related Groups (GDH)
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| |datatype=administrative
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| }}
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| [https://www2.acss.min-saude.pt/DepartamentoseUnidades/DepartamentoGest%C3%A3oeFinanciamentoPrestSa%C3%BAde/SClassifica%C3%A7%C3%A3oDoentes/GruposdeDiagn%C3%B3sticosHomog%C3%A9neos/tabid/460/language/pt-PT/Default.aspx]
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| '''Primary purpose:''' Collect and make available information regarding the use of resources related to inpatient care.
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| '''Sponsor, manager or home institution''': Serviço Nacional de Saúde (SNS) and Administração Central do Sistema de saúde (ACSS).
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| '''Type of information''': [[Data dictionary: Hospital Morbidity Database]].
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| '''Available type of information''': Number of outpatients, equivalent patients, and average delay considering the following variables: Hospitalization, Surgical hospitalization, Medical ICU, Outpatient, Surgical Outpatient, % Outpatient Surgical/Total Scheduled Surgical, and Medical Outpatient.
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| '''Source of information''': Portugal's hospitals.
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| '''Data level''': Patient level.
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| '''Available data level''': Hospital level.
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| '''Number of Records:''' Unknown.
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| '''Date range''': 1993 onwards (restricted access); 2011-2014 (open access).
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| '''Cancer Areas of Interest:''' Lymphatic malignancies and/or other malignancies and/or neoplasms of uncertain behavior; Major procedures in BO for lymph nodes/hematopoietic organs or other; Malignant diseases of the ear, nose, mouth, throat, head/face; Malignant diseases of the kidney and/or urinary tract; Procedures in the kidney and/or urinary tract, due to malignant diseases; Malignant diseases of the male reproductive system; Malignant diseases of the female reproductive system; Musculoskeletal malignancies and/or pathological fractures due to musculoskeletal malignancies; Malignant breast disorders; In utero and/or adnexal procedures for non-ovarian and/or non-adnexal malignancy; In utero and/or adnexal procedures for ovarian and/or adnexal malignancy; Procedures in the uterus and/or adnexa for non-malignant disease other than uterine fibroids; Malignant diseases of the digestive system; Respiratory malignancies; Malignant diseases of the hepatobiliary system and/or pancreas; Malignant diseases of the nervous system; Lymphoma, myeloma and non-acute leukemia; Other procedures in BO for lymphatic neoplasms/hematopoietic organs or other.
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| '''Data access''': Partially publicly available [https://www2.acss.min-saude.pt/DepartamentoseUnidades/DepartamentoGest%C3%A3oeFinanciamentoPrestSa%C3%BAde/SClassifica%C3%A7%C3%A3oDoentes/GruposdeDiagn%C3%B3sticosHomog%C3%A9neos/Produ%C3%A7%C3%A3oNacional/tabid/922/language/pt-PT/Default.aspx]. Instructions to request data for restricted content [https://www.acss.min-saude.pt/2017/09/18/pedido_informacao/].
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| '''Contact information''': Information [https://www2.acss.min-saude.pt/Institucional/Contactos/tabid/95/language/pt-PT/Default.aspx].
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| </div> | | </div> |
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| === [[hasDatabase::Database:_Mortality_by_Malignant_Neoplasms_(Portugal)|Database: Mortality by Malignant Neoplasms]] === | | === [[hasDatabase::Database:_Mortality_by_Malignant_Neoplasms_(Portugal)|Database: Mortality by Malignant Neoplasms]] === |
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| {{#subobject:Mortality by Malignant Neoplasms
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| |dct:title=Mortality by Malignant Neoplasms
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| |datatype=registry
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| }}
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| [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008461&xlang=pt&contexto=bd&selTab=tab2]
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| [https://www.ine.pt/ngt_server/attachfileu.jsp?look_parentBoui=259457183&att_display=n&att_download=y] [https://www.ine.pt/bddXplorer/htdocs/minfo.jsp?var_cd=0008461&lingua=EN]
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| '''Primary purpose:''' Provide information regarding the national mortality and its social and demographic distribution.
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| '''Sponsor, manager or home institution''': Instituto Nacional de Estatística (INE).
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| '''Type of information''': [[Data dictionary - Mortality by malignant neoplasms Portugal]].
