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| == [[Cancer Centers]] == | | <span style="display:none">forresearchers</span> |
| | <span style="display:none">forpatients</span> |
| | <span style="display:none">forproviders</span> |
| | <span style="display:none">forpolicymakers</span> |
| | <span style="display:none">portugalcountry</span> |
| | [https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.] |
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| == [[Healthcare System]] == | | == Cancer Centers == |
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| Portugal provides universal healthcare to all its residents, including the unemployed and illegal immigrants. There are also health insurance schemes that provide coverage for specific sectors, both public and private. Citizens can also opt for private health insurance schemes. The system providing healthcare in Portugal is called Serviço Nacional de Saúde (SNS), managed by the Ministry of Health, and is mainly funded through general taxation, but a third of its funding comes from the private sector such as out-of-pocket payments via co-funding or direct payment by the patient.
| | [[hasCancerCenter::Instituto Português de Oncologia do Porto Francisco Gentil]] |
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| Primary care in Portugal is delivered through a combination of public and private healthcare providers, with the National Health Service (NHS) primarily offering primary and acute general and specialized hospital care. While dental consultations, diagnostic services, renal dialysis, and rehabilitation services are mostly offered by private healthcare providers, these services are often funded by the government under contractual agreements with the NHS. Secondary and tertiary care is mainly provided in hospitals organized into Hospital Centres based on geographical location.
| | [[hasCancerCenter::Instituto Português de Oncologia de Lisboa Francisco Gentil]] |
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| Portugal's main statistical authority is the Instituto Nacional de Estatística (INE), responsible for the production and dissemination of official statistics that ensure the supervision and the technical and scientific coordination of the National Statistical System.
| | [[hasCancerCenter::Instituto Português de Oncologia de Coimbra Francisco Gentil]] |
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| == [[Administrative or Claims Data]] ==
| | </div> |
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| === Database: Diagnosis Related Groups (GDH) === | | == [[hasHealthcareSystem::Healthcare_System_(Portugal)|Healthcare System]] == |
| [https://www2.acss.min-saude.pt/DepartamentoseUnidades/DepartamentoGest%C3%A3oeFinanciamentoPrestSa%C3%BAde/SClassifica%C3%A7%C3%A3oDoentes/GruposdeDiagn%C3%B3sticosHomog%C3%A9neos/tabid/460/language/pt-PT/Default.aspx]
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| '''Primary purpose:''' Collect and make available information regarding the use of resources related to inpatient care.
| | == Administrative or Claims Data == |
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| '''Sponsor, manager or home institution''': Serviço Nacional de Saúde (SNS) and Administração Central do Sistema de saúde (ACSS).
| | === [[hasDatabase::Database:_Health_Care_Personnel_Statistics_(Portugal)|Database: Health Care Personnel Statistics]] === |
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| '''Type of information''': [[Data dictionary - GDH Portugal]].
| | </div> |
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| '''Available type of information''': Number of outpatients, equivalent patients, and average delay considering the following variables: Hospitalization, Surgical hospitalization, Medical ICU, Outpatient, Surgical Outpatient, % Outpatient Surgical/Total Scheduled Surgical, and Medical Outpatient.
| | == Registries == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| '''Source of information''': Portugal's hospitals.
| | === [[hasDatabase::Database:_Mortality_by_Malignant_Neoplasms_(Portugal)|Database: Mortality by Malignant Neoplasms]] === |
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| '''Data level''': Hospital level (open access) and patient level (restricted access).
| | === [[hasDatabase::Database:_Cancer_Screening_Monitoring_(Portugal)|Database: Cancer Screening Monitoring]] === |
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| '''Number of Records:''' Unknown.
| | === [[hasDatabase::Database:_National_Cancer_Registry_(RON)_(Portugal)|Database: National Cancer Registry (RON)]] === |
| | </div> |
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| '''Date range''': 2011 - 2014 (open access), and 1993 onwards (restricted access).