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| '''Available type of information:''' Number of deaths; Data reference period; Year; Region of residence; Sex; Age group; Death cause; Type of cancer; Potential years of life lost; Rate of potential years of life lost (per 100 000 inhabitants); Mortality rate (per 100 000 inhabitants or in percentage); Standardized mortality rate (per 100 000 inhabitants).
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| The following indicators are also available and can be filtered by sex and region of residence:
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| *Potential years of life lost by type of cancer [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0003990&xlang=pt&contexto=bd&selTab=tab2].
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| *Rate of potential years of life lost (per 100 000 inhabitants) by type of cancer [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0003824&xlang=pt&contexto=bd&selTab=tab2].
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| *Mortality rate (per 100 000 inhabitants or in percentage) by type of cancer [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008709&xlang=pt&contexto=bd&selTab=tab2].
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| *Standardized mortality rate (per 100 000 inhabitants) by type of cancer [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0003796&xlang=pt&contexto=bd&selTab=tab2].
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| *Standardized mortality rate (per 100 000 inhabitants) by type of cancer regarding people 65 years of age and older [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0005069&xlang=pt&contexto=bd&selTab=tab2].
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| *Standardized mortality rate (per 100 000 inhabitants) by type of cancer regarding people younger than 65 years of age [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0005043&xlang=pt&contexto=bd&selTab=tab2].
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| '''Source of information''': Data collection through the notary offices and registered in the Integrated System for Civil Registration and Identification (SIRIC).
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| '''Data level''': Patient level.
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| '''Available data level''': Regional level.
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| '''Number of Records:''' Unknown.
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| '''Date range''': Regional level (2002 onwards) and Patient level (1998 onwards).
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| '''Cancer Areas of Interest:''' [[Cancer areas of interest - Mortality by malignant neoplasms Portugal]].
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| '''Data access''': Partially publicly available [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008461&selTab=tab0]. Instructions to request data for restricted content [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_serv_clientes&INST=161301979&ine_smenu.boui=161302718&ine_smenu.selected=161302852].
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| '''Contact information''': Information [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_cont_inst&ine_smenu.boui=13711615&INST=56501].
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|
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| === [[hasDatabase::Database:_Health_Care_Personnel_Statistics_(Portugal)|Database: Health Care Personnel Statistics]] ===
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| {{#subobject:Health Care Personnel Statistics
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| |dct:title=Health Care Personnel Statistics
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| |datatype=registry
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| }}
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| [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008465&xlang=pt&contexto=bd&selTab=tab2]
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| [https://smi.ine.pt/UploadFile/Download/370]
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| '''Primary purpose:''' Publish statistics on the number of health professionals registered in professional organizations.
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| '''Sponsor, manager or home institution''': Instituto Nacional de Estatística (INE).
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| '''Type of information''': Number of medical specialists filtered by place of residence, gender and specialty, subspecialty or competence. Considering the cancer area, the database presents information about the number of medical and pediatric oncology professionals.
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| '''Source of information''': Regarding the information about oncologists, the source is the Medical Association.
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| '''Data level''': Regional level.
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|
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| '''Number of Records:''' Unknown.
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|
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| '''Date range''': 2011 onwards.
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| '''Cancer Areas of Interest:''' Unknown.
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|
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| '''Data access''': Publicly available [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008465&xlang=pt&contexto=bd&selTab=tab2].
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|
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| '''Contact information''': Information [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_cont_inst&ine_smenu.boui=13711615&INST=56501].
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| === [[hasDatabase::Database:_Cancer_Screening_Monitoring_(Portugal)|Database: Cancer Screening Monitoring]] === | | === [[hasDatabase::Database:_Cancer_Screening_Monitoring_(Portugal)|Database: Cancer Screening Monitoring]] === |
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| {{#subobject:Cancer Screening Monitoring
| | === [[hasDatabase::Database:_National_Cancer_Registry_(RON)_(Portugal)|Database: National Cancer Registry (RON)]] === |
| |dct:title=Cancer Screening Monitoring
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| |datatype=registry
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| }}
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| [https://www.dgs.pt/portal-da-estatistica-da-saude/diretorio-de-informacao/diretorio-de-informacao/por-anos-dos-dados-1288900-pdf.aspx?v=%3d%3dDwAAAB%2bLCAAAAAAABAArySzItzVUy81MsTU1MDAFAHzFEfkPAAAA]
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| '''Primary purpose:''' Promote the early diagnosis of cancer in order to start treatment early and thus decrease the national cancer mortality rate.