| | == Databases for Clinical Trials, Surveys and Biobanks == |
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| '''Cancer Areas of Interest:'''
| | === [[hasDatabase::Survey:_National_Health_Interview_Survey_(INS)_(Portugal)|Survey: National Health Interview Survey (INS)]] === |
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| '''Data access''': Hospital level information is available [https://www2.acss.min-saude.pt/DepartamentoseUnidades/DepartamentoGest%C3%A3oeFinanciamentoPrestSa%C3%BAde/SClassifica%C3%A7%C3%A3oDoentes/GruposdeDiagn%C3%B3sticosHomog%C3%A9neos/Produ%C3%A7%C3%A3oNacional/tabid/922/language/pt-PT/Default.aspx here] in the documents "National Production by GDH" and "National production by hospital". The document that comprises the periods of 2014 and 2015 does not follow this nomenclature rule and is entitled "2014 GDH APR31". To require access to Patient level data, follow the instructions presented in [https://www.acss.min-saude.pt/2017/09/18/pedido_informacao/ this] website.
| | </div> |
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| '''Information/contact for data request''': [https://www2.acss.min-saude.pt/Institucional/Contactos/tabid/95/language/pt-PT/Default.aspx Contact information].
| | == Clinical Practices Guidelines == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| == [[Registries]] == | | === [[hasClinicalGuidelines::Guidelines: SPED National Guidelines Compilation (Portugal)|Guidelines: SPED National Guidelines Compilation]] === |
| === [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008461&xlang=pt&contexto=bd&selTab=tab2 Database: Mortality by Malignant Neoplasms] ===
| | </div> |
| [https://www.ine.pt/ngt_server/attachfileu.jsp?look_parentBoui=259457183&att_display=n&att_download=y] [https://www.ine.pt/bddXplorer/htdocs/minfo.jsp?var_cd=0008461&lingua=EN]
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| '''Primary purpose:''' Provide information regarding the national mortality and its social and demographic distribution.
| | == Latest Policymaking Initiatives == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| '''Sponsor, manager or home institution''': Instituto Nacional de Estatística (INE).
| | === [[hasReport::Reports:_National_Health_Statistics_(Portugal)|Reports: National Health Statistics]] === |
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| '''Type of information''': [[Data dictionary - Mortality by malignant neoplasms Portugal]]
| | === [[hasReport::Report:_National_Health_Service_(Portugal)|Report: National Health Service]] === |
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| '''Available type of information:''' Number of deaths filtered by data reference period, region of residence, sex, age group, and death cause (malignant neoplasms).
| | === [[hasReport::Report:_National_Cancer_Registry_(RON)_(Portugal)|Report: National Cancer Registry (RON)]] === |
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| The following indicators are also available and can be filtered by sex and region of residence:
| | === [[hasReport::Report:_Southern_Regional_Oncology_Registry_(ROR-Sul)_(Portugal)|Report: Southern Regional Oncology Registry (ROR-Sul)]] === |
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| *[https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0003990&xlang=pt&contexto=bd&selTab=tab2 Potential years of life lost by type of cancer].
| | === [[hasReport::Report:_Northern_Regional_Oncology_Registry_(RORENO)_(Portugal)|Report: Northern Regional Oncology Registry (RORENO)]] === |
| *[https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0003824&xlang=pt&contexto=bd&selTab=tab2 Rate of potential years of life lost (per 100 000 inhabitants) by type of cancer].
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| *[https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008709&xlang=pt&contexto=bd&selTab=tab2 Mortality rate (per 100 000 inhabitants or in percentage) by type of cancer].
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| *[https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0003796&xlang=pt&contexto=bd&selTab=tab2 Standardized mortality rate (per 100 000 inhabitants) by type of cancer].
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| *[https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0005069&xlang=pt&contexto=bd&selTab=tab2 Standardized mortality rate (per 100 000 inhabitants) by type of cancer regarding people 65 years of age and older.]
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| *[https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0005043&xlang=pt&contexto=bd&selTab=tab2 Standardized mortality rate (per 100 000 inhabitants) by type of cancer regarding people younger than 65 years of age].
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| | === [[hasReport::Report:_Centro_Regional_Oncology_Registry_(ROR-Centro)_(Portugal)|Report: Centro Regional Oncology Registry (ROR-Centro)]] === |
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| '''Source of information''': Data collection through the notary offices and registered in the Integrated System for Civil Registration and Identification (SIRIC).
| | === [[hasReport::Report:_National_Commission_for_Palliative_Care_(CNCP)_(Portugal)|Report: National Commission for Palliative Care (CNCP)]] === |
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| '''Data level''': Regional level (open access) and Patient level (restricted access).