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| '''Sponsor, manager or home institution''': Direção Geral da Saúde (DGS).
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| '''Type of information''': Information regarding breast, cervical, colon, and rectal cancer screening. Examples of available data are the screening adherence rate, test positivity rate, geographic coverage rate, coverage rate by region, and number of eligible populations.
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| '''Source of information''': Forms filled out by the regional Health Administrations and the Autonomous Regions of Portugal.
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| '''Data level''': Regional level.
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| '''Number of Records:''' Unknown.
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| '''Date range''': The project occurs since 1990. Regional-level data is available from 2014 onwards.
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| '''Cancer Areas of Interest:''' Breast, cervical, colon, and rectal cancer.
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| '''Data access''': Publicly available [https://transparencia.sns.gov.pt/explore/dataset/rastreios-oncologicos/information/?disjunctive.regiao&disjunctive.aces&sort=tempo&dataChart=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]. Monitoring reports are available at the General Health Directorate (DGS) [https://www.dgs.pt/paginas-de-sistema/saude-de-a-a-z/programa-nacional-para-as-doencas-oncologicas/relatorios-e-publicacoes.aspx]. The 2015 report information [https://comum.rcaap.pt/bitstream/10400.26/15603/1/d217357.pdf].
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| '''Contact information''': Information [https://www.dgs.pt/a-dgs/localizacao-e-contactos.aspx].
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| === [[hasDatabase::Database:_Cancer_Incidence,_Survival_and_Mortality_in_the_Southern_Region_of_Portugal_(ISM)_(Portugal)|Database: Cancer Incidence, Survival and Mortality in the Southern Region of Portugal (ISM)]] === | |
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| {{#subobject:Cancer Incidence, Survival and Mortality in the Southern Region of Portugal (ISM)
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| |dct:title=Cancer Incidence, Survival and Mortality in the Southern Region of Portugal (ISM)
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| |datatype=registry
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| }}
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| [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf]
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| '''Primary purpose:''' Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following regions: health regions of Lisboa e Vale do Tejo (LVT), Alentejo, Algarve and the Autonomous Region of Madeira.
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| '''Sponsor, manager or home institution''': National Cancer Registry (RON) and Regional Oncology Registry South (ROR-Sul).
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| '''Type of information''': Survival; Age; Year; Gender; Incidence rates; Tumor location; Mortality rates; Patient name; Date of birth; Address; Diagnosis; Tumor; Treatment fields; Diagnosis dates; Basis of diagnosis; Primary location; Histologic type; Behavior; Stage; Treatment start date; Treatment sequence; Patient vital status; Date of death and cause of death.
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| '''Source of information''': Data from public and private health institutions of the region.
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| '''Data level''': Patient level.
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| '''Available data level''': Regional level.
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| '''Number of Records:''' Unknown.
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| '''Date range''': Regional level is presented from 2002 to 2017, and 1998 - 2000/2001. The patient level date range is unknown.
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| '''Cancer Areas of Interest:''' The list can be checked on page 25 of the document [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf].
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| '''Data access''': Partially publicly available. Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website [https://ron.min-saude.pt/pt/biblioteca/publicacoes-diversas/nacionais/?page=1]. Instructions to request data for restricted content [https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf].
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| '''Contact information''': Information [https://www.dgs.pt/site/contactos.aspx].
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| === [[hasDatabase::Database:_Cancer_Survival_and_Incidence_in_the_Northern_Region_of_Portugal_(Portugal)|Database: Cancer Survival and Incidence in the Northern Region of Portugal]] ===
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| {{#subobject:Cancer Survival and Incidence in the Northern Region of Portugal
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| |dct:title=Cancer Survival and Incidence in the Northern Region of Portugal
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| |datatype=registry
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| }}
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| [https://ron.min-saude.pt/media/1578/sobreviv%C3%AAncia-2009-2010.pdf] [https://ron.min-saude.pt/media/1576/roreno-2011.pdf]
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| '''Primary purpose:''' Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following districts: Braga, Bragança, Porto, Viana do Castelo and Vila Real.