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Portugal)|Report: EU Country Cancer Profile 2023]] === |
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| '''Number of Records:''' Unknown.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Portugal)|Report: EU Country Cancer Profile 2025]] === |
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| '''Date range''': Regional level (2002 onwards) and Patient level (1998 onwards).
| | === [[hasReport::Report:_National_Strategy_to_Fight_Cancer,_2030_horizon_(Portugal)|Report: National Strategy to Fight Cancer, 2030 horizon]] === |
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| '''Cancer Areas of Interest:''' [[Cancer areas of interest - Mortality by malignant neoplasms Portugal]].
| | == Cancer-related Patient Associations and Resources == |
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| '''Open data access''': Regional-level data is openly available [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008461&selTab=tab0 here].
| | === [[hasPatientAssociation::Patient Association: Liga Portuguesa Contra o Cancro (Europa Donna Portugal) (Portugal)|Patient Association: Liga Portuguesa Contra o Cancro (Europa Donna Portugal)]] === |
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| '''Data access''': To ask for patient-level data, follow the instructions presented in [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_serv_clientes&INST=161301979&ine_smenu.boui=161302718&ine_smenu.selected=161302852 this] webpage.
| | === [[hasPatientAssociation::Patient Association: Patient Associations Compilation (Portugal)|Patient Association: Patient Associations Compilation]] === |
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| '''Information/contact for data request''': [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_cont_inst&ine_smenu.boui=13711615&INST=56501 Contact information].
| | === [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Portugal)|Patient Guides: ESMO Patient Guides Compilation]] === |
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| === [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008465&xlang=pt&contexto=bd&selTab=tab2 Database: Health Care Personnel Statistics] === | | === [[hasPatientResource::Self-help_Group:_Careca_Power_(Portugal)|Self-help Group: Careca Power]] === |
| [https://smi.ine.pt/UploadFile/Download/370]
| | </div> |
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| '''Primary purpose:''' Publish statistics on the number of health professionals registered in the professional organizations.
| | == [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Portugal)|Quality of Life and Palliative Care Research]] == |
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| '''Sponsor, manager or home institution''': Instituto Nacional de Estatística (INE).
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| | | <span style="display:none">hasCancerCenter::Instituto Português de Oncologia do Porto Francisco Gentil</span> |
| '''Type of information''': Number of medical specialists filtered by place of residence, gender and specialty, subspecialty or competence. Considering cancer area, the database presents information about the number of medical and pediatric oncology professionals.
| | <span style="display:none">hasCancerCenter::Instituto Português de Oncologia de Lisboa Francisco Gentil</span> |
| | | <span style="display:none">hasCancerCenter::Instituto Português de Oncologia de Coimbra Francisco Gentil</span> |
| '''Source of information''': Regarding the information about oncologists, the source is the Medical Association.
| | <span style="display:none">hasHealthcareSystem::Healthcare_System_(Portugal)|Healthcare System</span> |
| | | <span style="display:none">hasDatabase::Database:_Hospital_Morbidity_Database_(Portugal)|Database: Hospital Morbidity Database</span> |
| '''Data level''': Regional level.
| | <span style="display:none">hasDatabase::Database:_Health_Care_Personnel_Statistics_(Portugal)|Database: Health Care Personnel Statistics</span> |
| | | <span style="display:none">hasDatabase::Database:_Mortality_by_Malignant_Neoplasms_(Portugal)|Database: Mortality by Malignant Neoplasms</span> |
| '''Number of Records:''' Unknown.
| | <span style="display:none">hasDatabase::Database:_Cancer_Screening_Monitoring_(Portugal)|Database: Cancer Screening Monitoring</span> |
| | | <span style="display:none">hasDatabase::Database:_National_Cancer_Registry_(RON)_(Portugal)|Database: National Cancer Registry (RON)</span> |
| '''Date range''': 2011 onwards.
| | <span style="display:none">hasDatabase::Survey:_National_Health_Interview_Survey_(INS)_(Portugal)|Survey: National Health Interview Survey (INS)</span> |
| | | <span style="display:none">hasClinicalGuidelines::Compilation:_SPED_National_Guidelines_(Portugal)|Compilation: SPED National Guidelines</span> |
| '''Cancer Areas of Interest:''' Unknown.
| | <span style="display:none">hasReport::Reports:_National_Health_Statistics_(Portugal)|Reports: National Health Statistics</span> |
| | | <span style="display:none">hasReport::Report:_National_Health_Service_(Portugal)|Report: National Health Service</span> |
| '''Data access''': Open access in [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008465&xlang=pt&contexto=bd&selTab=tab2 this] webpage.
| | <span style="display:none">hasReport::Report:_National_Cancer_Registry_(RON)_(Portugal)|Report: National Cancer Registry (RON)</span> |
| | | <span style="display:none">hasReport::Report:_Southern_Regional_Oncology_Registry_(ROR-Sul)_(Portugal)|Report: Southern Regional Oncology Registry (ROR-Sul)</span> |
| '''Information/contact for data request''': [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_cont_inst&ine_smenu.boui=13711615&INST=56501 Contact information].
| | <span style="display:none">hasReport::Report:_Northern_Regional_Oncology_Registry_(RORENO)_(Portugal)|Report: Northern Regional Oncology Registry (RORENO)</span> |
| | | <span style="display:none">hasReport::Report:_Centro_Regional_Oncology_Registry_(ROR-Centro)_(Portugal)|Report: Centro Regional Oncology Registry (ROR-Centro)</span> |
| === Database: Cancer Screening Monitoring===
| | <span style="display:none">hasReport::Report:_National_Commission_for_Palliative_Care_(CNCP)_(Portugal)|Report: National Commission for Palliative Care (CNCP)</span> |
| [https://www.dgs.pt/portal-da-estatistica-da-saude/diretorio-de-informacao/diretorio-de-informacao/por-anos-dos-dados-1288900-pdf.aspx?v=%3d%3dDwAAAB%2bLCAAAAAAABAArySzItzVUy81MsTU1MDAFAHzFEfkPAAAA]
| | <span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Portugal)|Report: EU Country Cancer Profile 2023</span> |
| | | <span style="display:none">hasReport::Report:_National_Strategy_to_Fight_Cancer,_2030_horizon_(Portugal)|Report: National Strategy to Fight Cancer, 2030 horizon</span> |
| '''Primary purpose:''' Promote the early diagnosis of cancer in order to start treatment early and thus decrease the national cancer mortality rate.
| | <span style="display:none">hasPatientAssociation::Patient_Associations_(Portugal)|Patient Associations</span> |
| | | <span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Portugal)|Compilation: ESMO Patient Guides</span> |
| '''Sponsor, manager or home institution''': Direção Geral da Saúde (DGS).
| | <span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Portugal)|Quality of Life and Palliative Care Research</span> |
| | | <span style="display:none">hasClinicalGuidelines::Compilation:_SPED_National_Guidelines_(Portugal)|Guidelines: SPED National Guidelines Compilation</span> |
| '''Type of information''': Information regarding breast, cervical, colon and rectal cancer screening. Examples of available data are the screening adherence rate, test positivity rate, geographic coverage rate, coverage rate by region, number of eligible population.
| | <span style="display:none">hasClinicalGuidelines::Guidelines: SPED National Guidelines Compilation (Portugal)|Guidelines: SPED National Guidelines Compilation</span> |
| | | <span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Portugal)|Patient Guides: ESMO Patient Guides Compilation</span> |
| '''Source of information''': Forms filled out by the regional Health Administrations and the Autonomous Regions of Portugal.
| | <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> |
| | | <span style="display:none">hasCancerType::C00-C97: All cancer types</span> |
| '''Data level''': Regional level.
| | <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> |
| | | <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> |
| '''Number of Records:''' Unknown.
| | <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> |
| | | <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> |
| '''Date range''': The project occurs since 1990. Regional level data is available 2014 onwards.
| | <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> |
| | | <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> |
| '''Cancer Areas of Interest:''' Breast, cervical, colon and rectal cancer.