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| '''Sponsor, manager or home institution''': National Cancer Registry (RON) and Northern Regional Oncology Registry (RORENO).
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| '''Type of information''': Cancer survival; Gender; Type of tumor; Time since diagnosis; Age; Year; Region; Cancer incidence; Tumor location.
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| Patient name; Date of birth; Address; Diagnosis; Tumor; Treatment fields; Diagnosis dates; Basis of diagnosis; Primary location; Histologic type; Behavior; Stage; Treatment start date; Treatment sequence; Patient vital status; Date of death and cause of death.
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| '''Source of information''': Data from public and private health institutions of the region.
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| '''Data level''': Patient level.
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| '''Available data level''': Regional level.
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| '''Number of Records:''' Unknown.
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| '''Date range''': Incidence is presented from 1988 to 2011. Survival ranges from 2005 to 2010.
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| '''Cancer Areas of Interest:''' Survival - all tumors except basal cellular and squamous cell tumors of the skin. Incidence - all tumors except basal cell carcinomas and nonspecific tumors of the skin.
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| '''Data access''': Partially publicly available. Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website [https://ron.min-saude.pt/pt/biblioteca/publicacoes-diversas/nacionais/?page=1]. Instructions to request data for restricted content [https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf].
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| '''Contact information''': Information [https://www.dgs.pt/site/contactos.aspx].
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| === [[hasDatabase::Database:_Cancer_Survival_and_Incidence_in_the_Central_Region_of_Portugal_(Portugal)|Database: Cancer Survival and Incidence in the Central Region of Portugal]] ===
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| {{#subobject:Cancer Survival and Incidence in the Central Region of Portugal
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| |dct:title=Cancer Survival and Incidence in the Central Region of Portugal
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| |datatype=registry
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| }}
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| [https://ron.min-saude.pt/media/2073/publica%C3%A7%C3%A3o-2010.pdf]
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| '''Primary purpose:''' Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following districts: Aveiro, Castelo Branco, Coimbra, Guarda, Leiria e Viseu.
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| '''Sponsor, manager or home institution''': National Cancer Registry (RON) and Central zone regional oncology registry (ROR-Centro).
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| '''Type of information''': Cancer incidence; Sex, Age; Year; Tumor location; Patient name; Date of birth; Address; Diagnosis; Tumor; Treatment fields; Diagnosis dates; Basis of diagnosis; Primary location; Histologic type; Behavior; Stage; Treatment start date; Treatment sequence; Patient vital status; Date of death and cause of death.
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| '''Source of information''': Data from public and private health institutions of the region.
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| '''Data level''': Patient level.
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| '''Available data level''': Regional level.
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| '''Number of Records:''' Unknown.
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| '''Date range''': 1989 - 2010.
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| '''Cancer Areas of Interest:''' List is available on page 3 of the document [https://ron.min-saude.pt/media/2073/publicação-2010.pdf].
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| '''Data access''': Partially publicly available. Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website [https://ron.min-saude.pt/pt/biblioteca/publicacoes-diversas/nacionais/?page=1]. Instructions to request data for restricted content [https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf].
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| '''Contact information''': Information [https://www.dgs.pt/site/contactos.aspx].
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| === [[hasDatabase::Database:_Cancer_Incidence_in_Portugal_(Portugal)|Database: Cancer Incidence in Portugal]] ===
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| {{#subobject:Cancer Incidence in Portugal
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| |dct:title=Cancer Incidence in Portugal
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| |datatype=registry
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| }}
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| [https://ron.min-saude.pt/media/2214/ron-2019_new_v8f.pdf]
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| '''Primary purpose:''' Inform about cancer statistics regarding all regions of Portugal.
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| '''Sponsor, manager or home institution''': National Cancer Registry (RON).
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| '''Type of information''': Number of new cancer cases; Age; Sex; Tumor site; Place of residence; Cancer incidence rates per 100,000 persons; Mortality; Tumor type; Patient name; Date of birth; Address; Diagnosis; Tumor; Treatment fields; Diagnosis dates; Basis of diagnosis; Primary location; Histologic type; Behavior; Stage; Treatment start date; Treatment sequence; Patient vital status; Date of death and cause of death.
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| '''Source of information''': Data from public and private health institutions in Portugal.
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| '''Data level''': Patient level.
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| '''Available data level''': Regional level.
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| '''Number of Records:''' Unknown.
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| '''Date range''': 2001 - 2019.
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| '''Cancer Areas of Interest:''' Oral cavity and pharynx; Peritoneum and digestive organs; Respiratory system and intrathoracic organs; Hematopoietic system and endothelial reticulum; Genito-urinary organs; Breast; Eye and lacrimal gland; Nervous system; Endocrine glands; Soft tissue; Lymph nodes; bones and joints; Primary of unknown origin; Skin melanoma; Other tumors.
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| '''Data access''': Reports with regional data can be accessed through the RON publications section on the National Cancer Registry website [https://ron.min-saude.pt/pt/biblioteca/publicacoes-ron/]. Instructions to request data for restricted content [https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf].
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| '''Contact information''': Information [https://www.dgs.pt/site/contactos.aspx].
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| </div> | | </div> |
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| === [[hasDatabase::Survey:_National_Health_Interview_Survey_(INS)_(Portugal)|Survey: National Health Interview Survey (INS)]] === | | === [[hasDatabase::Survey:_National_Health_Interview_Survey_(INS)_(Portugal)|Survey: National Health Interview Survey (INS)]] === |
|
| |
|
| {{#subobject:National Health Interview Survey (INS)
| | </div> |
| |dct:title=National Health Interview Survey (INS)
| |
| |datatype=survey
| |
| }}
| |
|
| |
|
| [https://www.ine.pt/ngt_server/attachfileu.jsp?look_parentBoui=451800443&att_display=n&att_download=y]
| | == Clinical Practices Guidelines == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| '''Primary purpose:''' Publish statistics on health status, health care and health determinants, and socio-demographic characteristics of the population to enable the study and improvement of these areas.
| | === [[hasClinicalGuidelines::Guidelines: SPED National Guidelines Compilation (Portugal)|Guidelines: SPED National Guidelines Compilation]] === |
| | |
| '''Sponsor, manager or home institution''': Instituto Nacional de Estatística (INE).
| |
| | |
| '''Available type of information''': Regarding cancer prevention information, contains the percentage of the female resident population aged 50 to 69 years who reported having had mammography done in the 2 years prior to the interview and the female resident population aged 20 to 69 years who reported having had cervical cytology done in the 3 years prior to the interview, both filtered by education level and region of residence.
| |
| | |
| '''Type of information''': [[Data Dictionary - INS Portugal]].
| |
| | |
| '''Source of information''': Instituto Nacional de Estatística (INE).
| |
| | |
| '''Data level''': Patient level.
| |
| | |
| '''Available data level''': National level.
| |
| | |
| '''Number of Records:''' Unknown.
| |
| | |
| '''Date range''': 2005 onwards. It occurs on a five-year basis.
| |
| | |
| '''Cancer Areas of Interest:''' Breast and cervix neoplasms.
| |
| | |
| '''Data access''': Partially publicly available. Mammography examination information [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008934&xlang=pt&contexto=bd&selTab=tab2], [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008052&xlang=pt&contexto=bd&selTab=tab2], [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008812&xlang=pt&contexto=bd&selTab=tab2]; Cervical cytology information [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008925&xlang=pt&contexto=bd&selTab=tab2], [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008051&xlang=pt&contexto=bd&selTab=tab2], [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008813&xlang=pt&contexto=bd&selTab=tab2]. Instructions to request data for restricted content [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_ped_informacao].
| |
| | |
| '''Contact information''': Information [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_cont_inst&ine_smenu.boui=13711615&INST=56501].
| |
| </div> | | </div> |
|
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| <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| === [[hasReport::Reports:_National_Institute_of_Statistics_(Portugal)|Reports: National Institute of Statistics]] === | | === [[hasReport::Reports:_National_Health_Statistics_(Portugal)|Reports: National Health Statistics]] === |
| | |
| {{#subobject:Patient Associations
| |
| |dct:title=Patient Associations
| |
| |datatype=policymaking
| |
| }}
| |
| | |
| '''Sponsor, manager or home institution:''' Instituto Nacional de Estatística.
| |
| | |
| '''Primary purpose:''' To present health statistics for Portugal, covering various health-related topics with geographic breakdown, including health status, hospitals, pharmacy, healthcare personnel, births, mortality, and more.