| | <span style="display:none">hasCancerType::C50: Breast cancer</span> |
| | | <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> |
| '''Data access''': Regional level data is available [https://transparencia.sns.gov.pt/explore/dataset/rastreios-oncologicos/information/?disjunctive.regiao&disjunctive.aces&sort=tempo&dataChart=eyJxdWVyaWVzIjpbeyJjaGFydHMiOlt7InR5cGUiOiJsaW5lIiwiZnVuYyI6IkFWRyIsInlBeGlzIjoiY29udGFnZW1fZGVfbXVsaGVyZXNfY29tX3JlZ2lzdG9fZGVfbWFtb2dyYWZpYV9ub3NfdWx0aW1vc19kb2lzX2Fub3MiLCJjb2xvciI6IiM2NmMyYTUiLCJzY2llbnRpZmljRGlzcGxheSI6dHJ1ZX1dLCJ4QXhpcyI6InRlbXBvIiwibWF4cG9pbnRzIjoiIiwidGltZXNjYWxlIjoibW9udGgiLCJzb3J0IjoiIiwiY29uZmlnIjp7ImRhdGFzZXQiOiJyYXN0cmVpb3Mtb25jb2xvZ2ljb3MiLCJvcHRpb25zIjp7ImRpc2p1bmN0aXZlLnJlZ2lhbyI6dHJ1ZSwiZGlzanVuY3RpdmUuYWNlcyI6dHJ1ZSwic29ydCI6InRlbXBvIiwicmVmaW5lLnRlbXBvIjoiMjAyMyJ9fX1dLCJ0aW1lc2NhbGUiOiJtb250aCIsImRpc3BsYXlMZWdlbmQiOnRydWUsImFsaWduTW9udGgiOnRydWV9 here]. Monitoring reports are available at the General Health Directorate (DGS) [https://www.dgs.pt/paginas-de-sistema/saude-de-a-a-z/programa-nacional-para-as-doencas-oncologicas/relatorios-e-publicacoes.aspx website]. The 2015 report is available [https://comum.rcaap.pt/bitstream/10400.26/15603/1/d217357.pdf here].
| | <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> |
| | | <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> |
| '''Information/contact for data request''': [https://www.dgs.pt/a-dgs/localizacao-e-contactos.aspx Contact information].
| | <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> |
| | | <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> |
| === Database: Cancer Incidence, Survival and Mortality in the Southern Region of Portugal (ISM) ===
| | <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> |
| [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf]
| | <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> |
| | | <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> |
| '''Primary purpose:''' Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following regions: health regions of Lisboa e Vale do Tejo (LVT), Alentejo, Algarve and the Autonomous Region of Madeira.
| | <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> |
| | | <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> |
| '''Sponsor, manager or home institution''': National Cancer Registry (RON) and Regional Oncology Registry South (ROR-Sul).
| | <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> |
| | | <span style="display:none">hasCancerType::unknown</span> |
| '''Type of information''': Survival (by gender and age) and Incidence rates (specific, crude and standardized for age, sex, and tumor location per 100,000 people) with tables and graphs
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| Presents also mortality rates (specific, crude and standardized for age, by malignant tumor and sex) information from INE.
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| Patient level information contains identification fields (example: name, gender, date of birth or age, and address); diagnosis, tumor and treatment fields (diagnosis dates, basis of diagnosis, primary location, histologic type, behavior, stage, treatment start date and treatment sequence); follow-up fields (patient vital status, date and cause of death).
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| '''Source of information''': Data from public and private health institutions of the region.
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| '''Data level''': Regional level (open access) and Patient level (restrict acess).
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| '''Number of Records:''' Unknown.
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| '''Date range''': Regional level is presented from 2002 to 2017, and 1998* - 2000/2001*.
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| Patient level date range is unknown.
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| (*Only includes cancer incidence data) | |
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| '''Cancer Areas of Interest:''' The list can be checked at the page 25 of [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf this] document.
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| '''Data access''': Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website, at [https://ron.min-saude.pt/pt/biblioteca/publicacoes-diversas/nacionais/?page=1 this] link.
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| To access patient level data, it is necessary to fill [https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf this] document and send to the address presented in it.