| |
| | |
| '''Type of information:''' Cancer mortality; Cancer diseases; Percent distribution of deaths from malignant tumors.
| |
| | |
| '''Data level:''' National level.
| |
| | |
| '''Access to information:''' Access Information [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_publicacoes&PUBLICACOESpub_boui=11677508&PUBLICACOEStema=55538&PUBLICACOESmodo=2].
| |
| | |
| === [[Report: National Health Service (Portugal)]] ===
| |
| | |
| {{#subobject:National Health Service
| |
| |dct:title=National Health Service
| |
| |datatype=policymaking
| |
| }}
| |
| | |
| '''Sponsor, manager or home institution:''' Programa Nacional de Saúde.
| |
| | |
| '''Primary purpose:''' To synthesize available information on oncological diseases in Portugal, utilizing data from various documentary sources within the National Health Service (SNS).
| |
| | |
| '''Type of information:''' Mortality from Malignant Tumors; Incidence of Malignant Tumors; Coverage of breast, cervical and colorectal screenings; Hospital production with Main Diagnosis of Malignant Neoplasia; Number of cancer patients undergoing treatment with radiotherapy; Number of Surgeries for Malignant Neoplasms; Surgical activity in malignant neoplasms.
| |
| | |
| '''Data level:''' National level.
| |
| | |
| '''Access to information:''' Access Information [https://www.dgs.pt/portal-da-estatistica-da-saude/diretorio-de-informacao/diretorio-de-informacao/por-serie-1219986-pdf.aspx?v=%3d%3dDwAAAB%2bLCAAAAAAABAArySzItzVUy81MsTU1MDAFAHzFEfkPAAAA].
| |
| | |
| === Report: National Oncology Registry ===
| |
| | |
| {{#subobject:National Oncology Registry
| |
| |dct:title=National Oncology Registry
| |
| |datatype=policymaking
| |
| }}
| |
| | |
| '''Sponsor, manager or home institution:''' Registro Oncológico Nacional.
| |
| | |
| '''Primary purpose:''' To disseminate information regarding cancer incidence and mortality in Portugal, including data on tumor distribution, quality assessment, and comparison with previous years' incidences.
| |
| | |
| '''Type of information:''' Cancer incidence and mortality; Tumor distribution; Number and rate of cancer diseases; Most frequent tumors.
| |
| | |
| '''Data level:''' National and regional level.
| |
| | |
| '''Access to information:''' Access Information [https://ron.min-saude.pt/pt/biblioteca/publicacoes-ron/ron-2019/].
| |
| | |
| === Report: National Commission for Palliative Care (CNCP) ===
| |
| | |
| {{#subobject:National Commission for Palliative Care (CNCP)
| |
| |dct:title=National Commission for Palliative Care (CNCP)
| |
| |datatype=policymaking
| |
| }}
| |
| | |
| '''Sponsor, manager or home institution:''' Comissão Nacional de Cuidados Paliativos (CNCP).
| |
|
| |
|
| '''Primary purpose:''' To establish the strategic plan for the development of Palliative Care (CP) in Portugal, based on the National Palliative Care Network (RNCP) and the responsibilities of the National Commission for Palliative Care (CNCP).
| | === [[hasReport::Report:_National_Health_Service_(Portugal)|Report: National Health Service]] === |
|
| |
|
| '''Type of information:''' Estimate of the number of patients in need of palliative care; Estimate of required resources; Estimation of the need for palliative care beds; Palliative Care Units in Portugal.
| | === [[hasReport::Report:_National_Cancer_Registry_(RON)_(Portugal)|Report: National Cancer Registry (RON)]] === |
|
| |
|
| '''Data level:''' National level.
| | === [[hasReport::Report:_Southern_Regional_Oncology_Registry_(ROR-Sul)_(Portugal)|Report: Southern Regional Oncology Registry (ROR-Sul)]] === |
|
| |
|
| '''Access to information:''' Access Information [https://www.sns.gov.pt/wp-content/uploads/2016/09/Plano-Estratégico-CP_2017-2018-1-1.pdf].