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| '''Information/contact for data request''': [https://www.dgs.pt/site/contactos.aspx Contact information].
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| === Database: Cancer Survival and Incidence in the Northern Region of Portugal ===
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| [https://ron.min-saude.pt/media/1578/sobreviv%C3%AAncia-2009-2010.pdf] [https://ron.min-saude.pt/media/1576/roreno-2011.pdf]
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| '''Primary purpose:''' Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following districts: Braga, Bragança, Porto, Viana do Castelo and Vila Real.
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| '''Sponsor, manager or home institution''': National Cancer Registry (RON) and Northern Regional Oncology Registry (RORENO).
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| '''Type of information''': Cancer survival (overall, observed, net, standardized, by gender, type of tumor, time since diagnosis, age, and region of residence) for people over 15 years old.
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| Cancer incidence (crude number, crude and standardized rate per 100,000, by sex, age, and tumor location).
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| Patient level information contains identification fields (example: name, gender, date of birth or age, and address); diagnosis, tumor and treatment fields (diagnosis dates, basis of diagnosis, primary location, histologic type, behavior, stage, treatment start date and treatment sequence); follow-up fields (patient vital status, date and cause of death).
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| '''Source of information''': Data from public and private health institutions of the region.
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| '''Data level''': Regional level (open access) and Patient level (restrict acess).
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| '''Number of Records:''' Unknown.
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| '''Date range''': Incidence is presented from 1988 to 2011. Survival ranges from 2005 to 2010.
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| '''Cancer Areas of Interest:''' Survival - all tumors except basal cellular and squamous cell tumors of the skin.
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| Incidence - all tumors except basal cell carcinomas and nonspecific tumors of the skin.
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| '''Data access''': Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website, at [https://ron.min-saude.pt/pt/biblioteca/publicacoes-diversas/nacionais/?page=1 this] link.
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| To access patient level data, it is necessary to fill [https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf this] document and send to the address presented in it.
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| '''Information/contact for data request''': [https://www.dgs.pt/site/contactos.aspx Contact information].
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| | |
| === Database: Cancer Survival and Incidence in the Central Region of Portugal === | |
| [https://ron.min-saude.pt/media/2073/publica%C3%A7%C3%A3o-2010.pdf]
| |
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| '''Primary purpose:''' Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following districts: Aveiro, Castelo Branco, Coimbra, Guarda, Leiria e Viseu.
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| '''Sponsor, manager or home institution''': National Cancer Registry (RON) and Central zone regional oncology registry (ROR-Centro).
| |
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| '''Type of information''': Cancer incidence (gross number, gross rate, overall and standardized per 100,000, by sex, age and tumor location).
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| Patient level information contains identification fields (example: name, gender, date of birth or age, and address); diagnosis, tumor and treatment fields (diagnosis dates, basis of diagnosis, primary location, histologic type, behavior, stage, treatment start date and treatment sequence); follow-up fields (patient vital status, date and cause of death).
| |
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| '''Source of information''': Data from public and private health institutions of the region.
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| '''Data level''': Regional level (open access) and Patient level (restrict acess).
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| '''Number of Records:''' Unknown.
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| '''Date range''': 1989 - 2010.
| |
| | |
| '''Cancer Areas of Interest:''' List is available at the page 3 of [https://ron.min-saude.pt/media/2073/publicação-2010.pdf this] document.
| |
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| '''Data access''': Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website, at [https://ron.min-saude.pt/pt/biblioteca/publicacoes-diversas/nacionais/?page=1 this] link.
| |
| | |
| To access patient level data, it is necessary to fill [https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf this] document and send to the address presented in it.
| |
| | |
| '''Information/contact for data request''': [https://www.dgs.pt/site/contactos.aspx Contact information].
| |
| | |
| === Database: Cancer Incidence in Portugal === | |
| [https://ron.min-saude.pt/media/2214/ron-2019_new_v8f.pdf]
| |
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| '''Primary purpose:''' Inform about cancer statistics regarding all regions of Portugal.