| | === [[hasReport::Report:_Northern_Regional_Oncology_Registry_(RORENO)_(Portugal)|Report: Northern Regional Oncology Registry (RORENO)]] === |
|
| |
|
| === Report: EU Country Cancer Profile 2023 === | | === [[hasReport::Report:_Centro_Regional_Oncology_Registry_(ROR-Centro)_(Portugal)|Report: Centro Regional Oncology Registry (ROR-Centro)]] === |
|
| |
|
| {{#subobject:EU Country Cancer Profile 2023
| | === [[hasReport::Report:_National_Commission_for_Palliative_Care_(CNCP)_(Portugal)|Report: National Commission for Palliative Care (CNCP)]] === |
| |dct:title=EU Country Cancer Profile 2023
| |
| |datatype=policymaking
| |
| }}
| |
|
| |
|
| '''Sponsor, manager or home institution:''' OECD and European Commission.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Portugal)|Report: EU Country Cancer Profile 2023]] === |
|
| |
|
| '''Primary purpose:''' To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Portugal)|Report: EU Country Cancer Profile 2025]] === |
|
| |
|
| '''Type of information:''' National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
| | === [[hasReport::Report:_National_Strategy_to_Fight_Cancer,_2030_horizon_(Portugal)|Report: National Strategy to Fight Cancer, 2030 horizon]] === |
| | |
| '''Data level''': National level.
| |
| | |
| '''Access to information:''' Access Information [https://www.oecd-ilibrary.org/social-issues-migration-health/perfil-sobre-cancro-por-pais-portugal-2023_40186a6b-pt].
| |
| </div> | | </div> |
|
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| <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| === Patient Associations === | | === [[hasPatientAssociation::Patient Association: Liga Portuguesa Contra o Cancro (Europa Donna Portugal) (Portugal)|Patient Association: Liga Portuguesa Contra o Cancro (Europa Donna Portugal)]] === |
| | |
| {{#subobject:Patient Associations
| |
| |dct:title=Patient Associations
| |
| |datatype=group
| |
| }}
| |
| | |
| '''Sponsor, manager or home institution:''' Various institutions.
| |
| | |
| '''Primary purpose:''' To enhance oncology patient care by fostering collaboration, active participation, and communication, allowing users to influence healthcare strategies and priorities, with the associations serving as key intermediaries for user concerns.
| |
| | |
| '''Access to information:''' Information [https://ipoporto.pt/eu-cidadao/associacoes-de-doentes/].
| |
| | |
| === Compilation: ESMO Patient Guides ===
| |
| | |
| '''Sponsor, manager or home institution:''' European Society for Medical Oncology.
| |
| | |
| '''Primary purpose:''' To translate complex medical language into understandable information for patients.
| |
|
| |
|
| '''Available guides:''' Colorectal Cancer.
| | === [[hasPatientAssociation::Patient Association: Patient Associations Compilation (Portugal)|Patient Association: Patient Associations Compilation]] === |
|
| |
|
| '''Type of information:''' Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
| | === [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Portugal)|Patient Guides: ESMO Patient Guides Compilation]] === |
|
| |
|
| '''Access to information:''' List of guides [https://www.esmo.org/for-patients/patient-guides/patient-guides-by-language/cancer-patient-guides-in-portuguese].
| | === [[hasPatientResource::Self-help_Group:_Careca_Power_(Portugal)|Self-help Group: Careca Power]] === |
| </div> | | </div> |
|
| |
|
| == Quality of Life and Palliative Care Research == | | == [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Portugal)|Quality of Life and Palliative Care Research]] == |
|
| |
|
| '''List of Articles:''' Quality of Life [https://pubmed.ncbi.nlm.nih.gov/?term=Quality+of+Life%5BMeSH%5D+AND+Portugal%5BAffiliation%5D+AND+cancer&filter=pubt.clinicaltrial&filter=pubt.meta-analysis&filter=pubt.randomizedcontrolledtrial&filter=pubt.systematicreview] and Palliative Care [https://pubmed.ncbi.nlm.nih.gov/?term=Palliative+Care%5BMeSH%5D+AND+Portugal%5BAffiliation%5D+AND+cancer&filter=pubt.clinicaltrial&filter=pubt.meta-analysis&filter=pubt.randomizedcontrolledtrial&filter=pubt.systematicreview].
| | __NOTOC__ |
| | <span style="display:none">hasCancerCenter::Instituto Português de Oncologia do Porto Francisco Gentil</span> |
| | <span style="display:none">hasCancerCenter::Instituto Português de Oncologia de Lisboa Francisco Gentil</span> |
| | <span style="display:none">hasCancerCenter::Instituto Português de Oncologia de Coimbra Francisco Gentil</span> |
| | <span style="display:none">hasHealthcareSystem::Healthcare_System_(Portugal)|Healthcare System</span> |
| | <span style="display:none">hasDatabase::Database:_Hospital_Morbidity_Database_(Portugal)|Database: Hospital Morbidity Database</span> |
| | <span style="display:none">hasDatabase::Database:_Health_Care_Personnel_Statistics_(Portugal)|Database: Health Care Personnel Statistics</span> |
| | <span style="display:none">hasDatabase::Database:_Mortality_by_Malignant_Neoplasms_(Portugal)|Database: Mortality by Malignant Neoplasms</span> |
| | <span style="display:none">hasDatabase::Database:_Cancer_Screening_Monitoring_(Portugal)|Database: Cancer Screening Monitoring</span> |
| | <span style="display:none">hasDatabase::Database:_National_Cancer_Registry_(RON)_(Portugal)|Database: National Cancer Registry (RON)</span> |
| | <span style="display:none">hasDatabase::Survey:_National_Health_Interview_Survey_(INS)_(Portugal)|Survey: National Health Interview Survey (INS)</span> |
| | <span style="display:none">hasClinicalGuidelines::Compilation:_SPED_National_Guidelines_(Portugal)|Compilation: SPED National Guidelines</span> |
| | <span style="display:none">hasReport::Reports:_National_Health_Statistics_(Portugal)|Reports: National Health Statistics</span> |
| | <span style="display:none">hasReport::Report:_National_Health_Service_(Portugal)|Report: National Health Service</span> |
| | <span style="display:none">hasReport::Report:_National_Cancer_Registry_(RON)_(Portugal)|Report: National Cancer Registry (RON)</span> |
| | <span style="display:none">hasReport::Report:_Southern_Regional_Oncology_Registry_(ROR-Sul)_(Portugal)|Report: Southern Regional Oncology Registry (ROR-Sul)</span> |
| | <span style="display:none">hasReport::Report:_Northern_Regional_Oncology_Registry_(RORENO)_(Portugal)|Report: Northern Regional Oncology Registry (RORENO)</span> |
| | <span style="display:none">hasReport::Report:_Centro_Regional_Oncology_Registry_(ROR-Centro)_(Portugal)|Report: Centro Regional Oncology Registry (ROR-Centro)</span> |
| | <span style="display:none">hasReport::Report:_National_Commission_for_Palliative_Care_(CNCP)_(Portugal)|Report: National Commission for Palliative Care (CNCP)</span> |
| | <span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Portugal)|Report: EU Country Cancer Profile 2023</span> |
| | <span style="display:none">hasReport::Report:_National_Strategy_to_Fight_Cancer,_2030_horizon_(Portugal)|Report: National Strategy to Fight Cancer, 2030 horizon</span> |
| | <span style="display:none">hasPatientAssociation::Patient_Associations_(Portugal)|Patient Associations</span> |
| | <span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Portugal)|Compilation: ESMO Patient Guides</span> |
| | <span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Portugal)|Quality of Life and Palliative Care Research</span> |
| | <span style="display:none">hasClinicalGuidelines::Compilation:_SPED_National_Guidelines_(Portugal)|Guidelines: SPED National Guidelines Compilation</span> |
| | <span style="display:none">hasClinicalGuidelines::Guidelines: SPED National Guidelines Compilation (Portugal)|Guidelines: SPED National Guidelines Compilation</span> |
| | <span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Portugal)|Patient Guides: ESMO Patient Guides Compilation</span> |
| | <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> |
| | <span style="display:none">hasCancerType::C00-C97: All cancer types</span> |
| | <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> |
| | <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> |
| | <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> |
| | <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> |
| | <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> |
| | <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> |
| | <span style="display:none">hasCancerType::C50: Breast cancer</span> |
| | <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> |
| | <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> |
| | <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> |
| | <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> |
| | <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> |
| | <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> |
| | <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> |
| | <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> |
| | <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> |
| | <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> |
| | <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> |
| | <span style="display:none">hasCancerType::unknown</span> |