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| '''Sponsor, manager or home institution''': National Cancer Registry (RON).
| |
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| '''Type of information''': Number of new cancer cases by age, sex, tumor site, and place of residence.
| |
| | |
| Specific, crude and standardized cancer incidence rates per 100,000 persons for age, place of residence, sex and tumor location. Covers the entire territory of Portugal.
| |
| | |
| Patient level information contains identification fields (example: name, gender, date of birth or age, and address); diagnosis, tumor and treatment fields (diagnosis dates, basis of diagnosis, primary location, histologic type, behavior, stage, treatment start date and treatment sequence); follow-up fields (patient vital status, date and cause of death).
| |
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| It also presents mortality data by tumor type, age, sex.
| |
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| '''Source of information''': Data from public and private health institutions in Portugal.
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| '''Data level''': Regional level (open access) and Patient level (restrict acess).
| |
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| '''Number of Records:''' Unknown.
| |
| | |
| '''Date range''': 2001 - 2019.
| |
| | |
| '''Cancer Areas of Interest:'''
| |
| | |
| '''Data access''': Reports with regional data can be accessed through the RON publications section on the National Cancer Registry website, at [https://ron.min-saude.pt/pt/biblioteca/publicacoes-ron/ this] link.
| |
| | |
| To access patient level data, it is necessary to fill [https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf this] document and send to the address presented in it.
| |
| | |
| '''Information/contact for data request''': [https://www.dgs.pt/site/contactos.aspx Contact information].
| |
| <!-- | |
| === [ Database: ] === | |
| | |
| '''Primary purpose:'''
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| | |
| '''Sponsor, manager or home institution''':
| |
| | |
| '''Type of information''':
| |
| | |
| '''Source of information''':
| |
| | |
| '''Data level''':
| |
| | |
| '''Number of Records:'''
| |
| | |
| '''Date range''':
| |
| | |
| '''Cancer Areas of Interest:'''
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| '''Data access''':
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| | |
| '''Information/contact for data request''': [ Contact information].
| |
| -->
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| | |
| == [[Databases for Clinical Trials, Surveys and Biobanks]] == | |
| | |
| === Survey: National Health Interview Survey (INS)=== | |
| [https://www.ine.pt/ngt_server/attachfileu.jsp?look_parentBoui=451800443&att_display=n&att_download=y]
| |
| | |
| '''Primary purpose:''' Publish statistics on health status, health care and health determinants, and socio-demographic characteristics of the population to enable the study and improvement of these areas.
| |
| | |
| '''Sponsor, manager or home institution''': Instituto Nacional de Estatística (INE).
| |
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| '''Available type of information''': Regarding cancer prevention information, contains the percentage of the female resident population aged 50 to 69 years who reported having had mammography done in the 2 years prior to the interview and the female resident population aged 20 to 69 years who reported having had cervical cytology done in the 3 years prior to the interview, both filtered by education level and region of residence.
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| '''Type of information''': [[Type of information - INS Portugal]].
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| '''Source of information''': Instituto Nacional de Estatística (INE).
| |
| | |
| '''Data level''': National level (open access) and Patient level (restricted access).
| |
| | |
| '''Number of Records:''' Unknown.
| |
| | |
| '''Date range''': 2005 onwards. It occurs on a five-year basis.
| |
| | |
| '''Cancer Areas of Interest:''' Breast and cervix neoplasms.
| |
| | |
| '''Data access''': Mammography examination by [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008934&xlang=pt&contexto=bd&selTab=tab2 education level] and region of residence ([https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008052&xlang=pt&contexto=bd&selTab=tab2 2005] and [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008812&xlang=pt&contexto=bd&selTab=tab2 2014 onwards]); Cervical cytology by [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008925&xlang=pt&contexto=bd&selTab=tab2 education level] and region of residence ([https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008051&xlang=pt&contexto=bd&selTab=tab2 2005] and [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008813&xlang=pt&contexto=bd&selTab=tab2 2014 onwards]).
| |
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| '''Information/contact for data request''': [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_cont_inst&ine_smenu.boui=13711615&INST=56501 Contact information].
| |
| | |
| == [[Electronic Health Records]] ==
| |
| | |
| == [[Clinical Practices Guidelines]] ==
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| == [[Latest Policymaking Initiatives]] ==
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| == [[Cancer-related Patient Associations and Resources]] ==
| |
